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Trigeminal Neuralgia

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  • Looking for info

     I have had TN for probably over six or seven years now, I have had the decompressive surgery twice,  and each time the pain came back within 6 to 7 months. I had some luck with acupuncture for a while but then that stopped. I’ve tried nerve block once,  it actually was just a few weeks...

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  • Is this TN or not?,please advice.

    Hey friends, Firstly,everyone get well soon,ı hope. I am 28 years old,male. Sorry for my english not really good. 3 weeks ago I went to my dentist to get my teeth filled.I did not have too many bruises on my teeth and there was no pain after the treatment. In the following days, my left upper teeth...

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  • Looking for info

     I have had TN for probably over six or seven years now, I have had the decompressive surgery twice,  and each time the pain came back within 6 to 7 months. I had some luck with acupuncture for a while but then that stopped. I’ve tried nerve block once,  it actually was just a few weeks...

    Posted
  • Newly diagnosed and scared.

    After a couple of months of pain, my dr told me last week he believes I'm suffering with "tic doulereux". My first bout was in November, not knowing what was going on, I took every painkiller I could get my hands on, double and triple dosing with Tylenol with codeine (which I had never...

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  • Support and Understanding for those with TN

    I would like to start off by saying I understand what you are going through and I want to be here to support anyone dealing with this terrible disorder. I had TN from 2011 until May 5th 2016. I'm sure I had it prior to 2011 but was not aware of what TN even was at the time. In May 2016 I had microvascular...

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  • Does anyone else still have attacks whilst on Meds?

    Hi im new to this forum.. I was given carbemazapine when I had my first episode 2 years ago, whilst they worked for the mort part the side effects were unpleasant. For my most recent attack they tried me on Amyltripteline which were for the most part working but as they were gradually increased the...

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  • Have TN, but might have tooth abscess also how do you know?

    I was diagnosed with trigeminal neuralgia three months ago after having two unnecessary root canals and one of those teeth removed. All of my pain has been in my upper jaw. I’ve been using gabapentin, baclofen and methadone as well as seeing a pain specialist for nerve blocks. I have MS and my TN is...

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  • Tegretol – Trigeminal Neuralgia – Remission

    Dear all, Just felt the need to write and say, I am finally off Tegretol for the past 7 days and so far so good. I think and hope I’m in remission, never thought I would ever be able to say that!! :o)) it’s been a very long and tough year!  My story - As much as I hated the drug, it defo worked...

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  • Atypical trigeminal neuralgia and acupuncture

    Hi was wondering on ppl s thoughts on the use of acupuncture for tn and atn. I was talking to someone and noticed a piercing on her ear the ear part just inside and above tragus she had it done by an acupuncturist for her headaches she hasn't got a formal diagnosis but suffers with frontal headaches...

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  • How I survived, researched, and overcame Trigeminal Neuralgia

    I'm going to tell my story so it will be kind of long, but has a great end ing..promise;-). In 2011, at age 29, I noticed a sharp pain when I brushed my teeth. At the time, like many others, I assumed it was dental related. I went to the dentist and they found nothing wrong. As the weeks went on,...

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  • Will I ever go into remission with TN?

    I've had TN for about four months now. I had it last year, coincidently at the same time of the year, but it was not so bad and it disappeared after three months. I'm taking Tegretol (100mg) but seem to be taking more and more every day to stop the pain. The pain is in my jaw/cheek area. Should...

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  • TN with Facial Paralysis? Anyone?

    Hello, I'm new to this site. I've been googling like crazy to find some information on what I'm experiencing and I'm not having much luck. My question is, has anyone had constant pain with facial paralysis? If so, what worked best to aid in the pain and how long did it take for the paralysis...

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  • hello im looking for some support

    Hi...today is my birthday I'm 61 and two days ago was diagnosed with trigeminal neuralgia what a lovely present! I have been put on tegretol and been advised to increase my amitryiptiline at night....im hoping that this helps if live to hear your experiences.of this cruel illness

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  • Lidocaine infusion, can anyone help with side effects

    so I am about 6 weeks into lidocaine infusion therapy. I reacted to it on my skin so I can’t take the patch or rub. I subcontaneously infuse it approx once a week, I have had significant pain reduction, however like every thing else the side effects are a little weird. anyone had brutal fatigue, loss...

