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???? Episcleritis for past 10 years at least!

Posted , 2 users are following.

Guest
Guest

I've only just come across this board and am so glad!

I'm 28 and for at least 10 years now i've had recurring red eyes on and off. It can be the right or the left although of late it's mostly the right.

The redness seems to be more 'red' on the part of the eye you can see, when i lift my upper eyelid up there is a distinct line where it lies where it's more a light pink rather than red. This lasts approx 5 days and i'm really getting fed up now.There's no pain as such apart from feeling as though the vessels are really prominent and when i blink i feel the lid scraping over them- the eye normally feels hot to touch and can become really itchy- although not often. I sometimes wake up with this and even before i've checked the mirror i know it's there. I've never had any discharge frome either of the eyes.

Over the years i've visited my GP and been referred to an eye hospital and have been told over and over it was conjunctivitis or dry eyes. Eventually the eye hospital came up with a different diagnosis of 'polyps' or 'corneal ulcers' in the corner of the lower lids leaking a virus causing the inflammation. The polyps were surgically removed in 2006. Yes i did have small skin tags present there but i still to this day dont believe they had any part to play in this evil redness! And if they did why is it still happening??

I think i'm just at the end of my tether with it and the constant questioning - \"eeh whats wrong with your eye?\"

\"ooh it looks really nasty and horrible!\"

\"you should get that checked out you know\"

Don't they think i know it looks terrible and have tried to get some help with it!! AARRRGGHH!

Well sorry to rant and rave on here but at least some of the problems i've got i'm hoping someone on here may have some advice for me

0 likes, 4 replies

4 Replies

  • Guest
    Guest

    Posted

    Bizarrely i have exactly the same problem...and i'm 28 and it been's going on for over 10 years too!! i have it right now as I write...it happens once a month or there abouts and i hate it so much. just like you, everyone i see on the days i have it say \"whats wrong with your eye...?\" even when they have seen it a hundred times before, they still ask! it drives me mad, puts me in a bad mood and makes me not want to see people when i have it. for years the docs told me conjunctivitis til finally i was sent to the eye hospital where episcleritis was diagnosed. was told i could pretty much do nothing about it and it's truly depressing. mine can be pretty painful when it wants to be, other times its very mild. i use normal eye drops and painkillers, but really their effect is minimal at best. i sympathise. completely.
  • redeye
    redeye

    Posted

    Bec and Karistargel...

    As a fellow episcleritis sufferer, I've had the exact same feelings for the last 4 years....it is so annoying to have to answer the same questions again and again!

    Would you be prepared to be photographed when your eyes are red? I'm doing a little project, hopefully to raise awareness of various issues we have to face, and a few close-up shots would help a lot...

    If you are interested send me a private message, or contact me through ****

    (This applies to anyone else with a \"red eye\" problem by the way)

    Thanks.

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  • Guest
    Guest

    Posted

    Hey everyone.

    I am 26 and have been suffering with this for over 15 years, only being diagnosed in the last couple of years. I am soo sick and tired of everyone asking if I am ok!!! Also very anxious of having my photo taken in case I look like I have had a lunch in the eye!

    I'd love to help in anyway I can!

    Krystle

  • Guest
    Guest

    Posted

    Hey all,

    Sorry i've not been back - i lost the link!! :oops:

    Anyway- finally a diagnosis of Episcleritis. I went along to my GP after a bout of 'red eye' lasting nearly 2 weeks armed with photos! I told him i NEEDED to be re referred and was seen within a week. The Eye specialist looked at my photos and ummed and ahhed for a bit so i decided i'd had enough. I just came out with something along the lines of i hope he didnt think i was telling him his job or assuming to know more then him but is this not episcleritis??!

    So i'm not sure if i actually diagnosed myself and he just went along with it or he truely agrees with me. Either way i came out with Acular drops- DO NOT WORK and FML drops which i'm petrified to use for the many side effects. So........ really i'm not much further although i do have a diagnosis.

    I'd be interested to know if anyone has used FML and if it works?

    Hope everyone hasn't has too bad a time with the evil redness (+/- pain)

    xxxx

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