epi - has anyone tried taperin g off steriod drops very slowly and reducing actual dose?

Posted , 3 users are following.

Hi was wondering if anyone has tried this? someone i know did this for another eye issue. she was told the eye was " steriod dependant"

I am trying to get hospital to agree to this method without a result as need diluted prescription.

i do restrict screen time but i thinknowadays quite hard to do.thanks

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4 Replies

  • Posted

    In the past, one of my Consultants has suggested taking the steroid on alternate days which apparently achieves the same end. Or even, try missing a dose once a week to begin with and do that for a month, then miss a second dose, until you end up taking it on alternate days.

    Have you tried talking to your GP? you might get a more sympathetic ear.

    Normally, doctors want to get you off steroids!

    Are you in the UK?

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  • Posted

    hi i am in the uk, i did go down to 0.5 ml drops every day ..but flared up again ..so now on one drop every day .. so could try every other day..are you steroids free ?

    i have had epi for nearly two years now ...but think getting cataracts...

    hoping to get second opinion next month ..thanks

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  • Posted

    I have been dealing with scleritis for three years--anteriorly, posteriorly, and most recentely interiorly. I have Specialists in my home town and at Duke Eye Center: 10 in total now. I am taking the most at-risk medications plus chemo therapies which include high dosages of cytoxin and retuxan. Of course I have been on steroids and they can be your best friend or your worst enemy. I have come to learn that if I have to have them for a flare or to take chemo I will try to take the least dose possible. Steroid use adds fat cells which are hard to get rid of, are bad on your bones, and extended use will lead to diabetes.

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    • Posted

      Oops I did not realize these were drops. I am taking drops now and the Dr. said they were a very small amount and shouldn't have the same effects.


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