?GCA, any advice appreciated
Posted , 10 users are following.
Hi, I don't know if anyone on here can offer some advice. I have had various joint and muscle pains, fatique and headache the last few months, the headache at the back of my head and neck getting worse, my ESR has come back at 118. My GP started me on 20mg Prednisolone whilst waiting to see a Rheumatologist but I became quite unwell after 5 days so she stopped it 3 days ago. My headache is getting worse, it's really painful when I lie down against a pillow, spreading round to my temples, bad tinnitus (not relieved by the medication I normally take) pounding pulse in my head , worse at night,and feel generally ill.I suffer from occasional Atrial fibrillation, which has been worse the last few days also.My Drs appointment is not for another 6 weeks, not sure what to do.
2 likes, 7 replies
christine_fay catherine46874
Posted
jean39702 catherine46874
Posted
I hope others with more experience respond.
tina-uk_cwall catherine46874
Posted
MrsO-UK_Surrey catherine46874
Posted
pat38625 catherine46874
Posted
jo42444 catherine46874
Posted
joanne
EileenH catherine46874
Posted
As someone has already asked - did the symptoms improve at all on pred? The dose she gave you is for PMR, the joint and muscle pain at least should have improved. It is nothing like enough for GCA, at least 40mg is the starting dose, often even higher, so the GCA symptoms won't have responed as well.
If you haven't already done so go immediately to A&E and tell them your story.