SULFASALAZINE
Posted , 16 users are following.
Hi,
I wonder if anyone is taking this drug for RA and how they find it? I was diagnosed 8 years ago in Spain and treated with Methotrexate, gradually successfully reducing the dose. On returning to the UK one year ago the NHS told me they did not regard the low dose I was taking as therapeutic and it was stopped. I am now at the point where I have to start medication again and I am reluctant to take methotrexate as it would be a much higher dose.
Sulfasalazine is another alternative and appears to have less side effects (especially hair loss).
Any feedback would be so helpful. Thanks.
0 likes, 15 replies
deena13493 maggie15623
Posted
Cedarhouse maggie15623
Posted
Like you l was on methotrexate and for various reasons was moved on to Sulfasalazine. l built up the dose slowly but l could not tolerate it. l stopped it straight away because it made me so sick. l hope you respond differently and that it works for you.
chester58 maggie15623
Posted
in have been on it now for about 5 years and not had any problems with it.
And my pain has reduced no end .
but as we say "one mans meat is another mans poison"
frances85589 maggie15623
Posted
I have been on it for over 6 years and no side effects.it has helped me but have had hydroxychlorine sulphate added and biologic Abatacept now as through time I wasn't getting enough relief
john66751 maggie15623
Posted
i was on it for about 10 years worked well as most had to stop due to stomache issues but had a goid run .. on hydtroclotaquine now which seems good
sarah75478 maggie15623
Posted
Hi I've been taking sulfasalzine now for a few months.. I'm on 4 a day.. I had a really upset stomach at first but it's settled down now.. it's alot better than methotrexate
yvonne99533 maggie15623
Posted
Hi I’m the same really this drug make me feel very Nausious within a short space of time I am now on benopali +10 mg of methotrexate and together they seem to be quite effective the methotrexate does cause me hair loss and skin breakout but I have it by injection which helps
regards
marsha46252 maggie15623
Posted
I am on Methotrexate but I don't take as many as they first put me on I cut it down because I could not function I was so tired on it. But I'm also on sulfasalazine and hydroxychloroquine
kimberly25750 maggie15623
Posted
I have been on methotrexate(8 tablets) for 17 years along with Enbrel with no problems
blair97497 maggie15623
Posted
Hi Maggie. About 3 months into DMARD treatment, I went through perhaps 2-3 months taking slowly increasing doses of sulfasalazine. I didn’t take well to it. It made me nauseous and finally I developed a pinprick rash on my lower legs, ankles and feet. I was then instructed to drop it.
At that time I was already on hydroxychloroquine and methotrexate. The oral methotrexate was also hard on my stomach. Some months later on I switched from oral to subcutaneous injections, which I'm still on. I do pretty well with little pain or inflammation most of the time. My most persistent problem is now fatigue.
carole78111 maggie15623
Posted
Had ra 30 years was doing well on EMBREL with small dose of methotrexate which I have taken over the years. Was then admitted to hospital with suspected pneumonia, which turned out to be pneumonitis caused by methotrexate. offany meds for6 months only steroids to help. Tried new med olumiant, but event hat does not seem to be working. Am at my wits end
deena13493 maggie15623
Posted
has anyone ever taken Arava, if so what was your experience? Also, do the drugs you take cause extreme fatigue and depression? Thank you.
lesley22229 maggie15623
Posted
Hi Maggie, I've been on Sulfasalazine for almost 3 weeks now. It does make me tired and a bit low. I can manage that but recently I've been getting a lot of mucous in the back of my throat on and off making me feel like I've got to clear my throat. Also, wheezing quite a lot when laying down. This is really messing with my sleep so not helping the tiredness or mood. It would help if I thought others experienced this too in the hope of normalising it and believing it may pass in time?
caroline82959 maggie15623
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Hi Maggie, I started taking Sulfasalazine in June 21 and was taken off it in August. It actually worked brilliantly for my pain, no more sleepless nights from pain and walking without limping. However, the side effects hit me with a bang in August. Extreme tiredness, skin discolouration, not yellow but dark like a bruise colour, dizziness and headaches. I also started losing a lot of hair and still am even thought I have stopped taking them. Hate having to wash my hair because if it. Waiting to see my consultant regarding a substitute.
maggie15623 caroline82959
Posted
Hello Caroline, Sorry to hear Sulfasalazine is not agreeing with you. Its always a disappointment when this happens especially if you start to feel some benefits. I must admit that I was unaware of hair loss being a side effect but sympathise greatly as I suffered this with methotrexate. Sometimes the drugs take a long time to actually leave your body. Was your dose gradually being increased over a period of time, which is normal, before the side effects occurred? I hope you dont have to wait too long before your appointment.