1 day into this

Posted , 4 users are following.

Is it normal to have "attacks?" Yesterday when I developed this, I would rate it at a 9/10 (10/10 being worst) and by this afternoon I would consider it a 2/10. should I be prepared for another "episode?"

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  • Posted

    Yes that's how it is for me, it started for me over a month ago now with a full blown panic attack. I have some days where it's barely there like you said a 2/10 just a niggling thing you can tune out but then some days are really bad. I woke up this morning a 2/10 and as the days progressed it's got worse and worse I'm now sat on the verge of panic because it feels like my whole throat is swollen/full of phlegm I'm at 8-9/10 right now tryin to calm myself down.

    Like I said I'm over a month in now and when attacks like this come it still feels like there's something seriously wrong with me and my throat will eventually close and I'll stop being able to breathe no matter how much I tell myself it's just anxiety

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  • Posted

    Yes, thats how it is for me. I'm almost 3 years in and some days aren't as bad as others. I find that I don't notice it when I'm with friends. When it's really bad I sip peppermint tea. It seems to help a little.

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  • Posted

    Thank you for all of your wonderful responses.

    Why is this not talked about in the world? My family thinks that I am crazy.

    I have had a headache since onset of symptoms. This might not be related, just checking? Anybody else?

    Anything else that I should be expecting in the coming days?

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    • Posted

      My local ent doc did not look for this or does not know about this. They looked at my vocal cords and said they were fine but told me i have dysfunctional vocal cords and sent me to a speech therapist for the breathing exercises. Because this did not help I went to mayo. They looked at my vocal cords and said they we shifted to one side and when they see this shift they feel cause was from the virus I had. I asked mayo how many patients like me and they said about 30. I have had over 40k in deductibles and copays in last 7 years. Who can afford that! I bet there are many with these symptoms who don't seek treatment or who are told its from anxiety. And it could be but I am just saying there are only a few specialists who look for this. That's why you have to ask the ent dept if they Botox vocal cords if they don't they don't know about this condition. I found my own specialists. When I told my doctor mayo was going to Botox my vocal cords he laughed and said well I guess you won't ever talk again they don't do that. Well obviously this doc does not know about it. If you go on you tube and put on largeness sensory neuropathy you will find a video my a doctor fr the Chicago suburbs area who talks about this. He said in Jo's video he had treated over 500 patients and that the medical community does not recognize this condition. There is a pert 2 video but I have not been able to find it. Some of you may have the cause be anxiety but some of you may be like me. Botox helps me so I will continue this treatment because there is no other treatment. For those of you who don't go my route you can ask the the drug tramdol they may not want to give it to you. It's works on the nerves but i think it can be addicting not really sure. If hey will give you a month. Try 25mg at first see if this helps if not go to 50 mgs. If you get some relief them I think this drugs works on nerves maybe your issue is nerve related like mine? Just a thought

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    • Posted

      Wow. This is blowing my mind. So your symptom was the lump sensation in your throat? Did you have any other symptoms? Does eating temperarily relieve it? I'm wondering if this is what I'm dealing with?

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    • Posted

      About 18 years ago I got a virus. Cough cold swollen glands fever. All symptoms went away eventually but I kept the cough. Finally after months of coughing I went to dr. They checked for asthma acid reflux amongst other things scoped my throat. Dr said all in my head. With the cough I had Sensations of pin pricks in my throat which caused my eyes to water! I was checked for allergies. Then was told it was all in my head. I said yes all I have to do is think about it and make my eyes water. Then he said he felt the virus attacked the nerves in my throat and it hypersensitive. But gave me no treatment. So years went by and I had a neck fusion. They went in front of neck and back. That was 5 years ago then 2,years ago I had bypass surgery. It was done because I developed shortness of breath.?during bypass they had a hard time putting tube down throat due to fusion couldn't cock neck back so I think they rammed it so to speak. Vocal cords can be praylzed from this. Anyway after surgery my cough became way worse. My sob did not get better. Went to ent said I have vocal cord dysfunction and do breathing exercises, after a year ended up at mayo. Having a shift in vocal cords has been brought on by other patients from a virus. Intubating me may have made it worse. My main symptom is coughing a thousand times a day. I have shortness of breath upon exertion which could be from vocal cord dysfunction meaning they are suppose to stay open when you breath in and mine may be partially closed. I have dry patch feelings o can feel sinus drainage at a higher sensitive that others because i am hypersensitive I feel pins or needles sticking in my throat that makes my eyes water. All these sensations make me want to cough it away. Sometimes not often I feel a tightening of my throat and that happens 2 to 3 times a week maybe and I cook that away. I will have 20 minute coughing attaches until I gag and p*ss my pants lol. It's hard to explain symptoms to my dr. It's a constant discomfort kind of like a deep sore throat. Taking deep breaths in and out feels like I am over stretching a muscle or something but that makes me cough.

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    • Posted

      Sorry for the typos hope you can figure out what I was trying to say. I never really had a lump feeling in my throat but if I have something really spicy i get throat freeze must be a big spasm of some sort so I stay away from Icey drinks. That's one thing o can control! I feel sinus drainage I feel dry spot and these change I don't have the pin feeling constantly I don't have the sry spot constantly. The doctor my Chicago laryngeal sensory neuropathy is like someone who had shingles and they cleared up but the skin is still sensitive from the nerve endings. Research and read info is out there. Good luck to you all. i most likely will have this condition the rest of my life. Hopefully I can get 2 or 3 Botox inj with high dose annually that will help me. Hang in there ya'all

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