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Hey all. Wanted to give an update at what it's like 10 months in with Mono.
So much has happened this last month. I had an inconclusive Lyme test. First test was positive but the Western Blot was negative. So I went to another specialist- an ND who specializes in auto immune and chronic illness. She ruled my Lyme test negative but was sure I was suffering from an auto immune disease which was making the mono linger. So a ton of tests later and NOPE! I fooled another doc. But I do really like her and we just did a salivary cortisol test to see if Mono screwed up my adrenals. Still waiting on that. And in the meantime she put me on a new supplement called Berberine. It does a lot of wonderful things for the body and we are using it to kill all the bad bacteria in my gut and then will build back up with probiotics. This will hopefully make my immune system run great and stop all this stupid inflammation.
So- the last few months have been ok. I've had good days and medium days. Mostly medium days where I'm either mildl-moderatley fatigued or wired and anxious and have brain fog. It's bizarre. There are a few good days with barely any symptoms which is great. But I usually end up fatigued with muscle weakness a few days later. No idea why.
I can't help thinking that I do have Lyme and how it's going to be this HUGE uphill battle to get rid of it because we caught it so late. Going down the rabbit hole of what a nightmare Lyme is is so awful.
However- I'm no where near as sick as I was the first 4 months. I'm not bed ridden anymore and I can walk around, run errands, take one flight of stairs, etc without much trouble. Still cannot exercise which is driving me nuts. And I have to get a good 9 hours of sleep at night. And I can't seem to tolerate caffeine yet. But- it is nothing compared to the nightmare at the beginning. Now it's just more being frustrated and irritated and blue that it's not gone completely. So people in the throws of it- know that it does get better. It's slow and frustrating but I think once you give in to it and accept that you have a mini battle to fight- and know you will be so much stronger on the other end- it'll help a lot.
Sending all my healing juju and good thoughts to you all. This forum has been the single most important part of my healing journey.
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