Posted , 4 users are following.
did it for you? just scared of going blind... first flare up was just in my right eye, now its in both, a month after the first ever flare up ended. the pain is extremely minimal but i just dont want it to get any worse or develop into scleritis. its scaring the s**t out of me. should I be worried about it developing into scleritis?
0 likes, 2 replies
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joanne633 tonychopper
Posted
Mine did !! I started out with episcleritis , then mine turned into scleritis. I started out with one flare and did not have another till a year later, that is when i was diagnosed with scleritis, I have not lost my eye sight, in fact my eyesight hasn't changed much and I am 64 years old. The pain with scleritis is severe, but i have managed to keep the pain under control with advil every 6 hours. I have had scleritis 16 years, If you are on Facebook, there is a private group called "episcleritis is a total b***h". I would join that if I were you, they do not give medical advice, but the members talk about how they are dealing, and what doesn't work for them. I belong to the group too. I hope yours does NOT develop into scleritis. But should it, please join the facebook page "Scleritis", again they do not give medical advice but also say how they are coping and what meds are working, and unfortunately not working. I will keep you in my prayers. To put your mind at ease, I've never ran across anyone losing their sight, I can understand your fear, Join that group I was telling you about...Good Luck!!
CurlyKarey tonychopper
Posted
So sorry you have had to join this little club of ours. My case has always only been Scleritis in one eye. It was brutal for the first year or so, then I found a great rheumologist and a combination of drugs that, for the most part keep it under control. I take 7 mg of prednisone, methotrexate and Humira. Unfortunately every time I try to ween off of the prednisone I go into a flare. So, much to my dismay, I take them faithfully. I too have never heard of anyone losing an eye. Modern medicine is very helpful and they are constantly working on new meds to keep us going incase our current meds stop working. Usually there is an underlying issue that hasn’t presented itself. Mine is Crohns. If they find your underlying issue it may help them find the best “cocktail” to keep you in remission. Best wishes to you.