.....more numbness!
Posted , 9 users are following.
Ok, so I've REALLY been paying attention to the numb/tingly feeling in my feet.
I think I may have it (possibly) figured out!
for the last few days, in the am (prior to dose of prednisone) my feet have been relatively "numb free'. about 1hr after taking pred. the numbness starts up again and continues throughout the entire day/night!
it seems to me this is prednisone related. does this make sense? has anyone else experienced this?
I've been on prednisone for approximately 6mo now, bounced dosage around 15mg....starting (yet again!) another taper today to 14mg.
I'm never quite sure what to anticipate as it's all been such a "bumpy" ride! I only know I'm anxious to stop this medication asap as I've had SO many problems/side effects!
any input/advice would be greatly appreciated.
0 likes, 46 replies
lynda62707
Posted
Btw....I should also add, the numbness has also spread to my hands now!
Vicki200252 lynda62707
Posted
Hi Lynda
I just answered Sami then I seen your post.
My feet are sore and tingly all day and night. Actually at night they feel more like a burning feeling.
Pred doesn't make any difference in my case.
lynda62707 Vicki200252
Posted
yes, there's a slight burning feeling in mine as well. Funny, I'd not thought of that till you mentioned it! I guess that's one more reason this forum's so iinvaluable ...sharing!!
Elijo lynda62707
Posted
Hi Lynda and Vicki, Sounds as if it could be peripheral neuropathy. A possibillity.
Vicki200252 Elijo
Posted
Thank you for info Elijo , I will read all about it now.
lynda62707 Elijo
Posted
going to Google it now! thx. Elijo!....
lynda62707 Vicki200252
Posted
vicki...please let me know how you're doin in the future!
Vicki200252 Elijo
Posted
Hi Elijo
I was finally able to read the info, I do have a few of the symptoms ,I will definately show the doc what I have read.
Thank you again
mary19068 lynda62707
Posted
Hi lynda62707
Sorry to hear you are experiencing tingling and burning in your feet. I didn't experience that whilst on preds. Have sent a list of meds that cause Peripheral Neuropathy....hope you can get to the bottom of it it not a nice sensation. B12 deficiency can cause tingling have you had your B12 checked?
lynda62707 mary19068
Posted
hi Mary...thanks to elijo, I googled peripheral neuropathy and Omg....I HAD 8 out of 10 of the symptoms (big time!).
so low and behold....yet ONE more thing to be concerned about!....
I can't Deal!😱😖
mary19068 lynda62707
Posted
Hi lynda62707
Oh no!...this is how it goes you will find as you go along another side effect pops into the arena. They hit you out of the blue. I was getting them from all sides. Ok, the pain of PMR has been controlled by pred wonderful!😊🤗 but what is the point if you have a ton of other maladies to deal with, some of which are more intolerable than PMR pain. Such a merry go round of side effects. I do feel for you lynda and all the members who are going through it., but fight the good fight..hang on in there and slowly taper off pred see yourself this time next year😁...you may not be fully rid of PMR, but you will only have that to deal with...not a myriad of side effects with it!..be strong we are all made of strong stuff when we need it...keep the faith!...heaps of loving thoughts and the kindest of wishes to you and all the members on the forum who are dealing with this malady....👍💞
(by the way did you notice preds were not on that list of meds that causes PN)...
lynda62707 mary19068
Posted
lol mary....truth be told, I was unable to read the list if meds you sent me (due to the condition of my eyesight right now!😖) it was just too small to see! Sorry😭....
my phone's also on the "fritz" right now, so it's making everything very difficult as far as typing and performance.....Ughhh!
mary19068 lynda62707
Posted
Hi lynda62707
Awwww sorry lynda wasn't thinking about your eyes and cataracts. Can you not zoom in on your fone screen with thumb and forefinger?.....not long now before your eye op you will be able to see clearer after that..have a good weekend...👍💕
lynda62707 mary19068
Posted
I know mary! surgery's on 12/10😖....I'm Super scared and anxious....I'm not "keen" on someone up in my face...hence my DENTAL PHOBIA!! I suspect it harkens back to a very Scary tonsillectomy I had when I was 4yrs old...and yes, I remember it Well...in full detail!
in any case, hopefully I'll see better!😁 fingers crossed!!
Elijo lynda62707
Posted
Try to relax, They have improved so much since you had your tonsillectomy. My husband had a endoarterectomy last week, good chance of a stroke, and did fine and back to normal. They have improved surgery so much! Try to relax as much as you can. It will be just fine!!!
lynda62707 Elijo
Posted
thank you elijo....trying to hang in there! what Other choice do I have?? LOL
Elijo lynda62707
Posted
Your choice is to remain calm and have faith. It really helps. Take lots of deep breaths (really deep). Your WILL be fine! I feel it!
mary19068 lynda62707
Posted
Hi lynda62707
Stop fretting! You wont look back.(scuse the pun). My friend had her cataracts sorted recently and said it was marvellous....she even asked the surgeon."is it done yet?" he said yes "all done" she couldn't believe it it took no time at all, no pain and no probs....you'll be fine with a new set of eyes....👀👍
lynda62707 Elijo
Posted
Lol elijo! ...deep breaths are difficult with a paralyzed diaphragm! OMG...what a "hot mess" am I??😱😖😵😒
lynda62707 mary19068
Posted
DEAR Mary....should I look at the time in surgery as a time to REST?!
Maybe I should be looking forward to this!😁😏
mary19068 lynda62707
Posted
Hi lynda62707
How do you mean a "paralyzed diaphragm?"Yes look at it as a stroll in the park taking in the fresh air and scenery on a beautiful sun shiney day.....🐕🌱⚘🌴🌳...
mary19068
Posted
Hi lynda62707
By "Paralyzed Diaphragm" do you mean a general anaesthetic? because a cataract op only requires local anaesthetic via eye drops which deaden the eye. You are fully awake and it takes 15-20 mins approx...job done!😊👏🤗
lynda62707 mary19068
Posted
hiya Mary...I've GOT a paralyzed diaphram due to a medical procedure I had done about 6yrs ago (to clamp off a bleeding ulcer)... I had 11units of blood transfused for that "little number! 😰
In any case, my Phrenic nerve was damaged, and now now I've got limited lung compassity, ( hence my reference to not being able to take a deep breath!)
Yes indeedy, we've ALL got our Stories!
Just keep Swimming, swimming, swimming!🐟🐟🐟
EileenH lynda62707
Posted
Hardly much of a rest - as Mary says, you are up and about in well under half an hour!!!!
mary19068 lynda62707
Posted
Hi lynda62707
Wow lynda you've been through it haven't you?....so i would assume you cannot get overly stressed because it would affect your breathing capacity, just stay calm and be a coolcase, the op will be over in no time. So the breathlessness brought on by pred can be extremely troublesome to you...if it don't rain it pours...my good thoughts are with you lynda, take one day at a time...😍👍💟