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Having a terrible flair up.. Rx not helping. Any ideas, suggestions. Does cbd oil work?
0 likes, 15 replies
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ian30322 toby82533
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louloub toby82533
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Hi Toby,
Sorry to hear you are having a difficult flare up. What prescription meds have you tried so far?
I haven't seen any clinical studies on CBD oil but as far as alternative therapies go I've looked into a few that have some research and clinical studies behind them and they include Curcumin, Fish oil, N Acetyl Glucosamine, Phosphatidylcholine and Boswellia. If you search on the Pubmed website you will be able to find research articles on each of these.
Some people find taking a high dose probiotic such as VSL3 beneficial although I would be cautious to take during a bad flare up as when I tried it I had a worsening of symptoms but might be worth a try eventually.
The other thing that you could ask your Dr about is Low Dose Naltrexone (LDN). It is a prescription medication that I have been looking into and there is a lot of research into it's effectiveness for auto immune diseases. There are a few very successful trials in IBD and also some retrospective studies where people who have used it have attained remission. The only thing is as it is not currently licensed for use on the NHS in IBD some Dr's are reluctant to prescribe it although you can pay privately for a prescription, it's not expensive.
The LDN Research Trust website is helpful.
Lou
toby82533 louloub
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Thanks for your note.. I currently take Balsalizide 750mg. 9 pills per day. Has not helped this time.. was down to 4 pills per day for about 1 yr. then had a flair up and it’s not toned down for 6 months now. Am scheduled for a telephone consultation next week with my dr. Also met with a CBD specialist and they are reviewing my current meds to see if they will be compatible. At this stage I’m will to try anything. Balsalizide cost $370. Every 3 months!! 😒 and not working. Thank you for your support.
Toby
louloub toby82533
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Ah yes I've taken balsalazide but was allergic to it along with all the other types of Mesalazine which has kind of forced me into seeking out alternatives. Definitely worth asking your Dr about LDN when you have your consultation, it's also compatible with CBD if you do decide to try it in fact some people on LDN have said it works well with CBD oil. Be interesting to see what the CBD Specialist says, it's certainly worth a try. I know how trying it can be to be stuck in a relentless flare up! I hope you get into remission soon!
Linzalisha toby82533
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Hi Toby
So sorry to hear about your terrible flare up.
I’m sorry Iv not tried or even heard of cbd oil.
Are you prescribed steroids at the moment? It may be best to go back to GP or see your consultant.
I hope it soon clears.
Take good care
Linzalisha. Xx
toby82533 Linzalisha
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Toby
ian30322 toby82533
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Fluffe ian30322
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This is what I found as it seems to be used all over as I've seen it in different countries.. it's probably the Latin......
Rx means "prescription", for example an "Rx-only drug" is one available only on prescription. It is derived loosely from the Latin recipe, to take.
toby82533 Fluffe
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ian30322 Fluffe
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Fluffe toby82533
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Hi Toby... I've not heard of that medication. While I'm waiting the usual bits from biopsies with mild inflammation going on - it's not severe as it once was so I'm getting myself back into remission after a long slog AGAIN! I'm on 100g aza, 40 g omerazapole and have started methotrexate for the enteropathic arthritis along with the just wearing out arthritis - which may also help the Ucolitis. I've also got diver and am always bunged up. (I can actually feel it when it hits that 'spot' where things seem to slow down and where the inflammation currently is.) I can't tolerate Octassa but have been using pentasa which really only is just like putting a bandaid over the problem. I take a high dose calcium tablet with vitamin D added into it as I can't tolerate Calceos.. just thinking about it gives me the dry heaves!!! Then there's the two senna tablets and the two laxidos. I also had a major reaction to sulfasalazine... though when you read posts.. what seems to work with some - doesn't necessarily work with others which is to - pardon the pun- a bummer!
I sometimes will use a nicotine patch (low dose) that seems to help with pain but as far as CBD oil... I've heard some say it's fab for joints and arthritis but not much on how it works with IBD. Funnily enough I was just reading the Crohns & Colitis UK Connect Magazine (Spring 2018) just out and it had a question asked about it as to whether is could help with IBD symptoms. The question was answered by a Dr. Hawthorne from the University Hospital in Cardiff Wales. His answer was "There is evidence of the anti-inflammatory effects of tetrahydrocannabinols (TCH) that are contained in cannabidiol, based on animal models and laboratory studies.
CBD oil is administered without tobacco and it's worth noting that it does not have any of the brain effects of cannabis. It can be used as a complementary therapy if patients are keen to try it, and it appears safe, but certainly does not have a strong evidence base as of yet."
So hopefully that kind of answers your question. Here is it way expensive to try so I just use my patch. Again - I don't think there's a definitive answer on that one either but for me it seems to work for short term pain!
I would contact your doc right away. You may need to try something else. Please please don't leave it ok. For me the Aza helped after a good course of steroids to get it under control - at least until the next flare and I wish I had gone sooner than hoping it would just settle down on its own even with the drugs. I was able to tolerate the steroids quite well and they're short term.. but get in touch with your doc k!
Please take care
Fluffe
Linzalisha toby82533
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Linzalisha x
ian30322 toby82533
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Linda_Mac toby82533
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Toby,
I'm sorry to hear that you're having a bad flair up. It takes forever to get it back under control. I had a flare-up a year ago and I was able to increase the same medication because I take mesalamine. I was on oral as well as the suppositories. I don't know if they still make the enemas, but with this med you can take both. I don't know if that's true of the newer meds, the biologics and such. Another med that helped me was a strong probiotic, VSL#3. My GI doc told me to try it because research shows it helps some people with UC. I haven't ever tried cbd. Many years ago I had regular acupuncture sessions given by a doctor who practiced Chinese medicine and this successfully managed my disease for over a year without medication, so this might help you get it back under control. She gave me an oral med also - not prescription but Chinese medicine.
ian30322 Linda_Mac
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