[LS, Lichen Sclerosus] STOP USING WESTERN MEDICINE!!!!!! ALMOST CURED!
Posted , 142 users are following.
Hello ALL! PLEASE CONTINUE READING IF YOU WANT TO STOP YOUR lichen sclerosus...
So I have posted on here before, hectic flare up/ anal fissure/ uti you name it and have had lichen sclerosus for about 8-9 motnhs now. This being the worst month of my life, I got a biopsy in feb came back neg for cancer and was perscribed Celestone a steroid to put on which made it so so much worse and progressed my disease. Then I got an anal fissure from the lichen (HELL). Anyways went to a new gyno and he couldnt do a biopsy cause it was too enflamed and gave me advantan fatty cream to try and said to stop steroids. THEN
I finally decided to go to a Chinese Medicine Doctor in Sydney to try my luck as I was becoming desperate and feared I would never be able to have sex again with my amazing boyfriend of 2 years (I am 24). LONG STORY SHORT he had never heard of lichen sclerosus and did the standard chinese logical medicine exam (tounge, pulse, thyroid ect) turns out, my immune system was not functioning properly and my hormones were out of wack thus causing everything else in my body to be weak and allow for viruses and chronic diseases to attack my body very easily. He said my circulation was horrible and my digestion was not ideal for the nutrients were not being distributed throughout my body (I am so healthy its rediculous so I found this quite a shock!!)
Anyways, had two 'treatments' with him and he said to STOP using anything western medicine gives me aka steroids and antibiotics. NO NO NO these are your worst enemy. Westen medicine is taught to treat what is enflamed, not the REASON why it is enflamed. He said one set of antibiotics can ruin your whole body system. So he gave me a cream that has chinese symbols all over it to apply to my lichen sclerosus, and brain/circulation herbs & toxic removal herbs at night & hormone balancing herbs to treat my immune system and get my balance back. He said if I get my blood count (white) back up and get my body balance back my lichen will simply "dissapear"
I was hesitant of course to stop my gyno's orders and ditch the steroids for good, yes it was frightening, do I trust a little chinese man in a dingy shop who has reputable reviews of natural cures world wide? I chose YES. and for the past 9 days I have only been using the chinese herbs and the creams and limiting my gluten/sugar to help the toxins get out of my body. AND
I sit here now. I have no itching, I have no pain, I can ride my bike, I went on a RUN today, I had sex again! I feel amazing and I feel mentally how I did about 3 years ago (NOT STRESSED AND ANXIETY FILLED) It is still not COMPLETELY healed but I am getting CLOSE GUYS. This is insane. My skin down there is becoming revujanated. I am never putting steroids down there again!!!!!
Remember, if steroids have been helping you, they are simpoly treating the symptoms NOT the disease which I know will 100% claim is an autoimmune problem mixed with hormone imbalances and stress. So guys please try a naturopath, I know its hard. But I am getting better everyday and at this rate (I know everyone is different) but I rekon I could completely rid myself of this horrible disease FOREVER. Inbox me if you would like more details. I AM SO SO HAPPY and just want everyone with this horrible disease to have hope that YOU CAN GET RID OF IT! And of course I still use chinese medicine with the "oversee-ing" of a gyno but I choose to use natural NOT steroids that are going to make me have further complications later in life.
Other things to help all you ladies:
MANUKA HONEY- USE IT ON YOUR FLARE UPS (I use +20 grade for extra strength) Do not use any other honey for wounds or medical purposes as it will be GRADE A and will cause further harm.
EMU OIL- MOISTURIZER YES. Important to note that emu oil alone WILL NOT cure or reverse lichen sclerosus but will be an amazing natural moisturizer.
COCONUT OIL- use it on your genitals. you will have a young vagina forever. Drink/ eat 2-4 tablespoons a day you will surprise yourself it is a natural viral stopper for the body. make sure it is EXTRA VIRGIN and organic.
