"flare?"
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can anyone explain what a flare is? I was diagnosed in October and am currently on 20 mg mtx sub q. I have gotten along fairly well, but for the past couple of weeks my knees have been problems. Right is worse so I had it injected a week ago. It has gotten worse every day and now left one is starting to hurt. Terrible this morning..I have had xrays which show normal degeneration for my age (64). Rheumy appt not till august. My question is can this be a flare? I have no idea what to expect..my sed rate has never been elevated so no help there. Im not even sure what a flare is! And if it is...what in the world can I do about these knees and will they ever get better?? Thanks in advance for any of your experience with this frightening disease.
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Martin1968 Jayne7831
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Martin1968 Jayne7831
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ama38049 Jayne7831
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Jayne7831 ama38049
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Guest Jayne7831
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Jayne7831 Guest
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Paula2212 Jayne7831
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im replying on behalf of my mum (83) who thought it may be of help to share her own experience of things. She was diagnosed last year. On oral MTX and still on prednisolone I'm afriad. We too have the same query about 'flares' as we had thought that maybe, the disease may hopefully stabilise for months or longer but that if unlucky, a 'flare' might occur every now and then, thereafter going away again. So far the pattern has been rather different and seems to be linked with trying to get the prednisolone down to 2.5mg. Mum can literally be not so bad on day, yet the next, complains of quite a lot of pain ( I can see that in her face ) plus hardly any grip, unable to dress self and most recently, just about able to hobble with help. These 'flares' if that's what they are can change in the course of 24 hrs and no two days ever seem to be the same. We have lots of questions about it from our rheumatoid nurse when we go back next week but I sense there is no regular or irregular pattern for anyone. It is rotten but I guess what we try to do is make the most we can of any 'good day' and try to get through the bad ones as best we can! Wishing you all the luck in the world.
paula and Doreen ( mum!)
Jayne7831 Paula2212
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Rowbirdie Jayne7831
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i too am 64 , diagnosed 2 years ago and in the uk.Have you been given a phone contact of rheumy nurse ? I was given that number soon after diagnosis. I can ring with a message and they ll ring back . In the first year I rang quite a bit as more parts of my body were being affected and pain was getting worse. Each time they increased my meds or added a new one or added corticosteroid. So there are more options to bring RA under control than just mxt. I think in the first year after diagnosis a lot can develop and it takes time to get RA under control. If you don't have this service where you live then contact consultant on your appointment letter. They should be tackling RA aggressively in first months after diagnosis ( according to NICE guidelines) so don't suffer in silence. They assume you are doing well with current med unless you let them know things are getting worse.
Jayne7831 Rowbirdie
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tony09890 Jayne7831
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