"Monster" Attacks

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If you have had "monster attacks", or are in the process of having them, could you explain yours? Example: I am having sharp bug crawing shocks on my lips(horizontal and vertical), skull tightens up like it is in a vice, and face feels like it is on fire with somebody putting it out with an ice pick. All of this is coming through a face that is numb from a MVD and a bi-lateral Radiation procedure. Again, both have failed.

God Bless,

Greg 

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  • Posted

    Hi Greg

    I hope you have lots of room to store the answers!

    I doubt you will find two the same but most will be close to the mark. Just the verbal description will vary that is all.

    Mine was best described as 'Electrical Shocks' on face, in gums, varying from slight to incredibly intense. Then the 'Headaches' seemed centered on the left eye with as all manner of different sensations across the face (left side), in the ear and also down the neck.

    KEEP LOOKING, KEEP RESEARCHING and KEEP MOVING FORWARD. You don't need a medical degree to identify the issues, and speaking or spelling the medical terminology correctly is not the issue. It is seeing what others use and with your medical specialists see what best suits YOU. RESEARCH.

    Best of Luck and we all hope you find your answers very soon.

    Baudy!

     

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  • Posted

    The onset of my TN was like this...I got up in the morning and when I put my reading glasses on...as I slid them onto my face I noticed that the side of my face by my eye felt funny; then an hour later I noticed that the whole right side of my face from the eye to the jawline felt bruised, like I had been hit really hard.  I had uncomfortable sensations in my face for most of the day, then that early evening I had the electric shock like pain...no pain inbetween but the severe electric shock like pain that seems to be text book to TN.  But I also had what felt like a sore throat, a really bad sore throat...pain under my right jaw.  After being put on meds for TN my pain became more constant and low grade in nature with some of the electric shock pain at a lower level most of the time.  The "sore throat" has come back a couple of times and it is scary because it is really painful to swallow.  I have also felt like my lower right lip is swollen especially in the hour before the next dose of my meds.  I took my last lyrica 50 mg this morning....so we will see what the next few days brings.  Then I will start the oxcarbazepine.

    Does that answer your question?

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    • Posted

      Karen36710,

      This is weird because 3 years go I woke up everything was blurry in my right eye and I had the same symptoms you just described .

      I went to optometrist and he prescribed some glasses but I couldn't see clearly out of the glass.

      Went to another doctor, he said I had blood clot in right eye. No one corrected problem. I have been getting eye injection 3 years.

      Optometrist I am seeing since MVD says I had an eye stroke . Eye stroke double vision.

      After I was put on 300mg of gabby pain was worse, I just thought meds take time.

      Dr.wood told me to take two (300mg). Then (900mg) then doctor added oxcarbazapine (1 (150)), I did sleep good. I was zunked all throuht the next day.

      God bless

      us and keep us and give us peace

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    • Posted

      WOW!...because just a couple of weeks into this TN thing I went and had my eyes checked and the optometrist told me to come back when the TN settled down.  I am planning on going back this month even though I am far from stable.  The optometrist told me that my vision was very bad in my right eye....I am anxious to see what it is like now.  I might try to get into to see her before I go back on meds
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  • Posted

    Greg66242

    Could be sensation coming back in your face from the surgery and the numbness I'm having crawling on head. My fsce is not numb, but numbness on areas I described in my text.

    You can't get upset because if you get upset and yell at people that's when you get those monster attacks.

    Always had crawling on my lips, head in on spot and lightly on face.

    Had a slight crawling in my head before surgery now I have more crawling , thinking its because of numbness going away. I ate yogurt and I got shocks and pain on my gums.

    I take my meds when I feel any kind of pain in my gums. I tried calling my Dr. Phelps, nurse about some headaches I've been getting, but so far today, no headaches . I will call my neurologist on Monday if they start up again

    Make sure you don't have a fever.

    Since I had mini stroke (brain stem stroke) I take aspirin that make me sick of my stomach. I am allergic to aspirin so I take a nausea pill first and then I take aspirin.

