11mnth on from accident causing right distal radius fracture

Sorry that should read crps not crops ( complex regional pain syndrome). It's 2am and I'm tired but can't/don't sleep much due to the pain and sensitivity 

We got told something was coming out of wrist joint (my daughter describes it as a bone clicking in and out of place) she got put in a plastic moulded splint (which was suggested by physio 6mnth ago but apparently they wouldnt of got funding for it) we go to new hospital new surgeon & she had it on within 2hrs. , where back today to see plastic surgeon apparently its upto him what happens next. ( my daughter has no muscle in her hand its wasted away she can't hold a pen properly shes ended up starting senior school since and having to use a laptop etc ) x

I've pushed and pushed she was doing physio on the hour every hour etc the physio straightaway said it was something stopping her bending it , he refered us back to original surgeon n i demanded 2nd opion mri etc etc everytime i've been with my daughter we've both been made to look like its in her head, mri showed something surgeon fobbed us off saying mri always shows things when u look to much for something etc, shes in cronic pain cold weather (prob going to end up with arthritus ) today i will stick to my guns etc. Then i think i should maybe take some legal advice or am i just going to get fobbed off again, She said its ruined her first year at seniors so far, she had won a go ape trip etc for lifestyle the year b4 n she can't go, she was just starting to live abit n now shes back to been a stressed mardy prob slightly depressed 12yr old that has to have codiene for pain

Hi Paul. I'm an adult and I have worked my butt of trying to get this wrist to move with as you say excruciating pain. Unfortunately even still with twice weekly professional physio it's just not happening. CRPS has definitely hampered any recovery I might of had. I cannot supinate/pronate and flex/extension is limited. I'd love to work through the pain for more movement but it's not happening. I really pleased that this approach has worked for you. I just wish it would for me! Most days are spent persevering with the excercises despite the pain and no further improvement. I'm now 9 months post orif with plates and screws. Second opinion is being sort but it's taking sooo long to get anything done. - and I work for the NHS and have done for over 35 years as a nurse! Or did - it seems my career may be over if I can't get over this! :-( which is looking very doubtful ) life sucks.

Keep fighting for your daughter. She's way too young for this and the ortho's should be getting their backsides in gear to help her. I know how I feel with such limited movement so for your daughter it's got to be awful. I hope your visit to the plastics today is fruitful. Please let us know how you get on. Good luck!

As I have said all my research indicates that this should not be such an issue for a child, the young body repairs rapidly as it is still growing. I have only felt discomfort once due to the cold and that was while I was cycling in short sleeved jersey over the moors in a biting wind. Then I could just feel that the titanium plate was cold no pain no stiffness. I struggle to tell that my wrist has ever been damaged, I fail to see that your child should not expect the same.

Hi Vicky, I do feel that I was blessed with an exceptional surgeon, prior to my op the consultant had informed me that I would experience permanent limited stiff movement. Post op through the night I needed no pain killers and by morning I could cross my fingers. The op had taken about twice as long as first thought, I bumped into my surgeon while shopping in Darlington and I couldn't contain my excitement I could never repay that gentleman for the skilful way  in which he fixed me. I genuinely have more movement in that wrist than a lot of people do in an undamaged one, my wife included. By coincidence it just so happens that my surgeon lectures in sports injuries! I remember thinking that he looked as if he was working passed retirement! I am an engineer and rely on good manual dexterity and find it very humbling that he took such expert care to fix me. I had my accident in April on my fourth 100mile ride of the year, post accident I completed another seven, totalling ten (completed)for that year and cycling over two thousand miles.I asked the radiologist and she said that I had a 4to5 inch plate 7 screws into my hand and 3 up my arm side delivered with a rather concerned sympathetic look on her face. I really hope that you experience an improvement soon.

What a day , 2plastic surgeons , 1 ortho , 1 hand specialist & 1 physio! & another surgeon, & ....... My daughter radius and another bone have set at a slight angle instead of straight , it has lead to a small bone leading off hat clicking in and out of its socket ( alot) hence why she can't get full movement or bend her wrist , so now the above surgeons want to go to a panel in paris at a medical conference next week to see what & how to fix her wrist without causing any nerve & ligament damage (they want to reset & kwire again but checking all risks first) , they've never seen such a bad injury in a child her age . And looking at mri scan very carefully it clearly shows that its not been done correctly, there disgusted how we've been fobbed off , and basicly as soon as they get the go ahead they'll ring me to say what opp & whenSo for now shes got to stay in her splint ( which she should of had all along ) .... Grrrrr

Well at least something now is being done. Although it will seem Like being back to square one with another op your daughter will hopefully, this time round get her mobility back ( at least most of it) .. do you have a case to try and sue the first surgeon? Let's hope they come back with a date to get your daughter on the road to recovery. I hope that I have some good news as well soon as I can't go in like this much longer x

I'm deffo getting legal advice i saw the mri scan n xrays today & if u zoom in u can cleary see its not right, the last physio said from 10weeks there waa something stopping her bending her wrist & he refered us back to original surgeon he said my daughter wasnt been pushed enough in physio i said i wanted an mri scan and second opinion, the man that did mri said there was deffo something there , the surgeon said there wasnt but states in his note to gp mum not happy and has demanded 2nd opion, that was back in august, since then its been oh lets try an xray in another position etc etc till he eventually in oct refered us , the new hospital n surgeon dint get referal till end of nov (so he wasnt in a rush to help us ) x

My daughter having panic attacks daily now poor girl she knows shes got to go through it all again i wish i could take her pain

Its awful cos u can see in her face shes in pain, shes been put on codiene 30mg but they dont always ease the pain especially when its cold, her school don't understand i've had to insist she has a laptop to work on during school hrs as shes right handed and new splint is hard moulded plastic to keep it in place so not possible to write with it on, shes not able to do home work because they wont allow her to bring laptop home, she obv doesnt do pe but i've had 3 diffrent teachers ring and ask why she can't do it, she can't undo buttons struggles to tie laces, can't put her hair in a bobble or wash it herself, her attendance is down to 80% due to hospital appts, and if shes in pain on a night and up n down i dont send her the next day, i've got an appointment this week for legal advice, i'm a single mum of my girl and a toddler and its hard work its like having 2 toddlers helping her dress etc on a morning we got told 10weeks max n she would have most movement back when she had operation 12mnth ago