Skip to content

Scleritis And Episcleritis

All discussions in this group

Next
  • Guest M

    Recurrent Episcleritis and hope at last!

    I am 41, female and have been healthy all of my life until i had a bout of shingles 4 years ago. I do not know if it is related and my GP will not commit to say it is but after Shingles I kept getting episcleritis.I tried Pred Forte which worked well at first but as my bouts of episcleritis increased...

    24 replies 0 votes Last reply
  • shauna65365 2

    Finding the right cocktail? Scleritis

    Ok not the drink!! I am 25years old F. Just diagnosed with Sclaritis caused my underlying auto amune deaseas. They have no idea what one. So that is lovely. I have finally found an eye drop that helps after trying every one out there practically. Its calle Lotemax. Good luck getting your insurance to...

    15 replies 0 votes Last reply
  • carole30337 1

    How normal is 'normal'?

    I started with eye pain back in November 2014 and wasn't properly diagnosed until end of September 2015 when I was put onto steroid & dilating eye drops and morphine for the trigeminal pain, eventually onto 50mg Prednisalone reducing. At 35mg I was stable but couldn't get below that, so was then started...

    1 reply 0 votes Last reply
  • shauna65365 2
  • Guest M

    Scleritis

    Hi, I'm 23 years old female. I was diagnosed with scleritis in 2005, i woke up one morning with an unbareable pain at the back of my right eye, and it was all red. Any way i have been under the hospital for 4 years always back and fourth. I have various types of treatments (Steroids oral and aziathropine...

    8 replies 0 votes Last reply
  • music maker 1

    is episcleritis not curable????

    I have read a load of other peoples experiences and it has made me very depressed. Is there no cure for episcleritis? Does no one ever get better? I have suffered with it since october last year and every time I get a new lot of drops I think \"YES!! this time!!!\" but all the letters on the...

    1 reply 0 votes Last reply
  • abbie 20562 2

    Pain free for 4 years

    In Jan 2011 I suffered a Rheumatoid autoimmune reaction which resulted in Scleritis - I have never know pain like it.  I was treated at the Brighton Eye Hospital and even went for a consult with Carlos Pavesio at Moorfields.  I had been treated with high dose steroids, cyclophosphamide, anti immune drugs...

    3 replies 0 votes Last reply
  • elizabeth97724 2

    episcleritis and RA

    I have been seeing my rheumatologist since May. After my second childbirth I developed really bad fatigue, swelling and pain in many of my joints. I have been diagnosed with RA. He put me on plaquenill and naproxen for the inflammation. I have now in the last month developed episcleritis that goes from...

    1 reply 0 votes Last reply
  • elizabeth97724 2

    SNRA and episcleritis at 22!

    my rheumatologist has diagnosed me with seronegative rheumatoid arthritis because I don't test but he says the clinical picture is obvious. I have recently developed episcleritis. which was in my right eye mildly following an injury. Today I have woken up with a red, tender eye that is now painful. Today...

    6 replies 0 votes Last reply
  • daphne38651 1

    new diagnosis

    hi i've just been diagnosed with this and am wondering how often I can expect to have a really painful episode? also I have one eye affected - is it likely to start to affect the other eye? thanks

    1 reply 0 votes Last reply
  • music maker 1

    Please read this if you have Episclerities

    Ok, so I'm 43, and I get episcleritis from time to time, thing is I think I've found a way to cure it, it's just episcleritis in it's simple form, not nodular and I've never had sclerities or anything. What I've found is that drinking green tea helps. Ok, it tastes like you're drinking compost, but...

    3 replies 1 vote Last reply
  • bethany21394 1

    Scleritis help

    I'm a healthy female. Around a year ago the whites of my eyes turned completely red and i had horrendous headaches. I suffered facial pain around my brow bone and cheekbones. I went to A&E where i was referred by emergency appointment to see an opthamologist. This appointment wasn't until two days later...

