Recurrent Episcleritis and hope at last!

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Guest
M

I am 41, female and have been healthy all of my life until i had a bout of shingles 4 years ago. I do not know if it is related and my GP will not commit to say it is but after Shingles I kept getting episcleritis.I tried Pred Forte which worked well at first but as my bouts of episcleritis increased i was told to stop using it as the pressures in my eyes increased. I then used Acular but it is not nearly as effective. I got steadily more fed up with looking like something out of a horror film 2 weeks out of each month so in despair went to see a nutritionist. She advised me that the episcleritis was a symptom of my immune system being damaged and put me on a course of Vitamin B, Omega 3 fish oil, a general multi vitamin and a pro biotic plus a daily dose of an anti oxidant supplement with vitamins A,C and E. Unless you are pregnant or wanting to be, I think this has made a difference as apaprt from one day of a vague redness (normally it wold last 10) I have not had a recurrence. It seems to be working so I wanted to share this with you. erhaps give it a go. Good luck.

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  • redeye
    1

    Posted

    Wow, thanks Sarah, that's great news, how long has it been since your last bout of inflammation?

    I'm in the same episcleritis boat (also tried Acular to no avail) so I'll give it a go myself... Could you list all the stuff you're taking in detail / dosages, etc.

    And can you get all this stuff from a pharmacy or does it need to be prepared specially?

    I have been trying to alter my diet, cutting certain items out, but so far nothing has worked...

    thanks in advance..

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    • Posted

      I am very interested in all the above, also. 

      After 2 rounds of Prednesone and every time it ends I get this condition back and now my stomach is a mess because of the medication I have been taking for three months.  I need help, please!

       

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  • Posted

    I'm female, 43, and having my first experience of episcleritis. Doctors won't give me anything to treat it. I've had it in the left eye for 5 weeks now and in the right for 2 weeks. My left eye has a really intense red area and is now inflamed all over. I'm not thrilled about the prospect of it recurring and am getting fed up with the questions and odd looks, let alone the discomfort.

    I'm wondering if my body is telling me I need to get healthier and boost my immune system, so I'm very interested to read about your experiences and see what's helped. I'll also let you know if I have any success with alternative treatments.

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  • Guest
    M

    Posted

    Hi, I'm gutted to read that you've all had it so long, I'm 25 and have had it in my left eye since October last year. The doctors have tried to treat it quite agressively as I have already lost my right eye due to glaucoma as a child.

    I have been treated with steroid drops for 3 months but everytime I stop using them the redness and pain immediately returns. It is very frustrating as I can't wear my contacts either whilst on the drops! I think I will try the nutrition advice and I'll let you know how I get on.

    If anyone has anymore advice or tips about what is causing the condition (as none of the doctors have commented on this as yet) I'd be grateful to know.

    Thanks

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  • redeye
    1

    Posted

    I'd be very interested to get a further update from Sarah V, whether she has carried on taking all those vitamins and how she has been getting on.

    It hasn't worked for me so far, but we're all different, and it may well help others..

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  • Guest
    M

    Posted

    hey everyone suffering with episcleritus. ive found a homeopathic preparation called occuloheel always gives me relief and doesnt cause the damage that steroid drops may. it has echinacea and eyebright in it and it is in little capsules that one can carry in her purse. but i agree with sarah that i need to go the natural root. i am going to go on a cleanse and follow a diet for arthritus to see if this helps. unfortunately i was misdiagnosed for three years , the doctor said it was conjuctivitus.... now that i know what it is i will explore whether i have the start of lupas or some connective tissue disease. whatever it is i think sarahs natural doctor is going in the right direction.. shelly
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  • Guest
    M

    Posted

    cheryl please look into this carefully as this website said most damage to the eye is not as a result of the problem but as a result of the treatment given.... so try to look into a natural approach as this wont damage your eye.
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  • ram97330
    1

    Posted

    Could someone post what worked with the detailed doses? I have been struggling with this for almost eight months. The moment I stop Alrex, it comes back. I would really appreciate your help. Thanks!
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  • Posted

    Is this vitamin regimen still working for your epischleritis? I have been on steroid drops for 9 years and had 2 types of glaucoma surgery and am getting desperate for answers. 
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  • Posted

    If you are on BP medication, check whether it could be its side effects. I was on Cozaar (Losartan) for 18 years. It dit not affect me until last year. My doctor wouldn't accept it is its side effect. Finally, I changed to different medication for my BP and my eyes are not as red as before. It is not completely back to normal but I am feeling much better. So, it is worth checking the side effects of other medications you are on.

     I also wash my eyelids with baby shampoo once or twice a day.

    Hope you find the right cause and feel better soon.

     

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  • Posted

    Hello,

    Recently diagnosed with Episcleritis after a long struggle to get a diagnosis (doctors said variously pink eye, optical herpes, food allergies, washing powder allergies, quite confusing in general... ). I share the distress of the rest on the forum (having to go through a busy day in the office with a bloody eye kills the confidence completely, and it happens to me three or four times a month).

    I don't take treatment for it, but keen to look at herbal options now. I have no hard feeling for the linkages, but I have noticed over the past years some linkages:

    - food/intolerances. I often feel I get a very bad bout of epi after certain foods: kiwi, mango, soy, quorn, perhaps dairy. Now I had the allergy prick test which registered nothing, and the blood RAST test which showed very mild reactions (but hardly allergic). But still, I am fairly sure that just a few hours after eating kiwi, I get an inflammation, so perhaps it's affecting me at a level just not really picked up with the standard tests. I'm still playing with eliminating different things.

    - I often think there's a link to bowels - again, no 'evidence' (I should keep a diary) but I often get a bad stomach and epi outbreaks at a similar time. The bad stomach too might be related to intolerance, to be determined...

    - Stress, late night working, flights. Nothing worse for my eye than a tough deadline at work or a long flight.

    - Immune system. Yes, mine is poor (often having colds and sniffles), and after reading the posts above, it seems that I'd do well to try and boost this.

    Anyhow, hope this is useful to some, happy to see if rings a bell with anyone else. I'll pursue the immune boosting and trying to identify troublesome foods.

    David 

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    • Posted

      Hi dsmith46

      Do you have bouts of episcleritis or did you had this condition confirmed by your specialist?

      I have same problem only left eye and sectoral redness that is bothering me all the time I have tried everithing under sun NSID,Steroids various eye drops but nothing keeps this at bay.

      It seams with age is getting worse the only thing that gave me slight releif is Manuka honey drops nothing else.

      Keep me posted if you have any sucess with your treatment

      STay well

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    • Posted

      Chronic Episcleritis for years. Through much trial and error, and very much pain, I have found my solution. Turmeric and Fish Oil. Try it. All natural. To maintain my eyes I take 2 Turmeric and 1 fish oil pill a day. But when I feel a flare up coming on I do that same dosage 2-3x a day.
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    • Posted

      How many mg.of Turmeric and Fish Oil do you take.  I don't want to take and more medications.  My stomach is a mess. I would like to go the natural route.

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