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Rheumatoid Arthritis

Also known as Arthritis - Rheumatoid

Can you help? Discussions needing a reply

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  • Newly Diagnosed

    Hello it would be really good to hear some advice and talk to people who understand how it feels. I have recently been diagnosed with RA. I am on hydroxychlorquine but been recommended to be on Methotrexate. I have pain in my feet everyday with the mornings being the worse. I have the occasional flare...

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  • RA and Skin Symptoms

    Hey folks, Wanted to say hello to you all today and just extend my sympathies to you with your condition. I have an appointment tomorrow with a dermatologist for blood work and evaluation but I wanted to ask you about some of your symptoms that led to your diagnosis, in particular if any of you suffered...

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  • Feeling really down ☹️

    I'm sorry to put this on you as we are all suffering with this dreadful disease but I was so happy that after years of waiting and suffering for a diagnosis and a very short time of feeling better with the meds that finally felt right I have been taken off MTX because of liver damage and the Actemra...

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  • RA and carpal tunnel symptoms

    Hiya, I have been on Naproxen and Amitriptyline for 2 years but came off them early this year due to severe side effects. The symptoms of carpal tunnel came on very fast and are really severe now 6 months later, my nerve induction tests have came back normal, is this ‘normal’ because it’s the swelling...

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  • Can a positive CCP & RF be present in disorders other than RA?

    Is it possible to have a positive CCP in conditions other than RA? Obtaining info on this subject online hasnt been easy nor informative. I'm really curious if these two tests can be positive/abnormal in other conditions. I have previously tested positive for CCP and Rheumatoid Factor, I have numerous...

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  • Weight loss supplements

    Have anyone tried weight loss supplement like Garcinia Cambogia Extract? I'm on RA medicines. Want to loose weight. Have tried any of the weight loss supplements? Please share Thanks

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  • Rituximab anxiety

    Hi I am due to have my first infusion of Rituximab and am really anxious because of the risk of fatality that comes with it, has anyone else felt anxious about going on it. Also does anyone have any experience of the infusion and how you feel after it and whether I'll be ok to drive as i am...

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  • Methotrexate and hydroxychloroquine treatment

    Hi, I have been on this treatment since my diagnosis 2 years ago and I am now on the highest dose of methotrexate  This treatment makes me feel terrible and doesn't take the joint pain away but on doctors orders I have kept taking it as my bloods must show that it is doing something. I...

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  • Tried all medications?

    I'm 23 and have suffered with RA in one knee for over 12 years. I've been on Methotrexate, Sulphasalazine, Enbrel, Humira and Cimzia. All have controlled the swelling in my knee up until Cimzia. As I have tried and tested so many medications, my rheumatologist has implied that it's unlikely...

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  • Neck and head pain

    Hi it's been a while since I've been here, glad to be back on though, I'm having a lot of Neck and head pain has anyone else experienced this

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  • Is there anybody who have burning feeling in all jointscat night

    I was told by the doctor that I have seronegative RA. I do not have many typical symptoms yet but what I have is horrible burning sensation in all my joints at night. It wakes me up around 1 am and does not let me sleep till 4-5 am. I feel terrible next day. It happened every night and it is very difficult...

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  • Enbril omg

    Went on enbril last tuesday.guess it's not for me as side effects included mouth wouldn't open and worst sore throat couldnt breath ended up in emergency.brouchere mentioned the throat in passing guess l was the extreme.had such hope but not willing to try again.maybe humera .has anyone else...

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  • Undifferentiated Arthritis

    I have changed the hospital as things were getting worse. Pain started with my feet and then knees. In the new hospital Dr had taken many test to see what's the problem, in the end the conclusion was "undifferentiated Arthritis" taken knee x-ray. and found it to be osteoarthritis. Still...

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  • Six Months In

    I was diagnosed with RA in March 2017. I was started on 10mg Prenisone and Methotrexate injections. For the first three months, I felt almost normal. I am now up to 1.0 for the methotrexate and 5 mg of prednisone every other day. When the prednisone was decreased to 5mg daily, finger pain returned. Now...

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  • Do these symptoms sound familiar to anyone?

    I am being referred to a rheumatologist and want to check if my symptoms sound familiar to anyone? The major problem I have struggled with is crazy fatigue for about 5 years now, originally I was told I was low in iron and that was the only explanation given even after I had been on iron pills about...

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  • New biological drug

    Anyone out there been on tocilimab or abatacept, after being on embrol for about 8 years , ( wonder drug for me ) my consultant decided it would work better with methotrexate, something I had been on many times but found I could not tolerate very well, sickness , fatigue and generally feeling YUK. So...