    3 replies 1 vote Last reply
  • kelsey 1

    new to this site but long time sufferer

    I am very new here but my eyes have been causing me problems for a very long time. I'm not sure if I am slow on the uptake or just too trusting because I have never questioned what treatment the ophthalmoloogist recommended. I originally went to him because of dry eye due to Sjogrens Syndrome. I had...

    1 reply 0 votes Last reply
  • stephen@hold2741.fsnet.co 1

    scleritis

    My 14yr old son has been treated in Manchester Royal Eye hospital for several years after having been diagnosed with Retinoschisis. Unfortunately, he detached a retina and had to have it reattached using silicon oil as the gas air bubble method was unsuccessful. Sadly, the silicon oil could not all be...

    1 reply 0 votes Last reply
  • jennie78510 1

    This really hits home! thought i was a minority!

    started august 2013. got hit in the eye with a dart gun and eye flared up from trauma. ophthalmologist said traumatic iritis. prednisone drops. kept recurring when i started to taper down. saw an ophthalmology specialist who gave me prednisone injections. no flare for 6 mos. but med. wore off and flared...

    1 reply 0 votes Last reply
  • kerrie35790 1

    Not sure what help I need

    This is the 2nd time I've been diagnosed with Posterior scleritis. The first time I was put on 80mg of steroids. It helped with the pain straight away. As it was coming up to my wedding I took myself off the steroids and stopped going to my hospital appointments. Because of the weight gain. 2 years later...

    1 reply 0 votes Last reply
  • KillerKlown 1

    I've had Episcleritis 4 weeks back, now returns.

    Hi all, as above I had Episcleritis 4 weeks ago, but stupidly stopped treatment (eye drops) after a week. It came back 2 weeks later and I did another week of treatment before they ran out. 2 week on, and now it's coming back again. This time Ibe noticed than when I look in the mirror and turn my head...

    7 replies 0 votes Last reply
  • carole30337 1

    What helps with the pain?

    I have scleritis in one eye, left eye has settled down at the moment. On the 8th week of treatment with steroid drops now down to one a day but I am at my wits end trying to cope with the pain. I am taking 4 paracetamol at once & they are hardly touching it. Opthamolagist prescribed anti-inflamatory...

    1 reply 0 votes Last reply
  • Polarsuds 2

    Chronic bilateral scleritis

    Hi I am being treated for chronic scleritis in both eyes. I was hospitalized for a week over Christmas and was put on a high dose of prednisone. I was then on methotrexate which didn't help much and today I was prescribed Azathioprine, I hope I get some relief with this as I have been in unbearable...

    4 replies 0 votes Last reply
  • Guest M

    I have suffered from episcleritis for the past 15 years....

    I have suffered from episcleritis for the past 15 years. I used to visit the opthamology department once a month for tests. I have been given so many drops but nothing seems to cure it. Maxitrol drops which are a steroid/antibiotic seem to be the best help, even though the condition appears back within...

    7 replies 0 votes Last reply
  • cindy 825 1

    Scleritis

    about 6 years ago I was diagnosed with scleritis.  I was seeing a cornea specialist.  She immediately told me I had an auto immune disease.  I was put on steroids and methatextrate. We were moving out of state at the time.  When I got to new home I went to see a new opthamologist who told me I do not...

    0 replies 0 votes Posted
  • Guest M

    Good news for me and hope it helps you too.

    I wrote in response to another sufferer in Jan of this year. Then i was feeling very negative and down. Just a quick rundown of my suffering with episcleritis. Had it for 33 years, started when i was about 15 only 2 or 3 times a year for a while, then long periods with it. Up until Jan of this year i...

    1 reply 0 votes Last reply
  • Guest M

    Red Eye - Episcleritis

    I can't believe that I have at last found people that have this awful condition. I've always been healthy thanks heavens, but started to have this condition in one eye about 5 years ago. Didn't last long but has now got to the point where i have it 98% all of the time and now in both eyes. I will...

    5 replies 0 votes Last reply
  • Guest M

    The saga continues.....

