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Trigeminal Neuralgia

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  • nnl nnl

    Good morning. I'm new to this group.

    Several years ago, I woke up to terrible pain in the right side of my face. I remember thinking, oh no what's happening? I began to pray. I thought am I having a heart attack? It slowly went away.. Laid back down and went to sleep. Well that same scenario has happened a few times since. …

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  • Need help please

    Hello. Iv been battling chronic debilitating facial pressure/pain in my cheek jaw area on the left side and ear ringing for 4 years now. I'm pretty sure it was caused by two accidents I had both to the left side of my head in 2008 but the symptoms did not start until early 2014 and it has …

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  • Does anyone have Trigeminal Neuralgia headaches?

    Two years ago after acupuncture my TN went into remission.No electrical attacks or extreme pain on side of nose. Nothing but terrible headaches or migraine and searching for answers with doctors.I kept on taking the Tegretol or carbamazepine.Eventually I found out the headaches were ALSO TN. I have …

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  • Is this TN or not?,please advice.

    Hey friends, Firstly,everyone get well soon,ı hope. I am 28 years old,male. Sorry for my english not really good. 3 weeks ago I went to my dentist to get my teeth filled.I did not have too many bruises on my teeth and there was no pain after the treatment. In the following days, my left upper …

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  • So far

    So basically I've been experiencing sharp shooting pains in my mouth, like stabbing, electric shocks. I've experienced this pain 3 times this year now. The first time it came out of nowhere and it lasted around half the day. The second time a few months after it happened again but stayed …

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  • Post-op MVD surgery

    Hi everyone! I posted on here several weeks ago about how I was going to have this surgery done. I had some of the kindest people lift me up with encouraging words and in prayer. I wanted to give an update. I didn't want y'all to think I forgot about all of you! I'm now 2 weeks post op …

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  • Shingles pain in face and teeth

    could I ask how people have coped with shingles in the face that has  affected there teeth. it’s so painful even with taking painkillers and nerve medication can even think about eating so painful only started on Monday so not sure how long this will last . i am going to the Dentist next …

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  • TN 🤗

    Hello, my lovely TN family. Hope your day hasn't been to painful and I send gentle hugs to each one of you, I myself have suffered for 5 years now. At first doctors hadn't a clue what to do with me I was basically a prescription drug Guinea pig, out my face most of the time didn't …

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  • Stem Cell therapy

    Has anyone tried or knows anyone who has tried Stem Cell therapy? I have read from some places on Internet that they are using it now on Trigeminal neuralgia also. Any thoughts on that? 

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  • Is this TN?

    Hello all, Im a 21 y/o male college student  Today I write to you in the lowest point of my life. In october 2017 i experienced a sudden face "popping "feeling followed by a shock sensation to my forehead. It felt cold. I immediately fell into a panic attack because my father …

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  • My ways of coping put a frown on my practitioner

    I've had trigeminal neuralgia with intense itching for about four weeks.    I use Sensodyne toothpaste and Anbesol (which contains Benzocaine)    My doctor does not like this but is not able to give a reason except that my choice of meds is not meant for your face.    …

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  • Atypical trigeminal neuralgia and acupuncture

    Hi was wondering on ppl s thoughts on the use of acupuncture for tn and atn. I was talking to someone and noticed a piercing on her ear the ear part just inside and above tragus she had it done by an acupuncturist for her headaches she hasn't got a formal diagnosis but suffers with frontal …

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  • Tn and loss of taste

    I have been diagnosed with TN and I have lost my taste and my sense of smell is distorted.   I also have muscle jerks in left leg and right hand. Does anyone have these symptoms?

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  • Atypical Facial Pain

    Hi, Everyone! I’m wondering if anyone else has been diagnosed with atypical facial pain? I’ve bad awful pain in my teeth, jaw, cheeks, and even my neck for the last year and a half. Once I was diagnosed, I was given gabapentin and cymbalta to help with the pain. Some days I feel better, then others …

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  • Atypical tn, weird pain relief

    I've had atypical tn for over 6 years and I've looked over so many of these boards over the years, but don't remember ever seeing anything about getting temporary relief from things like mints, halls, or even eating. While the movement in my face can make my pain work, I've always …

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  • Out Of Left Field

    I am not a trigeminal neuralgia (TN) sufferer, nor a doctor, but you brave folks have my sincerest sympathy.  I was studying something (probably unrelated) when my research led me to a century-old book on electro-therapeutics, which I read entirely.  Electro-therapeutics was a medical …

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  • Will I ever go into remission with TN?

