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Ulcerative Colitis

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  • angela2728 1

    Infliximab Tingling toes !

    Hi, My Husband has been on Infliximab since December results have not been great and now after having antibody and trough levels checked our consultant has put him on 4 weekly infusions. He has managed to come off steroids (which is a great achievement) and he is feeling great with currently no

    2 replies 0 votes Last reply
  • Guest M

    Ok, does anyone out there have any worries about having ...

    Ok, does anyone out there have any worries about having a permanent colostomy or one for a short period of time?? I had mine for 7 months, just about got used to it, then I had a reversal operation. Now - 100% The thing is when I went in to hospital I was so ill, I lost approx 2.5 stone

    4 replies 0 votes Last reply
  • cjb106 3

    Hospital admission for IV steroids to treat UC

    I’m seeking advice from anyone who has had inpatient IV steroid treatment for UC at a UK hospital. I am in a very bad flare and oral meds are not working. I am currently faecally incontinent and have barely left the house in weeks because bloody diarhhea is running out of me almost all the time.

    5 replies 0 votes Last reply
  • jenny39132 2

    Due to start humira?

    Hello people hope everyone is keeping well, ive got uc, and have had a bad year with it so far cant seem to keep myself in remmission so now they wana start me on humira! Theres alot of mixed reviews about it and one min im ok with it then one min i dnt wana start it?? Any advice on the drug? Good

    7 replies 0 votes Last reply
  • cjb106 3

    Progression of UC after colectomy?

    I apologise if this sounds like a silly question but I am trying to understand the possible progression of IBD if one has the colon and rectum removed. I understand the Crohn’s and UC are related diseases, that the former can affect anywhere in the digestive system from mouth to anus whereas the

    6 replies 0 votes Last reply
  • deanna47674 2

    Constant C. Diff diagnosis

    Hello All, I was wondering if anyone else has experienced this. I am continually getting diagnosed with c. Diff. This time I was not in the hospital and I was not on any antibiotics and I once again have been diagnosed with c. Diff??? I don't understand how I keep getting this and the doctors have

    3 replies 0 votes Last reply
  • carrie303 3

    Sun Cream reccommendation for UC Sufferers

    Hi All, I am completely paranoid about going in the sun.  Although i am not on the medication which means you should not be exposed to sun light, i take Pentasa (mezzalazine). Just wondering if anyone can reccommend the best sun cream for UC sufferers? Thanks in advance. Carrie x

    1 reply 0 votes Last reply
  • Cleo1313 2
  • Poppy28 1

    Ulterative Colitis ?

    Hi, I was wondering if anyone can help me to reravel that my recent report from a sigmiodoscopy means thanks: Level reached decending colon. Colitis probably UC Appearance :with contact bleeding, dull erthema and congested, blurred pattern. Continuous extend at the rectum. Haemorrhiods. Biopsies

    4 replies 0 votes Last reply
  • bustergut1 3

    Op 7th February now Monday 13th

    Hi all, I'm progressing well. Yesterday during my routine obs my pulse was noted to be too fast. Had it checked over a period of time & then had to have an ECG. The outcome being nothing to worry about I just have a fast pulse. Which got faster with worry! Lol Managed to changed Stanley the Stomas

    19 replies 0 votes Last reply
  • michelle34409 3

    Confused with diagnosis

    I've posted a few times before but I ll briefly tell my story .Ive suffered with intermittent rectal bleeding and mucus without bm since July last year , I had a sigmoidoscopy in November and was told I had proctitis and sent away with a prescription for asacol suppositories. 2 weeks later I had a

    8 replies 0 votes Last reply
  • deanna47674 2

    UC Flare always ends up as C.diff as well

    I have had quite a year. I was diagnosed with uc in January 2016.  I went in for Hemmroid surgery in SEptember and ended up in a flare and in the hospital for 22 days.  I was going to the bathroom so much that my anal stitches broke opne causing a third degree burn in my anus.  Talk about painful. 

    6 replies 0 votes Last reply
  • jevans2 1

    Normal Flare Up?

    I've been reading a lot of posts on here and I was wondering what everyone's "normal" flare up length and symptoms are? I have UC and severe anemia, so once I get into a bad flare up, my iron levels drop and I get even sicker. I've been in the same flare since about November - it's gotten a little

    1 reply 0 votes Last reply
  • jason29304 2
  • suzanne2383 1

    Lesion on liver is it related to my colitis?

    I've recently been diagnosed with ulcerative colitis. Last week I had a ct scan and they have found a 1.4cm lesion. I am booked in for an ultrasound but I'm worried sick about what this could be. I've heard that colitis can sometimes cause problems with the liver and was wondering if anybody else

    1 reply 0 votes Last reply
  • salsline1493 1

    First time with humira injections

    On Thursday I started the injection x4. They hurt really bad in my thighs, but the ones in my belly didn't hurt to bad. I felt neausos after and headache. Next day felt off and with a headache. Today Friday I woke up with a severe back pain, and took some tylenol. Overall I felt sluggish and tired

    1 reply 0 votes Last reply
  • Darasdad1 3

    Rectal Stump Removed

    Going home today after having glamorously named Rectal Stump removed 18 Months after initial surgery to remove my Colon. Having felt significant improvement after the original surgery I'm hoping this puts the spectre of UC once and for all. Feeling positive.

