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Hello people as you know I post monthly updates on here and also see how others are coping with this horrific illness. So I thought as its almost one year ago 23/06/17, since I got it ill share my story in depth or try to anyway. So here goes on the evening of June 22nd 2017 I felt really ill I thought maybe I had caught a cold or something so I didn't think too much of it. Knowing I only had to work Friday I went bed having taken some paracetamol and thought just one day then I can chill. How wrong I was I wake up on the Friday and feel like I have been hit by a train, absolutely messed up I could hardly stand up. I made it to the bathroom had a shower then I collapsed in the bathroom. Amazingly I just still thought it was a cold, I went work and I was suffering all day with what felt like a Flu that was 100 times worse than flu. My eyes were red I ached all over colleagues were saying you look dreadful and I did. That day after work I got home around 4 pm. I went straight into bed not showering or eating and I thought to myself I should be fine if I rest. Wow it just got worse and worse. I went sleep at 5pm on the 23rd and didn't wake up until 6 pm on the 24th. Slept for 25 hours but felt absolutely horrible. I was also now covered in sweat despite the weather not being that hot. My throat was on fire and I could hardly talk as it was too painful. I knew then that this was no cold or flu, on the Sunday I remained in bed all day then around 3.30 I decided to go to my local NHS walk in centre. I was gone I could hardly walk and was so weak. In the waiting room I was sitting there and hoping id be seen soon. I then collapsed in the waiting room and a ambulance was called. I must have blacked out because the next thing I know I was laying on the bed inside the centre. With the ambulance staff asking if I was Okay. They got me a wheelchair as I couldn't physically walk at all I had no energy whatsoever and As I struggled in the chair I couldn't lift my legs on so they were dragging on the floor as they pushed me. In the ambulance I was put on a stretcher where I felt hopeless and just lay there. I was given paracetamol which calmed me a bit. We arrive at Leicester Royal infirmary where I am put in a bay and given blood tests. I thought to myself at least ill be okay here they'll just give me a pill or something to help. Nope they just said I had a small infection and sent me home.
The hell begins from there.
A few days after the hospital visit I felt well enough to go work I knew I wasn't a 100% but I managed. I began to notice very odd things though I developed crippling anxiety and depression however the anxiety was the main problem. id be doing basic things like crossing roads and then it would rush over me and be horrendous despite not ever suffering with stuff like that before. I also had extreme brain fog where I couldn't process any thoughts properly all just a blur. I also had dry skin keep appearing on my nose and forehead constantly. Then the worse thing came along. I developed a sort of vertigo not room spin but it felt like I was off balance or on a boat and this plagued me for months and months. The depression set in wondering why I felt so ill 24/7. At my darkest moments I remember I started banging my head against my wardrobe door until I knocked my self out and woke up in a pitch black house at 2 am. on august the 14th 2017 I went bed having watched a film. One hour later I woke up to I think the scariest night of my life I started convulsing violently and my head felt like it was on fire. It was a panic attack out of nowhere and it lasted throughout the night. I went hospital in the morning so desperate to get help. I had blood tests x rays the lot. after waiting four hours the Dr said all your tests were fine. I was shocked to learn that because I knew I wasn't OK at all. I asked him about the constant dizziness so he prescribed me a stematil pill which all that did was make me feel tired.
I was so down I had to keep going work I never wanted to go on the sick so I suffered more and more. The blood tests came back and revealed my thyroid levels weren't right. I thought wow okay maybe we getting somewhere now. But no the Dr said the level wasn't that bad to require medication but she would give me propranolol to help the anxiety. The first one I took actually gave me a panic attack but hey ho they did help eventually. I still had constant dizziness and I hardly went out apart from going work. In December after multiple blood tests the Dr finally started me on levothyroxine 50mcg.
Christmas until now.
After starting the thyroid medication it was like a revelation, the dizziness went away I felt less tired and my mood lifted. Don't get me wrong I still wasn't well I was around 60% but it felt like finally I was getting somewhere. At Christmas I did catch Flu though which made me bedridden for a week or so. In January I felt more and more of me coming back still got the odd downer though. In February I had a bit of a setback and the dizziness came back. But only for a few days though. March April and May were pretty okay too. Its now June 17th. I feel around 80% better theres still days I feel a bit bad but its nothing like the hell of last year.
I found this site after typing in many of my symptoms and Im so glad I did the support other people give each other on here is brilliant thank you for all your advice and guidance especially the main man Craig.
Im still taking vitamins but not as many as before.
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