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Rheumatoid Arthritis

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  • stella2 M
    Pinned

    Free British Science Week event for RA patients on 13 March

    Hi everyone We've been contacted by the British Science Association to ask if we could let patients with RA know about a free event being held in Oxford on 13 March, which they are organising as part of British Science Week.  The event is in collaboration with the Nuffield Department of Orthopaedics,...

    3 replies 0 votes Last reply
  • jaydee456 2

    RA and blood problems

    I have had well maintained RA since 1988.aged 44. About 18 months ago my blood tests showed that I had a vey low neutrophyl  white cell count. I had loads of tests to rule out anything really serious..Eventually I was refered to a haematologist who also said I was anaemic. I had a ferratin infusion to...

    0 replies 0 votes Posted
  • carol36376 3

    May I introduce myself please?

    54 years old, a keen keep fit bod who would run over ten to fifteen miles a week and think nothing of it. Raised money for Charity by running races and loved it. Six weeks ago, I ran a 10k race in under one hour Ten minutes and within days I was hospitalised with weird sudden swelling in my hands, then...

    8 replies 0 votes Last reply
  • david00972 1

    New to this forum.

    I am a 74 year old male and until 4 weeks ago I was proud to say I have never had an illness nor been to a hospital or doctor because of poor health or injury.  Came back from a UK holiday with a nagging sore left shoulder, a few days later my left knee felt strange as if I had fallen, then my wrists...

    2 replies 0 votes Last reply
  • martin31040 3

    Benepali blood tests.

    Hi all, just got some blood test results after a month on Benepali, CRP which is a measure of inflammation is down from 24 to 1.9 so that's good, but I've got see the GP and I've been told to take multivitamins with iron, any way I see what he says about what is going on.

    8 replies 0 votes Last reply
  • Mrspiggy 2

    How long to get a diagnosis?

    Just wondered how long it can take to get a diagnosis? My daughter is seeing a consultant tomorrow, are there any tests we can expect tomorrow. Only asking as I am getting huge pressure from school for a diagnosis. Thanks

    10 replies 0 votes Last reply
  • tony35673 3

    lung biopsy.

    I had a lung biopsy last week, apparently Doctors don't do this procedure, the local butcher does them.   The Butcher gave me some anesthetic, then jabbed my lung - I screamed, he jabbed my lung again - I screamed again, he made another jab and I screamed again, so he said 'hmmm, I'd better give you...

    16 replies 0 votes Last reply
  • Long John Silve 1

    Girlfriend with RA

    Hi guys, my girlfriend, (nearly) 4 years has RA in her knees and hips and I was wondering if anyone has advice or tips on how I can help her?  We are both 20 years old.  Cheers 

    2 replies 0 votes Last reply
  • blisssmile80 1
  • steelctygirl 3

    Weaning from Prednisone

    Hi all I've been on Prednisone for a year now & every time I tried to wean would have a flare up. Well after 5 weeks of weaning slowly I'm completely off. However I feel like I've been hit by a bus. Legs & shoulders ache, rain isn't helping I suppose. I'm also very emotional. I'm pretty sure it's the...

    11 replies 0 votes Last reply
  • catherine64111 2

    Benepali side effects

    Hello fellow sufferers          I 've just started Benepali injections. After 2 doses I'm feeling 'light headed' as if I'm drunk and also have been getting 'Tension headaches nausea and low a do pain. Is this 'par for the course' ? Has anyone else suffered these symptoms and are they likely to improve...

    3 replies 0 votes Last reply
  • jessica94999 1

    Rituximab anxiety

    Hi I am due to have my first infusion of Rituximab and am really anxious because of the risk of fatality that comes with it, has anyone else felt anxious about going on it. Also does anyone have any experience of the infusion and how you feel after it and whether I'll be ok to drive as i am going on...

    15 replies 1 vote Last reply
  • lorraine74484 2

    A gimps of what normal once was before RA

    A week ago I had some surgery on me knee for a cartilage deteriation and bone marrow edema,, caused by my RA. The surgery went very well. For the past year I have been struggling with the joint pain from my RA and have been on methotrexate, paqunil, Sulfasalizine. Meloxicam and folic acid and I just...

    7 replies 0 votes Last reply
  • tracy92060 2

    Recent diagnosed with RA

    After the past 2 years of having pain that moved from joint to joint I decided I was either crazy or something was seriously wrong with me, so I went to my GP and he suggested we did blood work but he thought it was just in my head and that I need to take a break from working so hard and relax more....

    12 replies 0 votes Last reply
  • sonya78375 3

    Sunburn and Methotrexate

    Hi, I have been diagnosed with Rheumatoid Arthritis and have just started on methotrexate.  The packet says protect yourself from sunshine - just wondering if anyone has experience of effects of sun when you are on methotrexate?  I understand that if it works then I could be on it for years and years,...

    38 replies 1 vote Last reply
  • dona57561 1

    Feet Problems

    Hello, I have had joint problems with RA and OA. In the past fews year my feet have been a real problem. I have just has CT scan and results and have huge problem in joints in right foot with involves torso-metatarsal joints 2,3 and 4 and 1st toe joint. Im to have an injection study then a plan will...

    2 replies 0 votes Last reply
  • Pn247 2

    Newly diagnosia, need help

    I took a ra bloodwork and the result was rf=31, esr=60. My doctor refered me to a specialist. She examined all my joints, since I had no pain or any swells, she said everthing is normal, but still took some blood for test. Last week, she called me back and said the results are positive. She offered an...