    5 replies 0 votes Last reply
  • pamela2016 4


    Just came out of a flare in Feb bad one now here I am again starting to flare again can't do this I hate all of this. I've had water dirreah for days now and now I'm bleeding hardly eating cause when I don't eat I don't run to to nip this before it's out of hand any suggestions at all

    4 replies 0 votes Last reply
  • Sbgoodguy 2

    Constant uncontrollable watery stools

    After a 6 month flare up and anal fissures I had a second bottom injection which cleared the pain. Pred tabs and enema seemed to have slowed the flare up but now I am left with an odd need to rush to the toilet for a small amount of liquid stool. It comes on without warning and rarely has much

    3 replies 1 vote Last reply
  • jenny39132 2

    Colitus flare again

    Hello guys just got out of hospital today after 12days in due to flare, ive had colitus for 8years now and am on mezalasine tabs and foam enemas, i did try azathroprine but kidneys didnt react well to it, they keep talking about bio logics but ive read some horrible stories about that and have 4

    5 replies 0 votes Last reply
  • DanLabGray 2

    Nicotine therapy to Counter Ulcerative Colitis Flare

    I am a 32 year male ex-smoker with mild to moderate left sided Ulceraive Colitis, diagnosed 3 years ago. I gave up smoking a while before symptoms appeared. I've recently gone into a flare, and did some reading about the different options out there. I stumbled across a forum discussing nicotine and

    13 replies 0 votes Last reply
  • Gerr1 2

    UC & Smoking

    The last few years every time I gave up smoking my UC would flare up but only at these times. Then I'd start smoking again and I'd be in remission again in a few days. Has anyone else had this close link to smoking? I smoke 20 Marl lights a day. This time I am determined to not smoke and push

    6 replies 0 votes Last reply
  • 2daloo 2

    Advice Please

    Hi Guys, Has anybody had the operation to have a colostomy bag fitted? I am getting to the end of my tether with all the flare ups i keep having and am seriously considering having it done. This colitis has put me out of work because of going to the loo so many times. So advise please guys! is it

    40 replies 0 votes Last reply
  • MrsP10715 2

    'Just' Proctitis? Trying to look after a baby from the toilet...

    I was diagnosed with 'just' proctitis last year half way through my first pregnancy (my original consultant's own dismissive words). I had a limited sigmoidoscopy when pregnant to confirm the UC, as in they didn't go too far up. Symptoms were bloody diarrhoea with mucus, left sided pain, and

    6 replies 0 votes Last reply
  • michelle34409 3

    Proctitis and need answers

    Hi I was diagnosed with proctitis in November last year based on the findings on a sigmoidoscopy. I had a month history of rectal bleeding and mucus. I was sent away from the sigmoidoscopy with my report and a prescription for asacol explanation just told to go away and wait for

    3 replies 0 votes Last reply
  • Sawyer9 2

    Fobbed off by my gastro department.

    Hi. This isn't just a rant, there is a question I was wondering about and I'm looking for suggestions. Sorry for the long post. I know for a fact due to how my bowels are behaving that i'm now at the beginning of a third flare the past few days and I'm seething at how once again I've been fobbed

    3 replies 0 votes Last reply
  • sara28854 1
  • louloub 2

    Colonoscopy results

    I finally had my colonoscopy after spending time in hospital in January due to blood loss and dehydration. Ive got the report, just wondering if anyone can shed some light as I am new to this. He couldn't go down the right side of my colon because the scope was looping and it was too painful.

    2 replies 0 votes Last reply
  • kelly58419 3

    When to call doctor

    Hi all, If you was to have a flare up how would you know wen to go hospital? Last time I had severe stomach cramps but it wasn't painful. Wen I first had symptoms I was sicker than I thought and only went Dr wen I saw blood. I know if you have severe pain you need to. last time I was

    2 replies 0 votes Last reply
  • madeleine38521 2

    UC and breast Augmentation

    I have had mild Proctitis for the last 5 years now, I am 22 and cannot get my weight over 7 stone, which is very underweight. I currently control my proctitis with 6 x 400mg asacol a day and have no current symptoms. I have lost a considerable amount of weight, this has completely knocked my

    9 replies 0 votes Last reply
  • Robert. 1

    Child (12y old) treatment recently diagnosed with UC

    Hi, Apologies for the length of the post below but I think the history might help others and also might help answer the question I have. My daughter was recently (Jan 2017) diagnosed with UC after many years of frequent bowel movements and bloating which developed into a big flare-up in Oct 2016

    4 replies 0 votes Last reply
  • louloub 2

    Pain after colonoscopy

    I had my first colonoscopy today and this afternoon and this evening I have got quite a bit of pain under my left rib cage. Is this normal or should I be concerned? The Colonoscopist did struggle with looping - it said in the report that he couldn't go past the left side of the transverse colon

    3 replies 0 votes Last reply
  • Shal75 3

    Feeling nauseous

    So I've had my ileostomy since November and for the last week I've been feeling nauseous every morning, no cramping, or vomiting, my output is normal if not a bit watery but I've been feeling quite dehydrated lately. Any ideas of why I'm feeling nauseous? X Thanks.

    1 reply 0 votes Last reply
  • Aunty Vera 2
  • rachelle52846 3

    Stoma and pregnant

    Hi there I had my ilestomy in September 2015 and had emergency bowel op 13th Feb 2017 due to adhesions my small Bowel twisted went black and had to be removed I am now pregnant 15 weeks is there anyone who has been pregnant with a stoma I feel very alone at the moment x

    6 replies 0 votes Last reply
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