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I was diagnosed with 'just' proctitis last year half way through my first pregnancy (my original consultant's own dismissive words). I had a limited sigmoidoscopy when pregnant to confirm the UC, as in they didn't go too far up. Symptoms were bloody diarrhoea with mucus, left sided pain, and complete exhaustion!
While pregnant I was given Pentasa 2g BD and pentasa suppository, which reduced my bowel movements from around 20x a day to less than 10, but always with blood and mucus. I gave birth naturally New Year's Eve to a healthy baby boy but flared up the day after LIKE A MOTHER. Finally I was given steroids, IV hydrocortisone on the maternity ward for 3 days then a reducing prednisolone course to take at home. In a post partum rage I 'sacked' my consultant and asked for a new one (won't bore you with the details but he deserved it).
My steroids finished start of Feb, i continued with the pentasa and I had 2 weeks of blissful bowel movements, until the blood started up again. The IBD team prescribed mezavant instead, the flare up escalated quickly to my pregnancy standard, plus this time I had undigested food in stools. Another call to the IBD team and I am now on predfoam alongside the mezavant.
What I don't understand is the undigested food if it is 'just' proctitis; does anyone else suffer such nasties with UC?
Can proctitis develop further up and how would you know? Is it worth trying to get the full works now there isn't a baby in there scaring the consultants re: sigmoidoscopy?
Still waiting to see new consultant to ask these questions...
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