    I've just started another new treatment.....the Humira Injections finally were not enough, I kept getting episodes either just before the injection or just after. This treatment is called infliximab, has anyone else been on this treatment - I would be interested to know how other people have reacted...

    2 replies 0 votes Last reply
  • cyu 1

    Posterior Scleritis

    I am a 17 year old female still in highschool. I've been feeling really alone the past few months since no one seems to understand my ordeal with scleritis. Around 5 months ago out of nowhere, I started having immense headaches which at first I mistakened as just migraines or cluster headaches. I'm not...

    1 reply 1 vote Last reply
  • Guest M

    I've been having problems with my left eye since Feb 05....

    I've been having problems with my left eye since Feb 05. It started as an unsual redness around the iris. I was referred to the Eye Clinic, who then informed me that I had Iritis. At that time I was given the pred forte drops. After several recurring flareups it was found that I actually had Scleritis...

    18 replies 0 votes Last reply
  • tebe 1

    Episcleritis/scleritis and bowel problems?

    I realise I am lucky compared to many of you, but I have never had the chance to share and compare. My latest incidence was about 2-3 weeks ago: One day I started with bad stomach cramps (I am diagnosed with IBS though far from sure this is accurate), felt substantially under the weather etc. 24 hours...

    5 replies 0 votes Last reply
  • Guest M

    Dumb eye

    I am 26 years old and have had eoiscleritis for almost 3 years now. I came home from a vacation in mexico and thought I had pink eye. The pain was unbearable. I had gone to many doctors and no one could tell me what was wrong. Finally they told me I had Episcleritis and put me on the steriod drops...

    1 reply 0 votes Last reply
  • nelly45 1

    nodular scleritis

    Hi - am new to this forum so apologise if I have posted in wrong place. I need some advice please. Am 45 year old female who 6 weeks ago was diagnosed with acute conjunctivitis by the hospital. My eye was very very swollen and had a horrible gelatinous discharge. This cleared but then eye red and...

    2 replies 0 votes Last reply
  • Guest M

    Nodular Scleritis

    I am also new to this site. I have rheumtoid arthritis, fibromyasia, and other complications from these diseases. the worst one has been when I woke up one day with horrid pain in my right eye. when i looked in the mirror, the eye was completely blood shot. i can see all the viens. the eye have...

    1 reply 0 votes Last reply
  • KR 1

    pleased to have you with us!

    It was great to read all of your posts , although so sorry you have all been through so much !! I too am so glad to have this contact. We may live miles away from each other but I feel we are united by a common bond. Having read your posts I too feel less on my own and in a way vindicated! Its so hard...

    0 replies 0 votes Posted
  • GinaRicci 1

    Scleritis

    Hi everyone. I just came across this site after talking to my 40 year old brother who was just diagnosed with scleritis. He has had the red in eye since Dec. 09. Well, he went to specialist (3rd ) one. A head doctor in Boston the head of MERCY out in Cambridge, MA. Well, right now he put him on...

    1 reply 1 vote Last reply
  • Triffid 1

    Scleritis for 7 years

    I am so glad to have found this forum. I hope my experiences may help someone, and I might learn from you all. In August 2002 I developed episcleritis in my left eye for no apparent reason. After 4 months of increasing pain one of the 7 different doctors I saw diagnosed scleritis, although this was never...

    0 replies 0 votes Posted
  • KR 1

    up-date please

    Hi just been reading through some past postings .Just wondered if any could give us an up-date on their progress or how they are now. It would be good to hear from you!

    0 replies 0 votes Posted
  • KR 1

    Scleritis - hope this helps.

    So pleased to have found you all! I can relate to so many things you have written .The long awaited diagnosis,hating the way my eyes look, the difficulty in explaining to others (including your closest relatives ,why I am are constantly unwell)etc ,etc...I have scleritis which effects both eyes. I too...

    2 replies 0 votes Last reply
Back to top Next


We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.