    This is when I had a bad attack:

    Once, I got really angry yelling @ grown niece (32) who don't know how to pack a dishwasher. She intensionably half does things. Hubby solved this,

    We now use paper plates.

    God bless

    us and give us peace

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    • Posted

      Hi

      This is for the nausea sufferers.

      I get this every day as a result of medication I was on way back.

      Injections work but they don't send them home with you, the pills just don't work for me and if truth be known make the condition worse.

      A friend put me on to what are sold on the UK as SEA BAND. (Most likely a local brand so some research necessary depending where you are) These are marketed as a solution for TRAVEL SICKNESS!

      Anyway just a simple pair of wrist bands with ceramic beads that work on the pressure points on your wrist. I am very skeptical usually but I about $10US and bought some. After two days I just wouldn't be withoiut then now. FOR ME (!) ME they worked well and my tummy hasn't settled so well for years. 

      Worth a try if you can't find a suitable treatment for your nausea.

      Good Luck

      Baudy!

       

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    • Posted

      BaudWalker

      I will see if I can find this non prescription medication. At the moment I am taking a prescription one called ondansetron

      4mg tablet and it works.

      I take one before I take all of the meds that make stomach sick.

      Tthanks

      God bless

      Us and keep us and give us peace

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    • Posted

      Hello Baudwalker,

      I am sick of taking meds 4 nsusea, found this band at walmart on sale, will pick up today / try it.

      Thanks,

      God bless

      us and keep us and give us peace

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    • Posted

      That is good you have found them!

      Let us all hope they work for you as well

      Read the documentation INSIDE the packaging so they are fitted on the pressure point where they are designed to work. Easy to work out once you find the details.

      Baudy!

       

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    • Posted

      Baufwalker

      I found Sea Bands on sale (($7.73) order on line $3.99) @ walmart, things don't normally work on me, like it does on others people.

      I bough them and they work. When I first put them on they made me nauseated, but after about 7 minutes they startef working. Wow

      Baudwalker, you ur a Godsend.

      God bless

      Us and keep up and give us peace

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    • Posted

      Baud Walker,

      Thx,thx,thx u so very much 4 the discovery of the futures, haven't BN nauseated since I put " Sea Bands" on.

      Anything else out there u'v found 2 help us, if so let us know.

      God bless,

      us and keep us and give us peace

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  • Posted

    Hi Greg. When I have a bad/monster attack, it feels like someone is putting a live electrical wire into my ear/side of my head where ear is, that gives me a very sharpe and painful electric shock. These shocks come out of the blue, in spasams and periodical, say ever 5 to 10 seconds. This when on for over a week, was horrible. The only thing that gave me some relief was Asprin forte, has codene in it too. I didn't like taking all this strong Asprine becasue Asprine plays havic with your gut, I booked an acupuncture seesion; this was very successful. Other than a few little shocks, I've been pain free for over a week now. I'm also on Folinic Acid and Magnesium Chelate. These help with TN. 

     

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    • Posted

      Sometimes, science fails, meaning science based treatments. What also needs to be tried is natural therapies. I would recommend everyone booking a session with a very good naturapth and also seek out chinese medicine. It can't hurt and worth a try. 

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  • Posted

    I feel like someone is pressing on my face with pressure of a vice grip an electric an tingling in my top jaw by my left side of my nose all of it is on my left side mine is constantly hurting i get breaks when im asleep always but it feels wierd all day i got mine from an ear infection its tnp which sucks im on 900 mg gabapentin an 100 mg oxcarbazepine
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    • Posted

      Tnhurtsme

      Earache as bad as toothache.

      Once I got really bad Attack and had to take 1200mg.

      I have learned how to not get upset anymore.

      Thought I would throw this out there.

      Looks as if we need to fine the reason why TN is out there, sinve medical science has no idea.

      Gid bless

      us and keep us and give us peace.

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    • Posted

      Tnhurtsme,

      My MonsterAttack.

      TN monster attacks for me were the shocks, the pain was bad but not as bad as those horrible shocks.

      God bless

      us and keep us and give us peace

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