“Glandular-like illness” or something else?

Posted , 4 users are following.

Hi everyone

Firstly, let me say I never thought I would post to a site like this but lately during my more anxious-moments its been such a relief to come on here and find that Im not alone and there are people facing similar weird symptoms

My story started in late june 2019. i had a pretty busy life - 28yo, partner, gym and sports 5 days a week. Im from Melb, Au and even though i have a pretty decent job for someone my age, unless you bought a house 20years ago you are pretty much exiled to the outskirts of the city because of the cost. this makes me commute about 3.5 hours a day.

I remember chairing a meeting at work in late June. I was talking but i had this feeling of intense nausea. It was like a constant pressure in the upper abdomen. Belching seemed to alleviate the nausea a bit but it was pretty constant. i thought i may have aggravated the stomach lining from anti inflams?

Soon after i developed a shortness of breath. I presented to the GP who brushed it off and said it was probably just a respiratory infection. My breathing was laboured but i didnt have any phlegm.

During the start of July i was at a theatre with my partner and i noticed both my feet were burning. I got worried and thought it was sciatica and booked an app with my chiro. My feet would turn bright red ans radiate heat all over, but it seemed to be a temperature control issue. Particular shoes would do it.

I went back to the GP and asked for some tests and I came back with influenza and a relatively normal cbc.

I missed about a week with the flu and returned to work. I seemed to be on the improve.

After about two weeks i fell in a complete hole.

I missed about 3 weeks from work. My burning feet were keeping me up at night and i was sleeping on a camp mat on the floor. Pins and needles were rampant in my extremities. It was like not enough blood was getting to where it needed to go. I would wake up and find whole limbs were numb from laying on them, sweaty, phlegmy, a slight tremor.

My body had begun to tick in time with my heart beat. It felt like my blood was too thick for my veins and i was constantly pulsating. Sleeping marks would take way too long to disappear

Going back to the GP i was tested extensively! From GF to Ross river virus and the only virus i was detected with was influenza in july.

All my other blood tests, xray, US, urine, fecal, ecg came back saying i was perfextly normal

Fast forward about 3 months now and many of these symptoms have died down. i do feel like i have a slight tremor, great fatigue, warm feet and sweaty under arms and hot flushes from time to time.

My GP just said it was a nasty viral infection similar to GF and said maybe shingles and he is under the impression that it will sort itself out with time

While my condition has improved I still got a referral to see a rheumatologist. I wasnt expecting a magic pill but more just reassurance that i was headed im the right direction. After waiting 2 months i met the doctor. He gave me a short 5 min exam for flexibility, pinched me a few times and then diagnosed me with fibromyalgia and prescribed some anti depressants.

I thought this was a bit of a stretch since i didnt exhibit any of the symptoms or pain and thought it was a bit strange to be prescribed anti depressants so soon after meeting someone

Anyway, I am interested to know other peoples thoughts - do you think my symptoms align with something like EBV or could it actually be fibro and this guy is a savant??

take care

0 likes, 2 replies

2 Replies

  • Posted

    hi Nathan:

    Your symptoms sound similar to mine....I thought I was dying at times. The pulsing/buzzing/electrical/numbness/tingling/burning is awful. And the anxiety that accompanies it is also awful. I'm 5 months in. I still have all these symptoms but they are lessening. EBV is testable. If a panel was not drawn it might be helpful to ask your doctor to test specifically for EBV. This is different than testing for mono. my mono test was negative but I was very high on all for markers for EBV which means the virus reactivated (reactivated EBV) after being dormant for years.

    I also have had rawness in my nose, throat, roof of mouth, and sores/swelling in my mouth. When the virus is active it can reactivate other viruses in the herpes family. That might be why your doctor though shingles. I had that same wondering over the summer.

    I wish you well and hope you get an answer for why you have felt so awful. It is a terrible illness!

  • Posted

    Wow that is like identical to a bunch of my symptoms add trouble swallowing for a while now its bad headaches all doctors want to tell me is its anxiety and depression because they cant do their job and figure it out. Its been 11 months for me with not very much help from the medical field and no answer but give it time.

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