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‘Palpable Orbital Mass’ plus ‘ Suspicious RNFL thinning nasally on OCT’

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maria21458
maria21458

Hi all,

Feel like this is going to be the longest two weeks ever.

I was referred to hospital by my optician. My left eyelid has been sagging and there's a lump behind it. I saw the Opthamologist at the hospital who gave drops, turned my eyelids inside out etc.

She said it is a firm palpable orbital mass that stems back into my eye socket. It's not attached to the eyelids or glands in my eye. She got another doctor to write the notes whilst she was examining me. She said she could 'palpate 11mm diameter'. It does feel like quite a big lump but thats probably because space is tight in that area anyway. She also said it's pressing on my eyeball.

In addition, I have just seen a letter sent to my GP which says they saw 'suspicious RNFL thinning nasally on OCT but symmetrical'.

My visual field test is recorded as 'temporal reduced field- left eye only'. It says 'suspected orbital lesion'.

I have two 'urgent' CT scans booked: head and orbits with contrast.

I have to repeat these tests again at the eye hospital in 4 days. The letter says 'if any signs of progression to expedite management'.

I also have tingling & numbness in my left cheek.

Does anyone else have any experience of situations like this? I'm 36 with two young children so naturally worried. I lost my Mum when I was young (she had brain tumours); my mind is probably putting 2 + 2 together and making 10!! Thanks guys 😃

0 likes, 3 replies

3 Replies

  • maria21458
    maria21458

    Posted

    Should also say my 2 scans are the Saturday after next.

  • clayton19233
    clayton19233 maria21458

    Edited

    being worried is normal - anyone would be.

    All i can say is try to be patient and don't rush any eye procedure. Get a second or third opinion as it may just be an infection. And if an eye procedure is necessary don't just trust the doctors, ask questions because these procedures cannot be undone. read any disclosure statements and understand each risk listed.

    i pray for good health - your mom is watching over you.

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