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Ulcerative Colitis

Also known as Colitis - Ulcerative, Mesalazine for Ulcerative Colitis, Sulfasalazine for Ulcerative Colitis

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  • Ulcerative Colitis/arthritis pain management

    I have Ulcerative colitis  and am now getting arthritis esp. when I have a flare up. My gastro has told me not to take any NSAIDS.  I can take tylenol but anyone who has artritis knows tyleonol does nothing for joint pain.   My family dr. tried me on Cymbalta which was incredible...

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  • Mesalasine liquid enemas

    Has anyone tried the liquid mesalasine enemas. I have tried the foam enemas and they made me flare up. Have the liquid ones been effective for anyone

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  • Infliximab

    I started infliximab six weeks ago and it seems to be making me flare up, make the diareah worse, horrendous stomach pain and sweating at nIght. Has anyone else experienced this with infliximab.

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  • Vendulizamab

    Could any one give me some advice. I am currently having infliximab infusions but am worried about the side effects. Has anyone got experience of vendulizamab infusions.

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  • What does remission feel like?

    I'm still in my initial flare, diagnosed with UC on 31/01/18. not feeling very positive at the moment. Just want to know what it feels like to reach remission?  Can you tell if you're about to go into remission? 

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  • Diagnosis of Ulcerative Colitis

    went back to clinic after 2weeks on Asocol. Consultant is fairly sure now that it is UC and not Crohns. He says it's mild and seems confident the mess will work to bring it into remission. I think there's a small improvement. I wanted to ask how long it was for Asocol to work for others and have...

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  • My 14yo sister just diagnosed with severe UC

    Hi all. I am looking for some advise from anyone, who has recently diagnosed or has been managing this illness for some time. My sister is 14yo and was suffering with bloody stools since the age of 13. It was diagnosed that she was just compacted last year and was given harsh laxatives to flush her out....

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  • Suddenly worse symptoms

    Hi, I was diagnosed 3 weeks ago. Put on Asocol. Seemed to be going okay and main symptom was very loose stool 2-3 times in the morning. Dr said diet didn’t make a difference...before that I had been very careful. Anyway over the bank holiday, I ate what I wanted!! Had worst watery diarrhea Monday afternoon,...

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  • Colon

    Hi ..i have UC in descending and transverse. Just wondered if anyone can "feel sore " from hip to under ribs even when not having a flare? Thanks in advance.

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  • Advice on IBD

    So for nearly a year now I have had diorherra, it started when I was pregnant. I also had a liver problem OC in pregnancy which resulted in having baby early. So anyway nearly a year on I’m still having diorherra this is mainly within 10-30mins after eating. And having to run to the loo, sometimes I’m...

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  • Can u flare without bleeding

    For the past 7 weeks I'm struggling so bad not eating alot bowels messed up and rectum feels swollen have a colonoscopy on Monday and I'm scared to death. Anyone else have proctitis and flare without bleeding?if so please share your symptoms and what helps you

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  • UC mild pain/ platelets

    Anyone have mild left sided pain,without others symptoms for most of time? Also are your platelets slightly high even when not in a flare?

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  • Unclear Diagnosis

    Hi , I have been a long term haemorrhoid sufferer , for the last 18months my symptoms have got worse , mainly visible blood on my stools , and of late , blood in the pan after going to the toilet . When this first kicked in 18months ago , I visited my GP who referred me to a Colorectal Surgeon , he initially...

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  • Diagnosed back in January; struggling

    Hi, Im 18 years old and I was diagnosed with UC back in January. Since then I have been taking a huge amount of medications ranging from Sulfasalazine, Prednisone, Iron, Vitamin D, Prozac, and Prilosec. Upon starting all of these medications I feel like my mind is always going at 110 MPH and I am really...

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  • Biopsy results not clear after colonoscopy

    Hello i have got back my biopsy results and it says they cant tell whether its infection or inflammation? i asked my gp what that meant and he said that they will discuss this at my outpatients appointment. does anyone know what happens if biopsy results arent clear? will they have to another colonoscopy....

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  • Not sure of diagnosis

    Hello! I saw consultant last week following colonoscopy. He is unsure is it is Crohn’s or UC, as my presentation is a bit mixed! Either way, he said that it is mild. My main symptom is bloody diarrhea in the morning! He has started me on Asocol and seeing me in 2 weeks. Has anyone else had a similar...

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  • Taking Asacol not sure if i need to take steroids too

    Hi I am currently taking Asacol suppositories. It has reduced episodes of bleeding and mucus but i stil have it every other day. Doctor prescribed Steeoids but said to take asacol suppositories first see how i get on. if im still getting episodes of bleeding with mucus does that mean i have to take...

