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I'm a 47 yr old woman and 10 months ago I had TKR of my right knee. I'm also an American. I had a tumor in my knee for seven years and didn't know about it. I was miss diagnosed for 7years. Many dr's told me it was just arthritis no one ever did a MRI. Finally the pain got so bad and the tumor got so big that it was bulging out of the front and back of my knee. So I went to my orthopedic Dr. that fixed my foot after a horrible motorcycle accident when I was 16. He immediately ordered a MRI. The tumor is called pigmented vilo nodular sinovits PVNS. It was full of blood and after this monstrosity was removed it was already to late. It had cut off the blood supply to my femur and the bone was dying rapidly. My cartilage was completely gone. I was in so much pain that I wanted them to cut off my leg. Instead they sent me to a specialist orthopedic surgeon. One visit he looked at my MRI and 3 days later I had a TKR. The bone was cut out so 1\4th of my femur is gone. Along with my entire knee. This stupid tumor is so rare in America and I was one of the few who got it. Lucky me huh? I have been in therapy for 10 months. My knee is sound but the soft tissue around it is thrashed. I have 2 damaged nerves and my hamstring is severely damaged. I'm in pain management and I get horrible spasms thru my knee. Now the good news is that I can walk. Just not for too long, can't sit for too long, and can't sleep too long. To top it off I pulled a muscle in my back during therapy. This has been a long fight but I intend to win. Has anyone else ever had this happen to them or knows of someone who has?? If so how did they get thru this?? Thank you for reading my story. God bless.
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