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I had my gallbladder removed back in 2020. Bile duct was blocked x 3 stones, very unhappy liver, etc. I do think surgery was the right decision and I remember being willing to do almost anything to make the pain stop . However, no one, not the gastroenterologist, not the surgeon, none of the nurses, warned me that chronic urgent diarrhea is a not so uncommon side effect. I even asked them about changes to diet, etc and they all said I would go back to normal. Ha.
I take colestipol daily and it usually does wonders. But. It has raised my triglycerides and long term use is in doubt which would only leave Imodium as my relief. And purposefully constipating yourself without knowing when it will wear off is anxiety inducing to say the least ESPECIALLY when you're dealing with urgent crap-your-pants diarrhea. There have been RARE days where I forget to take colestipol and manage to go the whole day with no diarrhea and only mild abdominal cramping - but I pretty much didn't eat on those days (I think) so nothing to trigger my intestines. Haven't made it more than 24 hours without it though and I always carry back up Imodium in my purse.
Has ANYONE come back from this? Where their liver/small intestines get their act together 1-2 years later? Or is my window of hope long gone?
The doctors Ive talked to about this are utterly unconcerned about how this impacts quality of life. I'm about to ask them to just tie off or re-route my bile ducts (don't care where or how).
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