? what is it......

Unfortunately without an assessment from your neuro it would be hard to say exactly what it is. There are many neuropathis illnesses that can cause things like this. And whilst it is very frustrating I can also understand how you feel. When I had pain in my left eye it lasted two days and was more painful when I moved the eye, thus I spent two days deliberatley trying to keep it still, to no avail. After the two days I woke up at 3am in the morning with no vision in that eye. It returned two days later. I still get eye pain now. Some people would say it may be optic neuritis. As far as I know only an eye specialist or MRI scan would confirm it and that would be one of the earliest symptoms of MS. But this does in no way mean you have MS, it could be something completely different. I have a lot of your symptoms and have kept a diary over the last two years. At the begining of July when my balance was severely effected my GP got me an urgent appointment(and taking all past symptoms into account) and had me a neuro appointment within three weeks. Since then I have had bloods done, Nerve conduction studdies and head, neck and spine MRIs. I am awaiting my next appointment for results. I am a fibromyalgia sufferer at chronic level too, so my symptoms could literally be an overlap. If it helps look it up and see if anything matches and check for things that do not match. I would suggest if things get significanltly worse, like your balance fails you, you start falling down, then you could pop to A&E. But even a follow up from that could take time. i wish you well and just hang in there. Will be thinking of you.

Thanks LindaG since my earlier post i have been to see a neurologist for a consultation if you could even call it that. It lasted a whole 5 mins (and i'm not joking) he wouldn't take my record of symptoms and told me to give him a brief outline. He then proceeded to give me a full examination which was checking my eyes, reflexes and pricking my legs, arms, chest and back with a pin to see if i could feel it. The outcome was go home time is a good healer and if i develop numbness then they will start to test by a scan? Obviously i went back to my GP the next day i saw a locum and she is running a set of blood tests of which im going for tomorrow, thankfully someone is trying to find out whats wrong. Since then my feet seem to fall asleep quite often. I will take your advice though and if it gets any worse i will go to a&e. The neurologist i saw was at a private clinic which my local hospital referred me too because their waiting lists were so long. If that's the quality of private i'll stick to NHS and wait no matter how long. I do seem to have some of the same symptoms but not all thankfully. I hope all goes well with yourself too, and I'll be keeping you in my thoughts also. Take care

Wow, a whole five minutes. WOnders never cease. My very first neuro(about two yeara ago) saw me for 20 minutes and then discharged me. I often wonder how they can make a diagnoses in such a short time and how they expect you to be able to tell them everything too. Hope you get some answers from the bloods, or if no answers they take it further. No one deserves to be left in limbo. Will be thinking of you too. I cannot always be here but will check in every day or so if I can xxxx Lin

Hi anniemc, you've obviously started on the Neuro slog but hopefuly eventually you may get some answers. All you have said is very commion I'm afraid

I know it's off tack but have you had your eyes tested recently?

You eyes would have nothing to do with your other symptoms in your arms and legs etc; but it may be worth having a test. There are several eye conditions that give you flashing lights, colourful halo's, pain in one or both eyes and headaches. You may have a neuro condition and an eye problem.

Just a thought.

Good luck whatever happens, hope you get some answers soon, Fanny Jane.

LindaG: I was lucky i got 5 mins the poor man in front of me got 3mins there was 5 of us seen within 30mins and noone was brought back for follow up?? Go figure. Looks more like creaming their consultancy fee...

Fanny Jane: I had my eyes tested in June and all was ok. It was handy for me for i was working in an opticians at the time lol.

Will keep you posted with what develop from the results etc should get some back in 2 wks or so..

thanks

Just to report back after a lot of blood tests results have come back showing i've got artritis. My inflammation levels are very high. They have ruled out rheumatoid thankfully. My fingers are badly swollen now and i've gone up 2 ring sizes already.Still have the rest of the symptoms but at least i know what;'s causing them.

Hi Anniemc, thank you for getting back to us, it's always nice to hear how things are progressing.

I am really sorry that you have been diagnosed with arthritis but not surprised as it was one of the things that crossed my mind. I didn't say anything as it could be taken in a negative way and you had been reffered to a neuro who would have picked it up in his/her investigations.

I also have severe arthritis and have had most of my life. I have Rheumatoid and Osteo arthritis. I have had 6 surgeries so far so really do know how you are feeling. I use a hand aid to type on the computer because my hands are so bad.

I can recommend a website I belong to called Arthritis Care, it has a wonderful forum that is split into lots of segments. It's really helpful and informative. Just type into Google, arthritis care forum and it will come up.There are loads of people there in exactly the same position as you that understand and can give you support.

Many good wishes to you as you go through the hoops of consultants and treatments, it is sometimes a frustrating and painful journey. Take very good care of yourself, Fanny Jane.

thanks fanny jane, omg you have been through so much, puts mine minor in comparison. I'm really thankful for your understanding and i will take advantage of the website. Best regards Anniemc.

Hi anniemc, still here so thank you for your kind words. Good luck and hope you get on ok.

Fanny Jane.