**UPDATE** Dermatologist diagnoses of Male Genital Lichen Sclerosus
Posted , 11 users are following.
Hi all, you may or may not have read my forum post "Dermatologist diagnoses of Chronic Non specific Balanoposthitis". Today i had a consultation with the top genital skin dermatologist in the UK, his name is Professor Bunker. Prior to my appointment, i sent the professor 34 photos of my condition, and explained all symptoms that accompany and have accompanied it for the 4 months this has troubled me. FINALLY, i now have my diagnoses as the title suggests. The professor was extremely down to earth and tremendously knowledgable. I was shocked by the diagnoses of LS, every photograph you see on the internet is of horrific white scarring and terrible looking lesions. i have none of these. in fact, every time ive been examined physically i have been told that the irritation can hardly be seen, and i have to show pictures of my penis at its worst regardless. Professor Bunker said he sees many conditions that manifest themselves like mine. very subtle inflammation as he calls it, but still LS none the less. He said often the diagnoses is missed because the majority of Dermatologists/urologists/GP's will only diagnose when the absolute tell tail signs are there, for example white scarred skin that feels different to the rest of the skin. He explained that he sees between 50-60 penises every week and LS is a very common diagnoses for him. he explained to me that 60/70% of men with LS send the disease into remission with a short course of ultra potent topical steroid. He has suggested that a months use of Dermovate ointment will be sufficient for the severity of my LS. He expects all symptoms to be totally gone by the end of this course of treatment, which is of course encouraging. The Professor has published books on the matter and if you're interested, i suggest you research them. The professor has assured me that in the 30 years he has been practising, all patients with my severity of disease (mild), he has in his words "cured". the issue with treating the disease come when the disease is further advanced and subsequent scarring has taken place etc. It feels like a strange day for me, but im happy to finally have a diagnoses. I start treatment with the Dermovate ointment tomorrow and hopefully it'll clear up my symptoms. feel free to ask any questions you'd like.
1 like, 13 replies
Wee_Dugie terry01090
Edited
Hi Terry, many thanks for posting this. It would be really helpful if you could post a hot link to your original Forum Post so that future readers who have similar symptoms to you can check these against what it is they have going on.
terry01090 Wee_Dugie
Edited
no worries Wee-Dug.
please see below anyone interested, my journey in coming to my diagnoses. I appreciate that most people want to see a picture so that they can compare to their own situation. My best advice is to see a genital skin specialist who sees these issues on a daily basis.
https://patient.info/forums/discuss/dermatologist-diagnoses-of-chronic-non-specific-balanoposthitis-736049?page=0#3726253
TJ68 terry01090
Posted
hi, just wondered how you got on with the dermovate and if it has helped?
terry01090 TJ68
Posted
see below replies mate!
TJ68 terry01090
Posted
Hi, I saw Prof Bunker about a month ago as well, same diagnosis and exactly the same has happened, no change with the Dermovate - Which dermatologist did he recommend you see? Thanks
artie73794 terry01090
Posted
Hi Terry,
Thank you very much for posting this.
I read your original post and I seem to have the exact same symptoms as you.
Has the Dermovate ointment improved your condition?
terry01090 artie73794
Posted
hi mate, please see my reply below. ive seen pictures of your issue and although one portion of my irritation is in a similar position to yours, mine is a lot less red! have you been using any steroid creams?
maxpower2020 terry01090
Posted
Hi Terry,
I would also be interested on an update in regards to results with the dermovate.
Additionally I was wondering if you could provide a photo of what your glans looks like. As I looked at your original post and couldn't find a photo there either.
Thanks!
terry01090 maxpower2020
Posted
hi guys, ill type the same message out to all of you as youve all asked the same question virtually. So after my initial diagnoses of LS around 2 months ago, the situation has remained pretty similar. The Dermovate didnt do anything for me. I'm back using the Trimovate cream once daily and my symptoms seem to be relatively stable. I updated Professor Bunker that my symptoms had not improved after a months use of Dermovate and he basically said to me that i'd likely need a circumcision, this cures lichen sclerosus in around 80-90% of men. Because i had only sent him pictures and then had a telephone consultation, he wanted me to see a dermatologist that specialises in genital skin disorders in person before making my decision on having a circumcision. i think he doubted his initial diagnoses, most people with Lichen Sclerosus will get some relief from dermovate. i also dont have the usual lichen sclerosus symptoms, i have no white scarring etc just mild redness. To be honest it truly doesnt affect me much currently, i can have sex regularly with no pain. things are a little redder for a while after sex but it calms down pretty quickly and settles back into what has become my new normal. So anyway, Professor Bunker recommended someone to see in London that he had trained. I saw him in person 3 weeks ago, he basically said that what i have is extremely mild and ill be able to manage it, at this moment in time he does not recommend a circumcision. he said that clinically, he did not see any definitive signs of LS, but its still a possibility that i have this. he advised that i may just have a non specific balanitis that may go away on its own eventually. for the last 3 weeks i have been using Trimovate every morning and making sure i use an emollient after urination, as per professor Bunkers instructions. they want me to follow up with them in 4 months time to see how im getting on. I think the biggest thing in my mind just making sure it doesnt get any worse, if and when it does, ill have a circumcision. i know what i have is mild compared with some that ive seen on here, i just want to keep it that way! you may be able to get an appointment with professor bunker, but it will be a telephone appointment and youll have to send him photos of your condition first. Im not willing to put any photos of my issue on here unfortunately! let me know if you have any questions.
terry01090 maxpower2020
Posted
i think the best advice i can give is to move heaven and earth to see a dermatologist that specialises in male genital skin issues in person. these guys will have seen 100's of penises and will likely know what your issue is. they'll also be able to tell you how severe your condition is compared with others. i was happy to hear in my previous consultation that i really shouldnt be worrying about my issue. He said he has guys come in that have far more severe issues and they dont seem to be too worries, he said im the opposite, i have a very mild issue and i worry extensively! i guess ill just see what the next 4 months bring before my follow with professor Bunker (hopefully in person, if its only a telephone consultation then ill wait longer providing my condition continues to be stable), hopefully it goes away. i can just about live with it at the moment in the absence of any pain. obviously the mild redness is annoying but my partner hasnt even noticed it yet so it clearly cant be that bloody bad haha!
artie73794 terry01090
Posted
Sorry to hear that the Dermovate didn't help. For what it's worth, from your original post, I had similar symptoms to your's. Somebody on the forum recommended Muciprocin. I got a prescription for it from my doctor and have been using it for about a week now, and it's had the most impact so far (I've also tried Lamisil, Ketozanole, Hydrocortisone, Clotrimizole with no success). My glans is still red, but it's starting to feel more "normal". Cheers.
Jc2020 terry01090
Posted
Hi bro can u help me with my problem i had some spots on my penile area
devin41836 terry01090
Posted
hey Terry! I am a young male and i believe i have LS. Can you inform me on how you are doing over the last handful of months? I believe i do not have a terrible case as it is on my foreskin but i still have complete mobility of my foreskin and there are not raise spots, just some white and red inflammation. Thanks and hope you are staying safe and well!