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My daughter has suffered from abdominal pain since July 25th, well that's the day it got really bad....
Her pain stays in the low sternum area and below the belly button above her pubic area and has always stayed there!
My daughter has been through the gammon of test.
She's had an ultrasounds of her appendix, pancreas, liver, gallbladder.
At one point her Bilirubin (liver blood functions) was a concern but has since returned to normal.
She saw a GI specialist who did an endoscopy who removed a polyp and took several biopsies to check for Celiacs disease, Sucrose allergy and Dairy allergy. The polyp turned out to be skin and the Celiacs came back negative also the sucrose came back negative but the Milk (dairy) came back with a slight intolerance.
So now she is on a No dairy
Low sugar ( no aspertaine)
whole grains (non-GMO)
We have switched pediatricians. The new pediatrician has taken my daughter of the reflux meds that the GI specialist put her on due to the fact she doesn't have reflux.
We keep a food journal.
She has a probiotic every morning and 10mg Bentyl 2 times a day.
She drinks 4-30oz's of water a day.
We use the pain level 1 to 10 (as they do in the hospital) her pain today has been a 7-8 but at the worst its been an 10 (not today) at the lowest it ever is is a 2-3.
She has also started going to a chiropractor and started wearing a amber necklace.
We also have an appointment with a hematologist on the 22nd.
We have an appointment for a HIDA scan on the 26th
My husband and I are at a lost to what is going on... She is NOT making this up and it is not FAPS or chronic abdominal pain!!!!
School started last Tuesday and she went but only made it until 10:30am when the pain was out of control.
She was able to make it all day Friday but she was in a lot of pain when she got in the car at pick up.
This past weekend went okay, the highest pain level was a 7. Last evening around 5pm the pain returned. I had given my daughter eggs to eat which I realize now the yoke has fat in it. Also she had some Latose free ice cream which is dairy and fat. I messed up.
TODAY has been bad!!!
She has had to take her percocet and tordal (10mg).
My daughter does not take acetaminophen anymore and yes I'm aware that percocet has acetaminophen in it but her doctor says we need to keep her comfortable when possible.
Help...what am I missing and who and where should I look for help?
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