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  • Can anyone advise me please?

    Hi, I have been in excruciating pain for almost two years now and was diagnosed late 2017 with trigemenial neuralgia, this is affecting every aspect of my life to the extent that it is almost dibilitating me, I have seen a consultant several times now but keep seeing different ones who give me conflicting...

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  • Atypical Odontalgia

    Hi guys, For the past two months I've suffered with pain which seemed to stem from a crown I had previously had a crown and two root canals on. I also had a strange dull sensastion across my jaw and cheek, sometimes turning into tingling. After 5 dentists, and seemingly no explanation why I was...

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  • Strange sensations

    Doctor suggested Trigeminal Neuralgia four weeks ago after episodes of severe pain in right side of my face and jaw I was given Amitriptyline 10mgs to take at night which have reduced the pain However I am experiencing a lot of numbness and tingling all over my cheek on right side with strange sensations...

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  • High Blood Pressure and TN

    Just read an article which suggests there may be a correlation between high blood pressure and TN. How many fellow sufferers out there also have high blood pressure and are not being treated for same?

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  • Has anybody been diagnosed with SUNA

    i was diagnosed and treated for TN for several years. I  was then seen by a different consultant and rediagnosed with a condition called SUNA.  Almost the same s TN but rarer.    Has anybody been diagnosed with it or have any information about it.

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  • Antibiotics and Tegretol

    Does anyone have any experience of taking the antibiotic Cipro Denk whilst on Tegretol. It’s been dispensed from a local pharmacy abroad (5 day course) and Im not sure how the two meds are going to interact with each other. Thanks.

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  • Ms Beth Le Poidevin

    Hi I am a 73 year old woman just been diagnosed with TN. Fortunately i have never taken medication , do not like what  I read about side effects. my Doctor recommended Steroid....no way ..but she did tell me about CBD balm and oil which I could purchase from a health shop. i am in Lisbon at the...

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  • Hello Introduction, 41 F with ATN

    Hello All,  I lurk the discussions and recently jumped in with a question. But wanted to take a moment to just say hello and introduce myself. My name is Erica. I'm the mother of three. My family has the genetic disease of Ehlers Danlos Type III, hypermobility. It affects the connective tissue...

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  • Is Carbamazepine (Tegretol) ever prescribed to take as PRN?

    Hello all, winter of 2017 I started having what I thought was a toothache... within 24 hours half of my face was drooping and I was in extreme pain. The ER docs couldn't decide if I had Bell's Palsy or Trigeminal Neuralgia. I went to see my Neuro (I have chronic pain from back injuries and migraines,...

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  • Could this be just stress? Or am I having nerve pains?

    I’ve been to the doctor and we settled on TMJ a year ago, however when I chew, it doesn’t make me spasm. He believes it’s mainly stress, but I sleep and do nothing all day that would stress me out and breathe and meditate and relax and yet it still happens and is tense. I have had panic attacks before....

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  • Cyberknife

    Quick question... I had the cyberknife procedure about a month ago. I was not having any pains at the time of the procedure about 3 days later my pain came back ( they usually last about 10days then go away for about 45 days) well I’ve been having pain everyday since the procedure. Is this normal? Also,...

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  • TGN and work

    Ive had tgn for two years, and it’s gradually got worse although thankfully not to the child birth levels of pain some of you have described. Im awaiting mri results, have had teeth out, have seen a neurologist and consequently I’m taking 600mg of carbomazepine twice a day and feel like I’ve been lobotomised...

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  • TN surgery procedures

    I've had severe stabbing jolting throbbing pain in my temple inside my ear behind my eye behind my ear and occasionally in my jaw for over a month constantly. I've seen multiple Drs and finally they are pointing towards TN. I've already tried prednisome and tegretol and haven't had any...

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  • Has anyone gone SCUBA diving with TGN?

    I have had TGN for about a year and it is generally under control with carbamazepine (Tegritol?) Next week I am going to St Lucia where I hope to SCUBA ( I haven't dived for 2 years) Does anyone have any experience with TGN and diving?/ Thanks Wayne

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