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Scleritis And Episcleritis

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  • Finding the right cocktail? Scleritis

    Ok not the drink!! I am 25years old F. Just diagnosed with Sclaritis caused my underlying auto amune deaseas. They have no idea what one. So that is lovely. I have finally found an eye drop that helps after trying every one out there practically. Its calle Lotemax. Good luck getting your insurance to...

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  • Struggling with posterior scleritis

    Hi, my name is Lucy. I'm 31 and I got diagnosed with posterior scleritis on the 1st of March 2013, I was 26. My life has changed a lot since then. I struggle to cope with the pain, I've not managed to go 3 months without a bad flare up. I have taken prednisolone steroid for prolonged amounts...

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  • Recurrent Episcleritis and hope at last!

    I am 41, female and have been healthy all of my life until i had a bout of shingles 4 years ago. I do not know if it is related and my GP will not commit to say it is but after Shingles I kept getting episcleritis.I tried Pred Forte which worked well at first but as my bouts of episcleritis increased...

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  • I have been diagnosed with scleritis of my left eye sinc...

    I have been diagnosed with scleritis of my left eye since may 2006. I have RA and am on Methotrexate and anti tnf. For my eye I am taking prednisilone eye drops 1% but the eye is still the same and gets worse when I am tired, if there is bright sunlight. I found the statement that 50% of people with...

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  • Posterior Scleritis and acupuncture

    Has anyone tried this treatment with success? I was diagnosed with posterior scleritis 9 years ago, been on prednisone at various doses ever since. Tried methotrexate, cellcept, and steroid injections in my eyeball. They are all bandaids, not actually cureing anything. But recently I decided to go the...

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  • Does anyone else have sharp transient eye pain?

    I see we all suffer from the very debilitating pain associated with scleritis. I don't think the medical community is aware how severe the pain is; I always feel dismissed when I mention it. I want to shout "I can withstand a lot of pain but to endure this pain is unreasonable."...

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  • Nobody can help, even the Doctor or hospital

    I have been taking prednisolone for 3 years for Posterior Sclritis. I started on 40mg ans started to reduce but had a severe withdrawal last year and ended up seeing a Psychiatrist because I was in a terrible state. I was taking Lorozapam but now on Sertraline 150mg a day. My scleritis has flared up...

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  • Episceritis

    Had this 9 months! I have had it... the medications can cause awful side effects . Trying to do this naturally. Anybody stopped the ongoing flares?

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  • Scleritis and symptoms

    I've just been diagnosed with scleritis,I have had a kidney transplant,anyway,I've been looking at all the symptoms you get,and,I only get the red eye and pain,I don't get sensitivity to light,or tearing of the eye,2 paracetamol take away the pain for about 3 hours,my concern is the constant...

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  • is episcleritis not curable????

    I have read a load of other peoples experiences and it has made me very depressed. Is there no cure for episcleritis? Does no one ever get better? I have suffered with it since october last year and every time I get a new lot of drops I think \"YES!! this time!!!\" but all the letters...

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  • Scleritis and Episcleritis

    I have posterior scleritis which is in the back of my eyes. I have been on prednisone methotrexate and now humira. So far no improvement. Effects from the inflammation appear to be out of breath, major fatigue, internal weakness and shaking inside. Does anyone else have those symptoms

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  • Things I have tried--hoping for success!

    This forum is great! The ability to express your pain and for it to be understood and acknowledged helps me beyond measure. In my experience, this disease, is not only painfully debilitating, it is emotionally exhausting. The advice and experiences within bring hope where hope is often hard to find!...

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  • Scleritis for 7 years

    I am so glad to have found this forum. I hope my experiences may help someone, and I might learn from you all. In August 2002 I developed episcleritis in my left eye for no apparent reason. After 4 months of increasing pain one of the 7 different doctors I saw diagnosed scleritis, although this was never...

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  • How normal is 'normal'?

    I started with eye pain back in November 2014 and wasn't properly diagnosed until end of September 2015 when I was put onto steroid & dilating eye drops and morphine for the trigeminal pain, eventually onto 50mg Prednisalone reducing. At 35mg I was stable but couldn't get below that, so was...

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  • Scleritis

    Hi, I'm 23 years old female. I was diagnosed with scleritis in 2005, i woke up one morning with an unbareable pain at the back of my right eye, and it was all red. Any way i have been under the hospital for 4 years always back and fourth. I have various types of treatments (Steroids oral and aziathropine...

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  • Pain free for 4 years

    In Jan 2011 I suffered a Rheumatoid autoimmune reaction which resulted in Scleritis - I have never know pain like it.  I was treated at the Brighton Eye Hospital and even went for a consult with Carlos Pavesio at Moorfields.  I had been treated with high dose steroids, cyclophosphamide, anti...

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  • episcleritis and RA

    I have been seeing my rheumatologist since May. After my second childbirth I developed really bad fatigue, swelling and pain in many of my joints. I have been diagnosed with RA. He put me on plaquenill and naproxen for the inflammation. I have now in the last month developed episcleritis that goes from...

