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.....more numbness!

Posted , 9 users are following.

lynda62707
lynda62707

Ok, so I've REALLY been paying attention to the numb/tingly feeling in my feet.

I think I may have it (possibly) figured out!

for the last few days, in the am (prior to dose of prednisone) my feet have been relatively "numb free'. about 1hr after taking pred. the numbness starts up again and continues throughout the entire day/night!

it seems to me this is prednisone related. does this make sense? has anyone else experienced this?

I've been on prednisone for approximately 6mo now, bounced dosage around 15mg....starting (yet again!) another taper today to 14mg.

I'm never quite sure what to anticipate as it's all been such a "bumpy" ride! I only know I'm anxious to stop this medication asap as I've had SO many problems/side effects!

any input/advice would be greatly appreciated.

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  • EileenH
    EileenH lynda62707

    Posted

    Pred can lead to neuropathies, yes. It is a listed side effect, albeit pretty rare. But that doesn't mean it doesn't happen.

    There is nothing to stop you stopping the pred by tapering slowly to zero - no-one forces you to take it. Just remember that if you do you will get the PMR symptoms back in force. And PMR lasts a lot longer than 6 months and unmanaged inflammation has consequences of its own.

    If you really find taking pred so awful, then you have to try the options offered by your doctors such as methotrexate. A majority of people on the forums with a PMR diagnosis have found it didn't help or they couldn't cope with its side effects - but the only way you can know if it applies to you is to try it, not reject the idea. You are in the USA - Actemra may be an option for you . It isn't for anyone with PMR outside the USA. So consider that.

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