VASELINE- protector from peeing (if have flare up) and helps stop the vaguna opening from getting tighter (THIS WORKS) I apply every day now and can also be a lube!
RASBERRY LEAF TEA- YOUR LIFESAVER. Drink this stuff everyday. It tones the uterus linning and is AMAZING for your digestive system, it also gets your hormone levels back to normal in about 5 days of drinking 2-3 cups a day.
There are more natural remidies which have been mentioned on this site, but in general you guys need to make sure you get heaps of sleep or your body will never recover. ALSO I only wash with emuaid Soap in the shower (bum/vag) and it is the only thing that doesn't sting for me (I have tried everything).
I HOPE this helps you guys. I will chekc back in, in another week to let you know If I am actually cured, but at this rate I believe it will be. My bits down there have never looked this good, white almost gone, wounds almost completely gone!! (had sores for 4-5 months at a time) and my pink color is coming back! My swelling is completely GONE!!! My chinese doctor said I have decreased the swelling by 68% in 5 days. I am just so excited. Stay hopefull guys xxx Dsauce
38 likes, 203 replies
solucky Dsauce06763
Posted
Hello,
I know this is a long shot since your post is from 4 years ago but Im desperate. Any chance you could find out the name of those Chinese herbs or the name of the TCM doctor so I can get in touch? I live in a small town and no one here knows anything about LS, I am at a loss, please help if you can. my email is
Moderator comment: I have removed the email address as we do not publish these in the forums. If users wish to exchange contact details please use the Private Message service.
cindy_75739 Dsauce06763
Posted
Hello Dsauce, I am not the woman who did the original post, but I am pretty sure I know what cream she is referring to. It's called Yiganerjing and you buy it in Amazon.
kari61500 cindy_75739
Posted
Yiganerjing contains ragweed. I'm allergic to ragweed. No, thank you.
charlene_37656 Dsauce06763
Posted
kim18694 Dsauce06763
Posted
Agreed. I lived with what was diagnosed by many gynecologists as "lichen sclerosis" from age 19....I am now 47. My main symptoms were: light and clear discharge, incessant itching and skin breaking on the upper outter labia and the perineum, rectal fissures- chronically.....for almost 30 years. Ouch, poor me. Until I found, not "the cure"....but the prevention!
A couple years ago I realized I didn't have LS but was having an allergic reaction to eating/drinking things with
citric acid (not from citrus fruit, I don't react to fruits, only the type of citric acid that is manufactured for food preservation). Too expensive to derive from citrus crops, citric acid is now derived from black mold grown on a cheap sugar substrate such as corn, likely genetically modified corn. Because I don't react to citrus fruit or corn in the same manner and because I had a similar set of symptoms (but much stronger including the vaginal dryness, pain durning sex I had heard described on lichen sclerosis support groups) when I gave birth to my first son and was given a dextrose drip, I believe I'm reacting to the mold or the genetic modification part. It's like the stuff wants back out of my body. The light discharge isn't very noticeable (or maybe I just thought that amount of moisture was normal after all the years, not being very in tune with my 19 year old body). It seems to drip, especially overnight and then, sitting on the vulva, perineum and rectum it causes the irritation. Itching exacerbates it.
Now if I have this symptom I can trace it back to something I ate the day before.
Avoiding this stuff is quite tricky because it's in so many foods, even most of the specialty packaged food at the local health food stores. Especially in soft drinks, mixers, tomato sauces, jam/jelly, hummus, you name it. If it says lemon juice I buy it. If it says citric acid I boycott.
Hope this helps someone sooner than 30 years in!
judy48705 kim18694
Posted
Kim thank you for sharing your experience..
