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Ulcerative Colitis

Also known as Colitis - Ulcerative, Mesalazine for Ulcerative Colitis

Can you help? Discussions needing a reply

  • ruari1 ruari1

    Colitis - side effects fom drugs

    Ive been a colitis sufferer for 6 years now and have been prescribed many different drugs! The worst side effect I have is burning sensation in feet and legs. Started off mostly at night but now during the day as well and almost unbearable! Has anyone else had this side effect and if so, how do you deal...

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  • Alternative treatments

    I’ve had UC for 8 years now and I’m doing great. I drink lots of milk eat lots of brownies. I’m a picky eater that doesn’t like many veggies. I’m on 2 tablets of Lialdia. I haven’t had any problems for a long time. Maybe 2 times a year where i have stomach issues, but nothing major. My insurance doesn’t...

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  • First real flare !!! Help

    Hi all I'm having my first real flare of proctitis which started almost 4 weeks ago I am having 2-3 watery bm a day with blood and stomach cramps on the centre of my lower stomach and blood and mucus without bm . I was using pentasa enemas but my nurse took me off them because she thought it could...

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  • Ulcerative colitis - herbal remedies worked for me!

    Hi all, I just wanted to share this with all of you mainly UC and possibly Crohns sufferers. I was diagnosed with UC February 2015 and I have been ill on a regular basis with really severe flare ups. I was put on different medication because it didn't work for...

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  • Colitis - side effects fom drugs

    Ive been a colitis sufferer for 6 years now and have been prescribed many different drugs! The worst side effect I have is burning sensation in feet and legs. Started off mostly at night but now during the day as well and almost unbearable! Has anyone else had this side effect and if so, how do you deal...

    Posted
  • Ulcerative Colitis... Infliximab - stomach pain?

    I had my first infusion last Thursday for Infliximab (Remicade) and felt great until Monday when I experienced a dull constant stomach pain around my belly button. Has anyone experienced this? I'm also taking steroids (Prednisone/Prednisolone) and the doctors never prescribed me Omeprazole (which...

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  • Ulcerative colitis?

    Hi everyone, Being in the process of diagnosing what is wrong with me (I am waiting for the referral for a colonoscopy to finally go through), I was wondering if any of you had a return of experience/advice regarding my symptoms. Long story short, I have been having bowel issue since January this year,...

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  • ulcerative colitis pls help

    I was diagnosed with ulcerative colitis yesterday. I tried looking online for help and advice and one thing that came up was about foods to avoid. Most things on the list were saying avoid due to getting diarrhoea I don't get diarrhoea. I was told I was in full flare up during the colonoscopy...

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  • 1st proctitis flare that has been awful !!

    I started with rectal bleeding and mucus in July last year that was at first thought to be piles then thought to be proctitis but told it wasn't after sigmoidoscopy biopsies were normal. Fast forward to this September and another sigmoidoscopy to be diagnosed again with proctitis. I started using...

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  • How many options are left for my UC?

    Hi,  I was diagnosed 1 year ago with UC and have suffered nearly every day since. I started with the steroids which for about 3 months had no affect with me, after a rough period I was admitted into hospital to have several iron infusions due to loss in blood and steroids injected into me and for...

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  • Acute intolerance to pentasa enema

    Hi all I've been using pentasa enemas once a night for a month to treat proctitis which on my Last scope in September was only 1cm of inflammation. The enemas worked within 2 days and I had no blood or mucus which were my only symptoms . Last Saturday I started getting cramps at the bottom of...

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  • Cant stop the flare-ups!

    I was diagnosed with UC about 18moths ago and it has got progressively worse.  This year I have been admitted to hospital 2 times for 11 days each.  I received intravenous steroids and was sent home with prednisolone (tapering)..  I am also having Infliximab infusions every 6 weeks. ...

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  • Flu Jab

    Hi, The last couple of years I have had the flu jab on reccomendation. I’m not sure whether it’s a good thing or not. I keep reading that it makes things worse. I’m booked in next week for it. Any advise on whether to keep the appointment or cancel?  TIA Carrie x

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  • i have uc

    i am taking ibguard for my colitis after seeing this on tv in  24 hrs. i was symptom free no loose stools or diarrhea or constipation and my sh*t don't stink.I have been battling with uc for years i made a chose not to take prescription drugs with all of the side effects so i have tried many...

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  • Stoma and pregnant

    Hi there I had my ilestomy in September 2015 and had emergency bowel op 13th Feb 2017 due to adhesions my small Bowel twisted went black and had to be removed I am now pregnant 15 weeks is there anyone who has been pregnant with a stoma I feel very alone at the moment x

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  • Sleeping on Prednisolone

    Hi, I don't seem to be getting much luck in responses recently.  Hopefully this one someone way be able to help with? Just started prednisolone for 9 weeks (tapering) again and already struggling with sleeping.  I am really tired but then for example last night i had about 1 hours sleep...

