ProActemera Giant Cell Vasculitis
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Developed Giant Cell in May 2022. headaches, jaw pain, tender temples, night sweats, had severe sensitive scalp and heart best pounding in my ears, feeling ill, veins prominent in sides of forehead. put on Prednisolone, reduced it from 60, 50, 40, 30, 20 then relapse put up to 30 then put on ProActemera. Had 6 injections now i honestly do not know if its working. They have reduced prednisolone to 15mg now. I have to reduce 1mg per month. I suffer with osteoarthritis, psoriatic arthritis and have peripheral neuropathy of both feet awfully. have asthersclerosis of arteries and on heart medication as suffer with bad angina. I would love to know if anyone on ProActemera has suffered with numbness if the forehead as i feel like my forehead is numb like there is a draft on it all the time. i inject each week with the drug.
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