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11 years of vertigo and dizziness, any advise would be appreciated

Posted , 7 users are following.

emma2454
emma2454

So I am very sure this started when I had an horrendous bout of tonsilitis and got my ears syringed whilst they were still sore and infected. (the nurse didn't check until after and then said it probablies shouldn't have been done)!

Not long after the dizziness started. I can not remember much about the beginning it as it's been so long but I do know that most days since then I have never felt completely steady, I get different feelings, woozy or off balance, cloudy, almost as if I am in a bubble and not reality.

This went on for 6 months solid with the severe dizziness coming on.

Now 11 years on I am a huge anxiety sufferer down to this, it has affected me socially and in other ways.

For the last couple of years I have gotten more used to it and started exercising reguarly, getting out and having fun and not letting it rule my life.

I normally get a couple of bad turns a year and in between I feel unsteady. 

Now I have all of a sudden have 3 severe boughts in less than 2 weeks.

The symptoms are as follows:

I mostly always get it during the night and it wakes me, if I turn my head a certain way (sometimes just lying flat) I get this awful swirling which knocks me sick and I have to turn a certain way or move my head into a specific position to stop it and I have to stay there until it passes.

If I get up during this my whole head feels like it is spinning in various directions and it then becomes an interesting walk to the bathroom.

If I stand for long enough it's as if my head figures out where I am and the intense spinning stops.

It also affects my eyes a little during these episodes, feels like they struggle to focus.

Any ideas what this could be. I need to find a way of reducing it or even stopping this. I don't want to let it ruin my life when I have just found a way of coping.

0 likes, 21 replies

21 Replies

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  • eleftherio33095
    eleftherio33095 emma2454

    Posted

    When was the last time you went to ENT?

    Eleftherios S. Papathanasiou, PhD, FEAN

    Clinical Neurophysiologist

    Fellow of the European Academy of Neurology

    • emma2454
      emma2454 eleftherio33095

      Posted

      Hi, 

      I only ever saw one years ago about my throat as I suffer sore throats through exposure to household sprays and perfumes. Never for this.

       

    • eleftherio33095
      eleftherio33095 emma2454

      Posted

      After 11 years, I recommend a refresher follow-up with ENT.  Our understanding of vestibular disease has increased significantly over the past decade.

      Eleftherios S. Papathanasiou, PhD, FEAN

      Clinical Neurophysiologist

      Fellow of the European Academy of Neurology

  • Lolasmom
    Lolasmom emma2454

    Posted

    Hi Emma,

    I get postional vertigo a couple of time a year. It appears it is seasonal.  Usually March/April   and then Sept/October.

    But mist days I feel off balacne due to facial pressure that plugs my left ear and makes me feel off balance. Sometimes I feel like I am walking on a boat.

    This vertigo is BPPV. This positional vertigo is quickly corrected. My vertigo kicks if when I am in bed and I move my head from one direction to the other.  It affects my right ear.

    I have a couple of easy maneauvers that REALLY help.

     If you PM me, I can certainly send you some really good exercises.

    I am surprised that your doctor never explained this and tried to do some exercies.

    If yours is infact BPPV, I hate you have been going through this all this time without help 

    • Lapka
      Lapka Lolasmom

      Posted

      I have had 2 episodes of BPPV, I would appreciate if you send me those exercises. Thank you kindly.
    • Lolasmom
      Lolasmom Lapka

      Posted

      Hi there Lapka

      No problen, I will send through private messaging

    • Lapka
      Lapka Lolasmom

      Posted

      Thank you so much. Do you need my e-mail? I don't know how to send info through private messaging. Have a great day!

    • emma2454
      emma2454 Lolasmom

      Posted

      Hi,

      Thank you so much for this. I suspected this is what it may be after reading up. It's absolutely spot on with the symptoms it describes.

      If it is I am gutted I didn't get the support from my GP and it could have saved alot of heartache.

      I would love to receive the information, it is very much appreciated

    • Lolasmom
      Lolasmom emma2454

      Posted

      Hi Emma,

      I tried sending some of the exercises to Lapka but would not work in private messaging

      They gave me their email address and I forwarded it on to them. Hope it helps them

      In order to private message me, clink on my name, then click Message. This will allow messages privately between you and me.

      If you want, just give me your email address, and I  ouls love to send to you.

      We need to help each other......doctors do not always get it 

    • lily65668
      lily65668 Lolasmom

      Posted

      Much easier than that. To send a PM to someone, just click on the little envelope icon under their avatar and you're in private messages.

    • eli75162
      eli75162 Lolasmom

      Posted

      Please share your maneuvers and in the same boat for the last 3 years have same symptoms
    • Lolasmom
      Lolasmom eli75162

      Posted

      Hi there,

      If you PM me with your email address I will forward on to you. It does not work to send through PM

    • emma2454
      emma2454 Lolasmom

      Posted

      Hi Lolasmom,

      Thank you so much for your support.

      Totally agree, sometimes doctors miss the point and that can be a lonely place.

  • eli75162
    eli75162 emma2454

    Posted

    This is my problem too I can't sleep while facing up. When I turn my eyes I also feel like my ears are opening and closing inside.

    I have also tried to live with it though sometimes it becomes a mess.

    Have not seen an ent but I will make an appointment of seeing one soon

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