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Hi, i am a 21 year old male and i was out at the weekends a lot beginning of last year, making the most of the time i missed out on during covid. Then i noticed neck glands swelling up in the middle of april. I had really bad tonsilitis and then tested for epstein barr virus. I don't even feel like the same person I did this time last year. I could go out every weekend with no issues and now even just a full working week is enough to wipe me out. I had to cancel a lot of plans over the summer and be very careful picking and choosing what activities i did with the energy i had but I always had read online you will be okay after 6 months and that isn't the case. Upon reading other peoples experiences with this it seems that it is massively downplayed by GPs and they don't seem to understand the impact it has on your whole body so i thought i'd share my symptoms since the diagnosis.
Brain Fog - comes and goes in waves but can be horrendous
Fatigue - Felt like i have had 1 hours of sleep even if i had 10
Lower general mood - Thinking theres improvement but constantly being knocked back is draining
Aches/Pains - Waking up like i have done a triathlon the day before when i did nothing
Swollen glands - Never disappeared in my neck on one side. A bit smaller but Sometimes ache but have had an ultrasound which came back fine.
Trouble sleeping - never had an issue with this beforehand and now always wake up in the night for months and months which makes symptoms worse.
Itchy Skin - Randomly all over body which comes and goes in waves
Sensitivity to light - This seems to have improved a bit but sometimes made my eyes burn
Sinus problems - had sinus issues around august which havent gone away and sometimes cause pressure headaches, antibiotics didnt work for it.
Tremors/tingling - This is also a little bit better but happened for a fair few months mainly in jaw and hands
Lower left abdominal pain
Some symptoms pass and new ones occur over time it seems
Getting covid also seemed to reactivate things
I have been back to the doctors a few times and just get told im a healthy male and the repeat blood tests are all fine and just say "its the glandular fever or stress". I felt very alone as the nhs website has no mention of anything like this and seeing the stories on here helps so i am trying to add to that.
I have a situation with a very ill parent at home so i feel bad complaining about myself when thats nothing in comparison.
I hope one day i can go out without worry of being wiped out for a while afterwards and get back to enjoying my young life but not sure what to try and health anxiety from the situation at home makes things worse.
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