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Hi all, I guess I am just here to grouch today.
I saw my rheumatologist on Friday to complain that I have suffered bouts of fatigue, as well as fluctuating pain in the fingers, hands, wrists, and feet. My CRP has been normal for months and I have no noticeable swelling. I have never had crazy amounts of swelling, but have had virtually nothing noticeable since being on DMARDs for a while..
What got to me was that he commented that fatigue is not typical with RA. He stated it as a fact, not modified with anything like “in my experience/opinion”.
I was surprised to hear him say this. My first rheumatologist had not questioned my describing fatigue as a symptom, he’d just said it’s a symptom that doesn’t necessarily respond to DMARD treatment.
I have been stewing over it for 3 days. It is contrary to so many descriptions of symptoms that I’ve read and it has made me question his opinion.
He was doubtful or maybe puzzled about my continuing pain. I don’t claim it is extreme pain, I just want to know if I should accept a baseline of pain, and to just expect to keep taking pain relief indefinitely as well as DMARDs.
He then suggested is is possible I don’t actually have RA, and that one can be seropositive and not have it. More uncertainty... it feels like a step backwards to me.
He didn’t air any speculation about what I might have.
His next step I understand is to reassess what is going on. I have to get ultrasound scans later this week. He also mentioned MRI but didn’t define his plan for that.
I had ultrasound scans in April this year and the rheumatologist and technician were both satisfied that what they saw indicated RA.
Inconsistency is hard for me to handle.
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