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  • Bowel issues for months

    Hello, I'm hoping for some advice. I've been having a rough few months. Juts after Christmas I started with diarrhoea. From the minute I wake I'd have to dash to the loo. I do have Ibs. Usually I get ibs D after I've eaten so this felt different as it's on waking and then can go on...

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  • Having full bowel removal in 2 weeks need advice

    Hi all , Im due to have the whole of my large colon removed in 2 weeks through key hole surgery. What i want to ask someone whos been through this is what should I expect as in what happens to you?  When you wake whats it like? Whats the pain like? Who helps with the stoma? What/when can i eat?...

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  • Major sunburn/heat rash side effect from steriods

    Never sunburnt before im quite olived skinned and usually go dark brown in sun but yesterday was out for a few hours and gone really red and blotchy think it could be sude effect of Pred im down to 20mg a day now cant wait to get off them. Anyone else experienced this?

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  • Just diagnosed with UC, advice would be greatly appreciated

    Having had a dodgy stomach since Christmas, I was diagnosed with UC after a colonoscopy last week.  The consultant prescribed me with 40mg steroids per day, for two weeks then reducing to 35mg. I return to see him in two weeks.  The steroids are making go high and low, although they have really...

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  • Pentasa slow release

    Hi all. Been on pentasa 2g for few weeks, now having 1g suppositories due to proctitis flare. Does anyone feel really tired on Pentasa and get mild headaches /light dizziness too? Thanks in advance.

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  • Had colonscopy but no treatment?

    i had my colonscopy on Friday. The doctor saw ulcers and confirmed that my bowel looks inflammed and i have UC. They took biopsies and didnt give me anything. i am still passing blood and not able to eat much. What shall i do? was i meant to be given something. They told me to wait for 3 weeks for...

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  • UC Meds / trial and error

    Hi Tina, my daughter was diagnosed with UC 2 1/2 yrs ago at age 15..after colonoscopy was put on   prednisolone.  Taking the prednisoline early in the morning helps as this is when your body naturally makes steroids apparently.  (You probably already know this but we found it helped) ...

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  • VSL#3 and tenesmus

    Hi everyone, I have ulcerataive proctitis and use canasa 1000mg and a paleo diet to manage. But I know probiotics are recommended and VSL#3 has so much research to support it.  But I started using it  and found I had an increase in tenesmus and constipation from VSL#3.  I started taking...

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  • Platelets

    Hi i have UC . I was just wondering if anyone else has raised platelets even when in remission. My lastest blood tests show this but all else is normal. Thanks in advance.

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  • Awaiting diagnosis - Indeterminate Colitis Mentioned

    Hello, I am new here I have been going through some issues with my bowel movements recently and I have so many questions and concerns which my health care team are investigating, but its such a slow process I would like to hear from others.. Its affecting my life more and more as time goes on and I feel...

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  • Nails

    Hi guys,  24years old and recently diagnosed with Ulcerative Colitis, so far have found a few solutions to improve symptoms, however, have had a serious issue with my nails and was wondering if anyone else had experienced anything similar.  My left hand my nails have bruised badly...

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  • Need help as caregiver please

    hello, I'm a 60 yo male and my husband has UC and is currently in a flare. The physical symptoms I understand but the emotional / mental aspects are making our life miserable. Depression, anger, and total lack of motivation to do anything to help himself. He mistrusts doctors and states he hopes...

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  • Proctitis

    Hello I am 29 years old. I have been having rectal bleeding for the past 8 weeks every single day it is bright red and dark red with white mucus and clots. i have also been using the toiler upto 10 times sometimes more a day. Feeling weak, and fatigued i had an appointment at the colorectal clinic...

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  • Bloods

    Had blood test all ok except platelets were a bit high 472. Slight proctitis flare recently. Anyone else have just raised platelets but all other blood work fine?

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  • UC when not flaring

    I have UC . Currently on pentasa 2g daily, and suppositres if proctitis flares. I just wondered if others had symptoms i.e slight colon pain, very gassy, and sometimes rib pain even when not having a flare of UC.

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  • Getting off 6mp

    I was diagnosed with ulcerative colitis in 2012, and was on and off asacol and steroids for most of the first year. In 2013/2014 I was put on 6mp and remicade infusions and have been symptom free since starting this course of treatment. I just recently had a colonoscopy and my GI specialist wants me...

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  • New to UC

    Hi I was just diagnosed with UC. 4 kids, a full time job and a husband that’s a pilot so it was very hard on me. First flare lasted 3 weeks. I lost a lot of weight and went 4 days without ingesting anything. I luckily was able to get into a GI dr within that 3 weeks, had bloodwork, CT, ultrasound, and...

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