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Trigeminal Neuralgia

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  • Tn and loss of taste

    I have been diagnosed with TN and I have lost my taste and my sense of smell is distorted.   I also have muscle jerks in left leg and right hand. Does anyone have these symptoms?

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  • Have you ever seen a neurologist for postherpetic neuralgia?

    It has been suggested to me that I see a neurologist for the neuralgia that I have now after having shingles.  I was told that this indicates that the herpes zoster virus is still in my system and that I could recover faster by seeing a neurologist.    I wanted to know if anyone here...

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  • Pain in one tooth

    Hi,  Can TN cause pain in a localized area? Perhaps just one tooth in general? My dentist, my second dentist, and an endodontist cannot find anything wrong with the tooth. Does anyone else experience the pain more localized as I am? It was a first the first few teeth on the bottom front, and...

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  • So far

    So basically I've been experiencing sharp shooting pains in my mouth, like stabbing, electric shocks. I've experienced this pain 3 times this year now. The first time it came out of nowhere and it lasted around half the day. The second time a few months after it happened again but stayed for...

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  • Botox for type 2

    Hi, My Dr wants me to try botox for my TN Type 2. Has anyone done this and if so did it help?  Thanks 

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  • feeling helpless after hearing I might have TN

    After I went through an initial visit with my Periodontist and all signs were pointing to TN, she went ahead and performed surgery on me to remove all the extra bone growth underneath my gums. It’s been a month pain is now worse my life has completely changed. Being sent to a Neurologist for what they...

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  • TN

    New to the group... I’m so relived to find a platform to discuss TN Most ppl don’t understand or even take the time out to look up what this condition is all about I’ve been diagnosed with TN 5 years ago I’ve had moments of pain free weeks. Past 6 months horror story. The cabamazpine is really kicking...

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  • TN2 with confirmed nerve compression?

    Hi all. I’m 29 years old, female.  I had my first attack of TN late May of this year. I finally got sick of the pain after 10 days and went to the ER. It was absolutely, without a doubt, the worst pain of my life and I’ve had half my bladder removed. Doctor at the ER had trained as a neurologist...

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  • Pain lasts for hours, not minutes? Is this TN?

    Hi everyone. This is my first post here and before yesterday, I had never heard of TN but I have all the symptoms. I got a CT scan and the doctor found nothing so he determined that it must be TN and upon further research of my pain location, it all makes sense. However there are some differences with...

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  • Atypical TN Returns

    Hello all, This is actually my mom's story, but I'm trying everything I can think of to help her. It's a 20 year saga, so I'll try to keep it as short as possible. In 1998, my mom (age 42 at the time) woke up one morning with severe, constant burning and stabbing pain in her...

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  • Trigeminal Neuralgia and SUNA

    I've had Trigeminal Neuralgia for 10 Years and recently saw a different neurologist who suggested I could have SUNA. My recent brain scan clearly shows compression on the Trigeminal nerve and I've been offered the MVD operation. Has anyone had the same diagnosis change or the operation ? ...

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  • How I survived, researched, and overcame Trigeminal Neuralgia

    I'm going to tell my story so it will be kind of long, but has a great end ing..promise;-). In 2011, at age 29, I noticed a sharp pain when I brushed my teeth. At the time, like many others, I assumed it was dental related. I went to the dentist and they found nothing wrong. As the weeks went on,...

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  • Trigeminal Neuralgia TN1 *new diagnosis* Help Please

    I'm a 30 yr old female in good health except minor issues w anemia and over production of estrogen. Symptoms slowly started over past 10 months. Extreme pain for various amounts of time, lasting anywhere from a couple hours to seveal days. Was misdiagnosed by an OBGYN FNP who had put me on Zoloft...

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  • New here

    Hi!I’m new here. I was just diagnosed. I have my first appt at the neurologist tomorrow. My pain is not in my face,it’s in a breach of the Trigeminal nerve that’s in my head and ear. I haven’t found anything about that online. Does anyone here have pain there?Thanks!

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  • Possible Neuralgia?

    The pain started on Tuesday this week, at first I could have sworn my sinuses were playing up. I had pain along my left side of my face: forehead, temple, cheek bone, upper and lower teeth (maybe gum pain?) and jaw.  On Wednesday, the pain moved to the right side of my face. Same areas of pain....

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  • Gum swelling and pain

    Does anyone experience gum pain followed by swelling with TM. Doctors and dentists dont seem to be familiar with the swelling as a symptom. I wear dentures and swelling leads to painful sores

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  • Need some help

    I habe been suffering from TN since 2 -17 of this year. Mine is the upper part of the nerve that any touch to my forhead or hair even causes horrible pain. I am currently on Carbamazepine 400mg 2 xs a day and it is not helping. I am expericing migraines on top like 3 times a week. My question is do any...