I'm so glad you found the solution. I'm only six months in with LS, and in my case my immune system broke down after chemo. I'll be looking more closely at the food I eat and see if it causes the LS to flare up.
charlene_37656 kim18694
Posted
charlene_37656
Posted
julia38883 Dsauce06763
Posted
Hi Dsauce,
My name is Julia and i'm 22 years old. I was diagnosed with LS when I was 17... I won't go too much into detail as it is upsetting to talk about, but Ivebeen feeling very hopeless lately as the clobetesol has stopped working for me. I've never had sex that wasn't painful, and I'm beginning to lose hope. I have tried borax, emuaid, and everything under the sun and the fusion just keeps getting worse. Your post made me feel the smallest bit of hope but it's more than I've had in awhile and i would really appreciate if you could tell me more about your homeopathic treatments and where I may find an alternative doctor like yours. I'm moving to Austin Texas this month and have no connections to doctors there and am feeling extremely overwhelmed and lost in the process of trying to find professionals that will know how to help me with this very uncommon and lesser known disease. If you have any advice on where I should begin to look or any home remedies I can start for myself i would appreciate it. Most of all I want to find a doctor that will be able to help me through this as I haven't really had a doctor that's told me anything other than to use the clobetesol, which in the past year has not helped at all and I think in some ways had made it worse. This forum helps me and I read it whenever I am feeling lost, so I would really appreciate if you have any advice for how I should move forward. I want to enjoy sex and enjoy life - I want to be able to go to the bathroom without being in pain. Please help
lisa8888 julia38883
Posted
Don’t lose hope! I know this condition can bring you to tears, extreme feelings of isolation and depression, and hopelessness. But, I’m living proof that it can be managed to a level that I almost forget I have LS at most times and I’m not using pharmaceuticals. I discovered in the last few years that my five year old daughter has it because I could visually see minor skin changes and then she was able to describe the same physical pain and sensations. So I’ve been able to manage hers also with no pharmaceuticals. The only way a traditional doctor will diagnose is usually through a biopsy which for me was extremely painful so I’m not about to have my daughter officially diagnosed especially if I can continue to treat us more nutritionally and naturally. I keep meaning to sit down and write down all my steps for everyone to know since there is so little info out there for us.
Stay strong. I’m here if you need to talk.
-Lisa
donna60875 Dsauce06763
Posted
I ordered a few days ago ,caster oil lavender oil ,and emu oil ,
was not sure off how to mix and quantity’s off each item , I used mainly caster oil few drops lavender and a few drops emu oil , in pump container , left in bathroom , I used it yesterday’s and today every time I went to the toilet ..
Still early days yet , and not sure if I’ve got the right amount off mix , but already it seems to be calming The area down , and feels definitely less painful thanks for this info , I will keep trying over the next few days to see if it carrys on working very impressed so far!
Also just bought some raspberry teas today so will try them also x
t23228 Dsauce06763
Posted
judy48705 t23228
Posted
kc75268 t23228
Posted
how are you doing with the plant based diet ?
judy48705 kc75268
Posted
I'm adding a bit of organic meat twice a week and wild caught fish and I'm doing well. My lichen has disappeared using the Kuumba herbal healing cream!!
kc75268 judy48705
Posted
where do you get the cream ?
I think mine so caught early.
charlene_37656 kc75268
Posted
I just purchased it from Amazon--Kuumba has a healing cream they make so will let you all know if it works!
kari61500 charlene_37656
Posted
I have used about 3/4 of a jar of Kuumba. I don't see any more benefit than when I use A&D ointment and A&D is less expensive. 😥
charlene_37656 kari61500
Posted
I wish I'd have known--just ordered mine yesterday--oh well...trying anything and agree that diet and reducing inflammation can help for sure..I do know I cannot use any high dose steroids as after 4 days - I develop hideous yeast and bacterial infectious sores/rashes to where I cannot sit or move without horrible discomfort - so for me most of what they prescribed makes it far worse--even the protopic seems like acid on my skin so had to figure out my own recipe which is 1% hydrocortisone used sparingly along with triple barrier cream and nystatin when having itching only... I will say also a hydrating cream/ointment is also great in-between. Was hoping Kuumba had something to rid myself of the scars on my trunk and abdomen...hopefully in time something will rid it...thanks!