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I'm 25 and have been suffering with a bad back for 11 years now. I've had numerous facet joint injections and have also had discectomys done at levels L4-5 and L5-S1 three times. Even with all these treatments, surgerys and hours and hours of physio I am still in agony to the point I'm now on 40mg of MST (morphine tablets) and I take 20 mls of 10mg Oramorph throughout the day, I'm also on 30mg Amitriptyline at night and twice daily have the mortifying task of inserting diclofenac suppositories.
My 'problems' are listed as: Disc bulging at levels C6/7, T7/8, T9/10, L2/3, L4/5, L5/6 and congential fusion at T10/11. The disc bulge in my neck catchs me sometimes but not enough to require treatment of anysort. My middle back issues cause sharp stabbing like pain that take my breath away as well as constant aching across my back and ribs. Then there's the lower back, L2/3 isn't causing too much problems at the moment (touch wood) but the lower levels are my nemesis! Constant pain, sciatica in both legs and very very sensitive to touch. The sciatica is ususally worse in my left leg but recenlty has decided to affect my right leg also, the whole boiling water down on the inside of the legs, the jumping and jolting twitches, the pins needles and numbness on the outside of my legs and both feet, and the pressure that I feel is enough to bring me to tears on a daily basis.
As a result of these problems, the medications and the feelings of continuos lethargy has led me to give up work temporarily (which I thoroughly enjoyed and miss), make alternative arrangements for continuing my University course (which has killed my social life) and now I've also had to stop driving (which where I live, leaves me trapped in my house unable to get out at all).
I live in South Wales, where choice of hospital doesn't exist and my local NHS health board over the past 5 months has refused me a MRI scan, twice refused further facet joint injections and now saying there are no consultants available for me to see. I just want to know how to see somebody that is actually going to do something. If anybody has information on spinal cord stimulation therapy or the pain pumps, I'd be very interested to hear about it.
I should be grateful for advice or help on any treatments, home methods or knowledge of ways getting through to the Welsh health boards that I need treatment that anybody could offer. Just a conversation with people who are understanding or going through the same would be an enormous help too. I feel hopeless, and that nobody truly understands what it is like. These doctors that fob me off with tablets have no idea what it's like to actually live in this pain and I just feel that at my age, this is no life. I have no social life, am unable to even get out to meet people, no boyfriend or relationship and the last time I was sexually active I screamed out in nerve pain, and that was more than 3 years ago! How can they leave a 25 year old to 'live' like this. The infighting between the health boards is of no concern to me. This cruel treatment is a joke.
Sorry about the sob story, but I just don't know what else to do now. Please help me.
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