    I've had TN for about four months now. I had it last year, coincidently at the same time of the year, but it was not so bad and it disappeared after three months. I'm taking Tegretol (100mg) but seem to be taking more and more every day to stop the pain. The pain is in my jaw/cheek area. …

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  • Dentist Mistake,

    Hi, I’m sharing my story, it might be unique.  When I was researching my pain, I only came across one other story where the diagnosis was TN when it really turned out to be a dental problem.  I’ve waited for about 6 months to be sure that I seem to be at the end of one of the hardest …

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  • Osteopathy?

    I've been seeing an osteopath (about a problem in my shoulder) and when I mentioned the trigeminal neuralgia, he said that he's seen some good results achieved by working on the muscle that comes down the side of the face (can't remember the name).  That made sense to me as when I …

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  • Treatment after 2 years of agony !

    Hello all , i'm not  usually one for forums , but my wife suggested telling someone my story may help both me in my recovery & others suffering with trigeminal neuralgia ..... So here goe's , I was offshore in June 2016 , & started to experience a sharp but short pain in my gum/ …

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  • Seasonal changes & TN

    Hi all.  I've just come from a spcialist appointment and have been officially diagnosed with TN after a 3 week roller coaster of PAIN, doctors appts, and medication. My GP & dentist both suspected as much.  I have been hoping that just maybe it might be something else, like a …

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  • New to trigeminal neuralgia was hoping for some insight

    It all started Wednesday early am when before going to bed was hit by the worst pain I've ever experienced I had very sore, swearing pain and ever 15 minutes or so I would feel the sharp pain kick into my lower molar teeth it seemingly bounced around in the lower jaw and would last about 20-30 …

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  • Stressed ,in pain and frustrated

    Good evening everyone, one year ago I had MVD surgery and I felt so good like I got my life back, but then in July I started getting back those electric shoes together with the headaches and facial pains. My doctor put me back on tegretol but that only puts me to sleep when the effects wear away …

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  • Myelin Sheath Support does it work?

    I have had TN for almost a year and will be seeing a new neurologist at the end of the month.  I am on D3 With K2 which I feel has helped. Recently went on a 5000 mile round trip (driving) out west. I don’t know if it was the altitude or the driving but the pain was excruciating but only while …

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  • Atypical TN Returns

    Hello all, This is actually my mom's story, but I'm trying everything I can think of to help her. It's a 20 year saga, so I'll try to keep it as short as possible. In 1998, my mom (age 42 at the time) woke up one morning with severe, constant burning and stabbing pain in …

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  • Trigeminal Neuralgia TN1 *new diagnosis* Help Please

    I'm a 30 yr old female in good health except minor issues w anemia and over production of estrogen. Symptoms slowly started over past 10 months. Extreme pain for various amounts of time, lasting anywhere from a couple hours to seveal days. Was misdiagnosed by an OBGYN FNP who had put me on …

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  • feeling helpless after hearing I might have TN

    After I went through an initial visit with my Periodontist and all signs were pointing to TN, she went ahead and performed surgery on me to remove all the extra bone growth underneath my gums. It’s been a month pain is now worse my life has completely changed. Being sent to a Neurologist for what …

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  • Atypical Facial Neuralgia Vs Atypical TN

    Hoping I can get a little input on what has been going on with me for three years. Does it sound like I have Atypical TN or Atypical Facial Neuralgia? What is the difference? It started in late 2015 with burning sharp pain and numbness in my teeth, gums, sinus, face. Only on the Left Side. This …

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  • Botox for type 2

    Hi, My Dr wants me to try botox for my TN Type 2. Has anyone done this and if so did it help?  Thanks 

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