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  • Seasonal changes & TN

    Hi all.  I've just come from a spcialist appointment and have been officially diagnosed with TN after a 3 week roller coaster of PAIN, doctors appts, and medication. My GP & dentist both suspected as much.  I have been hoping that just maybe it might be something else, like a tooth...

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  • Just diagnosed - struggling to find support and information

    I was just diagnosed with trigeminal neuralgia. My only support system is my husband. I reached out to the Kansas City contact for the Facial Pain Association but their group only meets every other month, next meeting is in January. The contact did recommend one of their books. And, sure enough, it is...

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  • Myelin Sheath Support does it work?

    I have had TN for almost a year and will be seeing a new neurologist at the end of the month.  I am on D3 With K2 which I feel has helped. Recently went on a 5000 mile round trip (driving) out west. I don’t know if it was the altitude or the driving but the pain was excruciating but only while driving...

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  • My ways of coping put a frown on my practitioner

    I've had trigeminal neuralgia with intense itching for about four weeks.    I use Sensodyne toothpaste and Anbesol (which contains Benzocaine)    My doctor does not like this but is not able to give a reason except that my choice of meds is not meant for your face.    I...

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  • TN

    I have Been suffering for three months with TN but  just got diagnosed. I went to dentist thinking I need a root canal. I did get root canal and no pain relief. They said it was TMJ so had night guard made which was not helping the pain  had increased to 10 never sleeping and I was taking...

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  • The Cure for T N

    I have been without any pain now for 2 months, I am almost 70 this year and too old for playing pranks, this is the lead up too my cure, like you people I have suffered for 4 years, after spending nearly all my pension on cannabis to make the oil too no avail, and high end tablets, I went to the doctors,...

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  • Tegretol for Trigeminal Neuralgia

    Has anyone else tried Tegretol (carbamazepine) and had horrific side effects?  I can't stop vomiting, the room is spinning and the headaches are surreal.  I only took Tegretol for three days and the largest dose was 200mg.  This drug is making my life a living hell.  The best...

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  • Atypical tn, weird pain relief

    I've had atypical tn for over 6 years and I've looked over so many of these boards over the years, but don't remember ever seeing anything about getting temporary relief from things like mints, halls, or even eating. While the movement in my face can make my pain work, I've always had...

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  • Sinus and roof of mouth pain!!!

    Hi I wanted to find out if having sinus issues is commen with tn? I have a runny and congested nose that throbs and burns and stings..I also suffer the same sensations in the roof of my mouth...this is on top of right sided face and teeth pain...I suppose I'm not sure it's tn was looking in to...

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  • TN & turmeric supplements?

    Hi can anyone tell me their experience of taking turmeric supplements for TN pain (my worst is residual in top of left shoulder & that side of neck)? roughly how long does it take for turmeric to give any pain relief & at what dose? thanks in advance x

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  • Will I ever go into remission with TN?

    I've had TN for about four months now. I had it last year, coincidently at the same time of the year, but it was not so bad and it disappeared after three months. I'm taking Tegretol (100mg) but seem to be taking more and more every day to stop the pain. The pain is in my jaw/cheek area. Should...

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  • ongoing TN since sept 17

    Hi I've had TN diagosed sept 17 following intense headaches & burning pain (like shingles) randomly over scalp, facial bones, neck & left shoulder. I am on tegretol which gives moderate reflief, but makes me so tired & kind of foggy. I read somewhere that doctor should refer patients...

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  • Brain shocks

    I've suffered from Trigeminal Neuralgia for some years. I've always gotten face and head shocks. Top of my head to be specific. Well my front side too tooth need a root canal, I went to the Dentist & they gave me Narco & antibiotics. After I finished the prescription my tooth was still...

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  • Pain after sucessful MVD surgery, is it permanent?

    Hi Everyone, I don’t have TN, but my dear sister does. she’s a gentle soul; doesn’t like to search or read posts about TN as reading about people suffering like her makes her pain that much harder to bear. I’m writing here on her behave and only passing the positive things I find to her. My sister...

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  • Help me pls!! TN pain after dental work....

    I had a normal filing & after this it ached for days. I went to my GP whom gave me anti biotics. I went back to dentist who did an xray which was clear of cavities, infection etc. He was baffled. He did more 'work' & during this the pain was excruciating. He said Root Canal was needed...

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  • Stressed ,in pain and frustrated

    Good evening everyone, one year ago I had MVD surgery and I felt so good like I got my life back, but then in July I started getting back those electric shoes together with the headaches and facial pains. My doctor put me back on tegretol but that only puts me to sleep when the effects wear away I'm...

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