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10 years of Blood Tests, CFS and Fibromyalgia, Confused.

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caroncfs
caroncfs

Hello,

just want some advice on the next set of blood tests I should be asking my Doctor about, as been going round in circles for over 5 years now. I'm UK based.

I have been diagnosed with M.E. (CFS) for 15 years, Fibromyalgia for 6 years and supposedly Rheumatoid Arthritis for 4 years.

Latest Results:

Plasma Viscosity: 1.91

White Blood Cell: 11.3

Haemoglobin: 11.4

CRP: 25

Platelets: 4.51

Neutropenia?? (Neutrophils) Neutra Something: 8.18

Glucose: 10

I've had the standard two blood tests for Lupus, they came back negative. My hands get swollen and my Rheumatologist thinks RA and Gout (crystals in the blood tests), so have been on Sulfinpyrazone and Hydroxychloroquine for a number of years. But stopped taking the pills for this latest blood test and found that they were not actually doing anything. My Doctor is stumped. Had Thyroid checks and most of the standard blood checks.

Inflammation indicator is too high but doesn't pinpoint what is causing the inflammation. What should I be doing more or investigating?

Thank you for any advance.

0 likes, 4 replies

4 Replies

  • caroncfs
    caroncfs

    Posted

    Sorry forgot to say that I contracted Parvovirus about 5 years ago. Completely knocked me back and I still haven't really fully recovered.

  • rocky31676
    rocky31676 caroncfs

    Posted

    If there is inflammation as you indicated, it most probably is related to autoimmune conditions. Most doctors cannot pinpoint what type of autoimmune condition it is because there are overlapping or conflicting sysmptoms. 

    Do you have/had  family members with the same symptoms ? 

    • rocky31676
      rocky31676

      Posted

      Just saw that your mentioned parvovirus. 

      Do you have the parvovirus rash and joint pain, weight loss, nights sweats ... etc. 

    • caroncfs
      caroncfs rocky31676

      Posted

      No family members with the conditions. I know a lot of people who are horse riders who have symptoms, too many to be a coincidence.

      Trying to find out why things are happening and what more I can do to find out if it's something like Lupus or some other problem. Just don't know what I need to ask for.

      I've had M.E. and Fibromyalgia for years, pain is a daily event, but after Parvovirus (5 years ago) I've never been back up to my previous levels and my hand joints and muscles have been swollen ever since. Had Glandular fever when I was 16 and off school for 6 months.

      Have so much joint pain, that sometimes have difficulty getting started, night sweats, body can't control my temperature levels.

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