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Hi, my name is Lucy. I'm 31 and I got diagnosed with posterior scleritis on the 1st of March 2013, I was 26. My life has changed a lot since then. I struggle to cope with the pain, I've not managed to go 3 months without a bad flare up. I have taken prednisolone steroid for prolonged amounts of time and I hate them. They make my anxiety and depression worse and my mood swings hard to cope with. My joints swell, my face swells. It makes very self conscious. I am now on methotrexate injections but still have flare ups. I have 2 young children who I raise alone with the help of my mum. I have been signed off sick but received a letter today saying that don't think my illness is severe enough to help me. There is a lot of other things going on at the moment and I've never felt more alone. I've never meet anyone else who suffers with posterior scleritis, I was wondering if anyone had any advice on how to deal with this disease?
Any advice would be much appreciated.. Thank you.
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