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  • Travelling

    I have a tentative diagnosis of UC and am waiting for a colonoscopy to confirm. My problem is that I'm expected at a big family get-together in a couple of weeks, entailing an 8-hour journey at the very least and I desparately need something to prevent those brief but violent bursts of diarrhoea....

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  • Sigmoidoscopy biopsy results

    Hi all I've received a letter today after having a sigmoidoscopy 3 weeks ago stating my sigmoidoscopy and biopsy shows chronic inflammation which is none specific but consistant with idiopathic ibd providing infectious causes have been excluded . Im fairlynew to this and dont really understand it...

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  • Biologics treatment for Ulcerative Colitis

    Hello all, I am in the US and I was diagnosed with ulcerative colitis throughout the entire colon (“Pancolitis”) (mild / moderately severe colitis) a couple of years ago. Since my diagnosis,  I have been on Budesonide, Lialda enema, Lialda tablets, Imuran (Azathioprine) tablets, etc. Currently,...

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  • 50 shades of UC

    Okay so I think I'm a "newbie" to UC but I've been feeling isolated more and more and decided I needed to share my story to those who just might understand that it's not just "having the s***s": I was diagnosed in 2015 after contracting CDiff at work in a skilled nursing...

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  • UC and Pre-Menopause - Medications???

    Ladies, I was diagnosed with UC 9 years ago. Thankfully with medication and diet, I have been able to manage rather well.  However, I am pre-menopausal which is triggering extreme sadness and night sweats.  So far I have tried two different kinds of anti-depressants that destroyed my colon. ...

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  • Colonoscopy done, but where at now

    Well colonoscopy is done, see doctor in 3 weeks time. Said last night, i might need another colonoscopy with what the results come back with. Feels like my life is in a dark place right now. Said could be Chrones. Also mild diverticulitis and a few polyps removed. Never ending rd.

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  • So nervous

    Well my colonoscopy is this week. So nervous feel sick. About everything. Fingers crossed its all good. One thing i have noticed after my new specialist told me was to keep a diary of trigger foods. Last 2 weeks i find oils, spices, nuts and maybe cheese cauce my problems. And been on metamucil for 2...

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  • Tumeric - bad side effefcts

    Hi, I've not had much luck with replies recently.  Does anyone have any experience of tumeric tablets?  I've read it's good for ulcerative colitis and also arthritis (of which I have both). I started taking it about 2 weeks ago. I went it at full dosage of 3 a day (recommended...

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  • Doctors rang me, before scheduled appointment

    Hi guys my new gastro rang me yesterday to say i am booked in for a colonoscopy in 2 weeks time. My bloods were fine but stool test came back as Calprotectin high level! So i have googled it, says ulcerative colitis, Crohn. I am so worried now feel sick. Can inflamation be ibs as well? I have no fever,...

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  • **One for the Ladies**

    Hi Ladies,  Do any of you suffer some symptoms when it's "time of the month" or just before? I have always been very lucky in that department and never suffered bad periods.  For years i was on the pill then i got UC so had the implant fitted.  All was going well for the...

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  • Proctitis

    Hi all I was diagnosed for a 2nd time yesterday with proctitis after a sigmoidoscopy . I was given an enema beforehand to clear me out . I've always said I only have symptoms of red blood with bowel movements and brown mucus with gas when I'm constipated ( this happens a lot). I was given pentasa...

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  • Uceris (Budesonide) withdrawal symptoms...

    Hi, I'm recently diagnosed with moderate ulcerative colitis and GI prescrbed Uceris for 8 weeks. Said that there were no side effects since no withdrawal. No other meds taken. I tried to taper Uceris and believe it is having strong systemic effects on me. My doctor said I should be able to taper...

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  • Stomach Cramps and Sick Feeling - Any Advise?

    Hi, For the last week i have been experiencing sharp stomach pains followed by an overwhelming feeling of sickness.  This happens for only about a minute or so every hour or so.   Does anyone else experience this and do you have any advise on how to over come this? I have been taking Buscopan...

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  • Struggling to be diagnosed 😞

    Been really sick since March 2017 . (Had these flare up for about 15 years )Up to 23 bowel movement a day a lot of pain and cramping .So tired , and getting depressed . Had a ct scan it showed in larger Lymph nodes , that was in Feb , Got into have the scopes done and the Dr . told me I have ulcerative...

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  • vedolizumab vs humira

    Given the choice what treatment would you chose? The side affects of humira look frightening when compared to the vedolizumab. The convenience of applying humira from home doesnt come into it, Im more concerned safety and reliance of the drug I pick. Any advice would be great thanks Im leaning towards...

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  • Arthritis... I hope it's not just me.

    I've recently developed back problems and I put off going to doctors for afew months as I assumed it was something I pulled in the gym.  I had blood tests last week and I got a call back from the dosctrs yesterday to see the doctor. He told me my blood tests are positive for either inflammation...

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  • Feacal incontinence at work

    I am a teacher and quite often experience feacal incontinance at work. I wear sanitary pads, and so have to dispose of these in the sanitary bins at school. All of the female staff have been sent an email saying that the company who clean/ change the bins have complained about feacallu soiled pads and...

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