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  • SNRA and episcleritis at 22!

    my rheumatologist has diagnosed me with seronegative rheumatoid arthritis because I don't test but he says the clinical picture is obvious. I have recently developed episcleritis. which was in my right eye mildly following an injury. Today I have woken up with a red, tender eye that is now painful....

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  • new diagnosis

    hi i've just been diagnosed with this and am wondering how often I can expect to have a really painful episode? also I have one eye affected - is it likely to start to affect the other eye? thanks

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  • Please read this if you have Episclerities

    Ok, so I'm 43, and I get episcleritis from time to time, thing is I think I've found a way to cure it, it's just episcleritis in it's simple form, not nodular and I've never had sclerities or anything. What I've found is that drinking green tea helps. Ok, it tastes like you're...

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  • Scleritis help

    I'm a healthy female. Around a year ago the whites of my eyes turned completely red and i had horrendous headaches. I suffered facial pain around my brow bone and cheekbones. I went to A&E where i was referred by emergency appointment to see an opthamologist. This appointment wasn't until...

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  • new to this site but long time sufferer

    I am very new here but my eyes have been causing me problems for a very long time. I'm not sure if I am slow on the uptake or just too trusting because I have never questioned what treatment the ophthalmoloogist recommended. I originally went to him because of dry eye due to Sjogrens Syndrome. ...

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  • scleritis

    My 14yr old son has been treated in Manchester Royal Eye hospital for several years after having been diagnosed with Retinoschisis. Unfortunately, he detached a retina and had to have it reattached using silicon oil as the gas air bubble method was unsuccessful. Sadly, the silicon oil could not all be...

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  • This really hits home! thought i was a minority!

    started august 2013. got hit in the eye with a dart gun and eye flared up from trauma. ophthalmologist said traumatic iritis. prednisone drops. kept recurring when i started to taper down. saw an ophthalmology specialist who gave me prednisone injections. no flare for 6 mos. but med. wore off and flared...

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  • Not sure what help I need

    This is the 2nd time I've been diagnosed with Posterior scleritis. The first time I was put on 80mg of steroids. It helped with the pain straight away. As it was coming up to my wedding I took myself off the steroids and stopped going to my hospital appointments. Because of the weight gain. 2 years...

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  • I've had Episcleritis 4 weeks back, now returns.

    Hi all, as above I had Episcleritis 4 weeks ago, but stupidly stopped treatment (eye drops) after a week. It came back 2 weeks later and I did another week of treatment before they ran out. 2 week on, and now it's coming back again. This time Ibe noticed than when I look in the mirror and turn my...

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  • What helps with the pain?

    I have scleritis in one eye, left eye has settled down at the moment. On the 8th week of treatment with steroid drops now down to one a day but I am at my wits end trying to cope with the pain. I am taking 4 paracetamol at once & they are hardly touching it. Opthamolagist prescribed anti-inflamatory...

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  • Chronic bilateral scleritis

    Hi I am being treated for chronic scleritis in both eyes. I was hospitalized for a week over Christmas and was put on a high dose of prednisone. I was then on methotrexate which didn't help much and today I was prescribed Azathioprine, I hope I get some relief with this as I have been in unbearable...

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  • I have suffered from episcleritis for the past 15 years....

    I have suffered from episcleritis for the past 15 years. I used to visit the opthamology department once a month for tests. I have been given so many drops but nothing seems to cure it. Maxitrol drops which are a steroid/antibiotic seem to be the best help, even though the condition appears back within...

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  • Scleritis

    about 6 years ago I was diagnosed with scleritis.  I was seeing a cornea specialist.  She immediately told me I had an auto immune disease.  I was put on steroids and methatextrate. We were moving out of state at the time.  When I got to new home I went to see a new opthamologist...

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  • Good news for me and hope it helps you too.

    I wrote in response to another sufferer in Jan of this year. Then i was feeling very negative and down. Just a quick rundown of my suffering with episcleritis. Had it for 33 years, started when i was about 15 only 2 or 3 times a year for a while, then long periods with it. Up until Jan of this year i...

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  • Red Eye - Episcleritis

    I can't believe that I have at last found people that have this awful condition. I've always been healthy thanks heavens, but started to have this condition in one eye about 5 years ago. Didn't last long but has now got to the point where i have it 98% all of the time and now in both eyes....

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  • The saga continues.....

    I've just started another new treatment.....the Humira Injections finally were not enough, I kept getting episodes either just before the injection or just after. This treatment is called infliximab, has anyone else been on this treatment - I would be interested to know how other people have reacted...

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  • cyu cyu

    Posterior Scleritis

    I am a 17 year old female still in highschool. I've been feeling really alone the past few months since no one seems to understand my ordeal with scleritis. Around 5 months ago out of nowhere, I started having immense headaches which at first I mistakened as just migraines or cluster headaches. I'm...

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