    6 replies 0 votes Last reply
  • ashlee361512 1

    Inflectra Side Effects, What's normal what's not?

    Hello, I had my first treatment of Inflectra on Saturday. By Monday I had a horrible sore throat that by Thursday hasn't gone away. Drs are saying it's just side effects but I can hardly bear it. Did anyone else experience this? What are some side effects you felt after Infusion?

    1 reply 0 votes Last reply
  • never-ready 2

    humira side effect???

    Can anyone advise me. I have finally started the biolodgical humira after trial and error of all the usual dmards. I had my first injection 2 weeks ago but for the last 7 days my gums, teeth and one side of my face is giving me terrible pain. My teeth even feel loose. After reading the side effects (...

    0 replies 0 votes Posted
  • trixietyme 2

    The Methotrexate and Diclofenac was a Horrible Mistake

    I posted previously about my husband's experience with a general practitioner that saw his high RF factor, and simply prescribed Methotrexate and Diclofenac without any follow up at all. He suffered 7 weeks on those drugs, and finally was able to get into a Rheumatologist this week!  The Rheumy was actually...

    5 replies 0 votes Last reply
  • lorraine74484 2

    Has anyone experienced Bone Marrow Edema with RA

    Over the past few months I have been having a lot of pain in my knee. My x-rays looked fine but the MRI results show bone marrow edema. My orthopaedic doctor gave the results of the MRI, but wasn't willing to talk optiosn over the phone. He said he would like to go over the MRI together and talk then...

    2 replies 0 votes Last reply
  • martin31040 3

    Itchy Rash, Enbrel, Benepali.

    Hi all, I seem to be getting an itchy rash on both arms, anyone using Enbrel or Benepali "Etanercept" and getting a itchy rash, Urticaria type thing, I'll go and see GP and see what he thinks.

    8 replies 1 vote Last reply
  • morffede27 1
  • tyler68928 1
  • kirsty32448 3
  • deborah78257 2
  • mitsaki 1

    Is it RA or FB?

    Hello everyone, I have pain in my fingers especially in the joints about a month. My hands are not swollen neither red. my doctor said maybe it is stress cause i have anxiety disorder. I m waiting the results of blood. does anyone had something like this,is it FB cause i have pain and in other parts...

    0 replies 1 vote Posted
  • linda23834 3

    Eye problems

    Hi, I've got R.A. And on Benepali injections. I went to the Optician this week for an eye check. I was immediately referred to the Hospital for the eye clinic. After a scan, I was told I had Macular Degeneration. It's early stages and at the moment dosnt need treatment. I have to monitor my eyes and...

    6 replies 0 votes Last reply
  • harley91236 2

    Need advice please

    Diagnosed 2_3 mo. Ago w/ fibro and Raynaud's, and UCTD. First labs showed positive Ana/ ifa. Titre of 1:320 homogeneous. No other tests showed lupus but was told I MAY or may not develop it in future. Offered 400 mg plaqunel daily. Just got recent labs and titre lowered to 1:80 homogeneous with anti...

    1 reply 1 vote Last reply
  • kaz51163 2

    Dies RF and anti ccp positive definitely confirm RA diagnosis?

    Hi all! I'm now 6 weeks in with Methotrexate (up to 15mg now ) . I was told just prior to starting that I definately had RA. However, yesterday at my consultant appointment ( actually not set eyes on him yet, once saw a junior doc then other two times its been the nurse practitioner ) the nurse referred...

    11 replies 0 votes Last reply
  • carol303055 3

    Struggling with forum

    Hi, I didn't know where to write this but does anyone else have difficulty with their posts? I've had to abandon several of my 'replies' as it's just froze then I lose it. Very frustrating. Can happen several times. Doesn't seem to happen on anything else. I'm a bit of an IT dinosaur I'm afraid but comments...

    4 replies 0 votes Last reply
  • tabbycat81 1

    Not sure if it's RA?

    I am on day nine of red swollen hands over the knuckles on both the left and the right. They are literally ON FIRE, its much worse when they're warm or cold. They frequently tingle and go compltely numb. I have seen two doctors now and both are stumped. I am 36 F and my younger sister has RA. But I...

    2 replies 0 votes Last reply
  • kirsty32448 3

    RA and tiredness

    Hi all I am 23 years old and my RA is really bad at the moment. My fingers are cinstantly painfull and i am unsure of anything that will help? I am constantly tired as this keeps me up at night

    11 replies 0 votes Last reply
  • ben52877 2

    Not getting anywhere.

    hello im a 26 year old male, i was diagnosed with RA which is my specialist thinks is psoriatic arthirtis which i gather the treatment is very similar, i began on sulfasazaline on its own, then added methotrexate injection after this made no differance i changed to metoject with lefluolimde been on this...

    4 replies 0 votes Last reply
  • deborah78257 2

    RA Dr.and cannabis

    If you're pain is so bad, and you try a puff of cannabis, and it showed up in your blood test, can your RA dr. get rid of you? Sorry, sounds like a dumb question but I'm 68 and the pain gets so bad at times I'm ready to try anything. Prednisone didn't work, and waiting for methotrexate to kick in. Thank...

    6 replies 0 votes Last reply
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