Posted , 3 users are following.
Has anyone heard of allergic reaction to the teflon pads after MVD surgery? I have had 2 MVD's which left me with severe 24/7 pain and uncontrollable involuntary movements that twist, pull and squeeze the heck out of my mouth, face and head (only on the surgery side). This started after the 1st MVD. The neurosurgeon didn't know why I was having this issue so he waited a year later to do an exploratory MVD surgery. This made it worse. I now have movements running around 24/7 like a tornado in my mouth, face and head with severe pain. I've been to so many specialists including neurologists, pain management docs, GP, neurosurgeons (about 20 different docs altogether). I've tried acupuncture and massage therapy. I've tried several different homeopathic docs...No one knows nor have heard of this condition. My only thought is that could I be allergic to the teflon because it seems to get worse after the 2nd MVD where the neurosurgeon decided to pad my 7th nerve (facial nerve) as well. The 1st MVD was to pad my 5th nerve (trigeminal nerve). Any input would be greatly appreciate it!
1 like, 4 replies