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  • Methotrexate vs sulfasalazine??

    Hi, new to this. I was officially diagnosed with RA today and they doctor recommended these two for treatment (methotrexate and sulfasalazine). She suggested methotrexate as it seems to be the best. But I am terrified, and I mean TERRIFIED, of the side effects of both. I have a huge phobia of throwing...

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  • Remicade V Inflectra

    Hi , does anyone have experience of switching from infliximab Remicade to Inflectra ? I have been on remicade for a number of years , it gtave me back my life over night , my hospital want ( really pushing me ) to change as it will save the NHS lots of money . I haven't heard any positive stories...

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  • RA and Throat Closing/Choking

    I'm wondering if anyone has had their throat close up when eating certain minds of food? My throat has closed up creating much mucous and closing of my throat, and not being able to breath. There is little ability for my throat muscles to eject the food, as it closes shut, and not being able to breath,...

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  • Benepali

    Hi all, just giving a thumbs up to Benepali it's working well for me, last blood test about a week ago showed CRP inflammation down to 0.7 and up to now with no side effects, anyone getting good results with Benepali?.

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  • Pre-diagnosis; advice on questions to ask etc

    Dear all, first of all I'm brand new to this forum and hope I am in the right place (apologies if I'm not). Let me start by saying I'm a 27 yo female based in London.  I was referred by my GP to a rheumatologist 2 months ago after experiencing an intense 3 day migraine, fatigue, joint...

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  • NEW BENEPALI PEN

    Is anybody having problems with the new Benpali pen.  I have used four and three of them dont seem to work properly, when I remove pen after said time and second click all the liquid has not gone in and runs down my leg. I have reported this today, and was wondering if anybody else has the same...

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  • 7 months and still no diagnosis

    Hey, Not sure what im wanting from this post but im just feeling so down. Im currently being investigated for seronegative RA. Ive just got back from my local doctors as yesterday my hip gave way and with a crunch afterwards i was then left in agonizing pain. i never usually worry about going to the...

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  • blurred vision with Cimzia or Humira

      I have been on Cimzia a few months and now I am all of a sudden having issues with blurred vision esp in the morning but not all the time.   I did see my specialist this AM and she seemed alarmed.   I am seeing eye doc next week so she wants a report back if any eye conditions noted...

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  • Rheumatoid Arthritis

    Help my doctor is referring me to a rheumatology clinic for rheumatoid arthritis, not entirely sure if I have it need advice please

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  • Rheumatoid Arthritis (help)

    It first started a few years back in my fingers and toes, my hands and feet are always cold, then about 8 weeks ago I was getting a sharp intense pain in just my left knee then it would ache for a while, then it started in both knees,then my toes, fingers, elbows and neck, giving me headaches.I don't...

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  • Night pain

    Hiya all I am 24 year old female with rheumatoid arthritis and I have extreme pain during the night in my hand and wrists. Is there anything I could do to help this? as its keeping me up at night and making me tired during work.  

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  • Palindromic RA tremor

    Hi Everyone, Would appreciate your thoughts on what is happening to me,I have been diagnosed with ACCP positive Palindromic RA 6 months ago. I have had Fibromyalgia for many years. Sadly so far I they have not found any meds I can tolerate for either condition, they were going to try me on Benalari but...

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  • Lung problems from methotrexate

    recently had pneumonia and just had follow up appointment with consultant yesterday. Bronchoscope done while in hospital did not show any bacteria consistent with pneumonia,so consultant has advised that I do not go back on methotrexate which I took alongside etanercept, as he believes that the methotrexate...

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  • First Dose of Humira Today (quick question)

    Hi Fellow RA Warriors, I had my first dose of Humira today.  I read and read and read all the possible dangerous side effects and lesser side effects and am well inofrmed what to watch for... but are there "small" side effects that go away? I tired and have a slight headache. Feels like...

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  • RA blood test?

    Hi guys, im currently being tested for RA after having painful hands for the last 4 months which has now also started in my L ankle.  I'm having a blood test soon and one of the things being tested is the Antinuclear antibodies (think that's right?) I've researched RA a little bit and...

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  • Does anybody suffer with cpdd psuedo gout

    Hi im 30yr old and have been under rhumatology since i was 19. After a sporadic flare up in my knee that happened whilst i was at work. Since this flare i have regular flares whicb can affect my hips, knees, ankles elbows and shoulders. Ive also had 3 flares in my jaw which caused my jaw to dislocate...

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