12 months on....no joy
Posted , 6 users are following.
Severe back pain and living a normal life
Posted 11 months ago
Hi please read this. I know its a long one - I just need a bit of help/advice xxx
I am 39, 2 children at home and sick from work. Ive had back problems since I was 21, its gradually got worse - short story - had an MRI scan when I was about 34 told I had DDD but was told that this was normal and nothing would be done. Ive since moved area and the pain and symptoms have got much worse. From October until now I have increased my medication to 2 x 10mg of zomorph, 150mg of Venloflaxine (anxiety and depression) 2×300mg of gabapentin 3 times a day 1x500mg of naproxen twice a day, 2x30mg of dihydrocodeine 4 times a day, at bedtime 35mg of Amytriptaline at bedtime. I still have pain had an MRI scan and an xray. The xray showed osteoarthritis in L5/S1 and MRI scan showed a bulge with slight pressing on my nerves.
I've had a PIP assessment and have been awarded standard rate. Even though I cant walk very fast and I'm constantly in pain. But because I will do it and wont get people to always go for me this is deemed as me being able to do it!!!
I have been off work since April - i tried to stay in work as long as I could but the pain got too bad and i wasnt taking the dihydrocodeine as they make me drowsy and I had already started getting my words muddled - not great when you work in a call centre!!! I get sick pay of £320 a month.
Roday I had an appointment with the orthopaedic specialists and he was running over an hour behind - I was in there for 15 minutes. He asked me my age, if i lived in a house/bungalow, who i lived with, if i work and how long I've been off sick. He did the normal raise this push my hand etc... then said he wont operate and will see me in 3 months. I asked how i was in so much pain even with the medication - which makes me unable to run my household. He then asked what I was taking - surely this is all in my notes. So I told him and he said well the disc bulge is slightly different as you were lay down. He has said he will get in touch with the xray dept who will do a steriod injection. But this can take 8 weeks - Iknow I may sound really negative but i came away feeling like he never gave me the time to find out how i live etc..... i asked what I'm supposed to do about work etc but he said that he'd write a letter to my GP and I would get a copy. I said that I just wanted to get back to normal life or at least get rid of all this pain he brushed me off by saying we'll see what the injection does I don't want to put you under the knife.
I really dont know what to do, I feel like I'm in limbo at least another 2 months off work??
I have no support network, my boyfriend lives 15 miles away and mum and dad live in turkey.
So, this was me nearly 12 months ago.....
2 injections later and I'm still the same. Not on all the medication as it didnt really work anyway. I have a new job - less stressful and no threat of being sacked due to hitting sickness target, but longer hours.
I take dyhydracodeine in work when i need to. Naproxen twice a day amytriptaline when i cant sleep and now have restless leg syndrome - which is horrendous and has got progressively worse. I need to go see the consultant again and see a physiotherapist but tbh it doesnt help. I try to keep moving but still cant do simple tasks and feel drained at the end of every day. The depression is getting slowly worse. I just want to be back to normal. I am in constant pain all day every day and the tablets - if taken properly at the weekebd totally wipe me out. I get standard pip which pays for a cleaner and my ironing to be done. And my son is still a great help.
Even though i am back at work i am in more pain but i was getting less and less money and bills were mounting up so i have to be in pain but the bills get paid...... what do i do?
Thanks
0 likes, 10 replies
keith94082 sandie-pants
Posted
sandie-pants keith94082
Posted
I will keep fighting I'm 41 in Aug and shouldnt be like this at my age. Luckily i dont suffer with any bowel issues but im findinf i have a few accidents every few months bladder wise.
I work but feel like a wreck at the end of the day and all i want to do at the weekend is rest
katwitch sandie-pants
Posted
Well it sounds like you need a second opinion did you know that you can go to any hospital in the UK so if you find one that has a better reputation you can get your gp to send you there to see a consultant, I have had back pain for the last 15+ yrs and had all the usual physio, acupuncture , mri, X-Ray etc with no avail and put on morphine patches the pain over the last 2 yrs got worse so had 2 x cortisone injections no help then I had 2 x epidural blocks which helped a little, then had 2 x nerve deviations on the left side with a little relief but still constant pain my meds are 40mg morphine twice a day, 150 pregabalin in the morning and 200 pregabalin at night with anti depressants as a nerve blocker and muscle relaxant 400mg nurofen twice a day, I then saw a different consultant who got me to have a spect scan which showed up my problem so surgery was booked for a sacroilic facet fusion on the left side, I am currently 15 weeks post surgery and doing ok except no need to learn how to walk better as before I was dragging my leg and limping so lots of physio and exercise so now I just cross my fingers that I can get back to work and cope better with everyday life I know my pain will never be gone but 60 percent is better than none. I like you have had to copy and carry on with life whilst being in constant pain and having ppl not understand what your going through
So chin up and keep pushing them or ask your gp to refer you to a different hospital, where do you currently live ?? As there are some good hospitals in Surrey
Wish you all the best
Kathy
Sineadsmith90 sandie-pants
Posted
sandie-pants Sineadsmith90
Posted
Hope it is a blip and it only gets better from now xxx
The consultant just refuses to perform surgery even thoufh i have had a dianosis of herniated disc for 8 years 😢
Sineadsmith90 sandie-pants
Posted
I started having problems after my first too, I was 18 when it started. It's hard isn't it being in so much pain and generally people don't understand or even believe that you're in the amount of pain you say you're in.
I'm hoping to find help somewhere, anywhere.
Stay strong, if you believe surgery is your last and only option then request another consultant. Also look into prolatherapy, it's meant to be amazing but my condition was too bad for it to be effective enough for me.
Have you tried a private consultant? They can refer you for NHS treatment and they can just discuss treatment options and history with you.
tara95293 sandie-pants
Posted
I'm not sure if you can find a post I made and have had lots of replies to it. The reason being, I have picked up some really helpful ideas and things I want to try that I never knew about. I thought I had exhausted everything but maybe not! It's worth a read :-)
Here's hoping for a good day when I wake in the morning as I just never know which level I'm going to be at.
Please try and keep your chin up and keep on this site it's helped my mental state no end. So thanks to everyone for that.
Take care and good luck.
cat.g. sandie-pants
Posted
sandie-pants cat.g.
Posted
I'm off to see my doctor tonight as i really need this sorting. I love my job but the pain is getting unbearable and sleeping all the time when I'm home is not really any kind of quality of life. Especially for my lads.
Fingers crossed i get somewhere. Physiotherapy is having to be cancelled due to my level of pain but i really do try to carry on as much as i can. Like i say fingers crossed. Hopefully your painfree life will continue xxx
Gray07 sandie-pants
Posted
So sympathise with you, i have been in constant pain since nov, i had mri & it shows hiernated disc & arthritis of my lower back. I have sciatica pretty much constantly. I had epidural steriod injection on Saturday but had no relief infact its worse now!
I also have almost constant indigestion & feeling of nausea, is this something you get too??
Would appreciate any advice/tips x