13 YEARS!!! with Globus Sensation.....

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I apparently have Globus Sensation.... soon i put a small piece of food in my mouth, i get anxious, moment i swallow, feels like its stuck... when i was 15/16/17 years old, went through 3 Endoscopy's, several ENT up the nose cameras.. nothing... no one ever mentioned globus sensation... i've learned to live with it for 13 years now.. every couple years it gets really really bad... i have panic attacks, i jug water... i lose weight.. SO EMBARASSING!!!... nothing works... nothing has helped... I live in NYC... if any1 has suggestions who to see, where to go.. right now.. its really bad.. its been really bad for past 3 months now... i can't eat out... i take an hour or longer sometimes for a very small meal... rice and ground beef is the only thing that i can eat slowly with out going crazy with the sensation too much... its sooo crazy! i feel like im crazy or insane... i really don't know what to do... antihistamines dont help... ant-acid meds dont help... anxiety meds dont work.. i eat a like a mouse... im 27... i dare not have pizza or sandwiches.... i wish i could replace my whole neck/throat....

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4 Replies

  • Posted

    The voice instsute of new York. There is a doctor that specializes in it. They will most likely give you a test like I had monomerty test, it tests the tightness of the upper esophageal sphincter. I see my specialist for treatment here in Philly where I live and he is talking about giving me a botox injection in the muscle to relax it. It is a treatment usually for voice or selling disorders, the doctor also talked about possible surgery to correct it but he said botox is most effective treatment in my case.

    I keep posting my story updates so check it out. I hope this helps.

    • Posted

      Stupid auto correct the word selling is swallowing
  • Posted

    I am from Texas.  In my case, I had an Esophagoscopy/Laryngoscopy with possible Dilation.  Basically the ENT put me under and scoped me and realized my esophagus was narrow so he dilated using a bougie.  (When i had the Endoscopy in his office he found nothing.)  I persisted that what I was feeling was not normal and that is when he advised me that he could put me under to get a better look with a longer scope.  This procedure was on 3/20/18 and I can eat a lot more now.  It did take me a good 3 weeks to start incorporating solid foods back into my diet.  I did not have trouble eating before this.  This originally started mid January 2018 when food was getting stuck in my throat the only thing i could eat was mashed potatoes and gravy and soup that was strained oh and slices of avocado.  I too had panic attacks during this time and not even my anxiety pill helped...well it helped a little.  I lost 14lbs  in about a month and i think the reason i did not lose more was due to the mashed and gravy.  FYI...the procedure i had done before the dilation was a Barium Swallow which came back negative.  Its so weird that you mentioned you can eat rice and ground beef because these are two foods I am afraid to try and eat again but after hearing that you can eat them, I am going to attempt this real soon.  I can eat sandwiches but i tend to put lots of mayo and use bologna since I feel this is a more soft meat.  I also have not tried pizza yet but I trust that I will be able to eat it.  The bottom line is that this procedure has helped me in that every solid food that I have tried has not got stuck in throat or has not felt like it was stuck and like before if it feels remotely like it is in my throat, water just makes it slide right down the way it used to before all this happened to me.  I hope you can find a solution as I do not wish this experience on my worse enemy. 
  • Posted

    Hi-

    I've had globus for almost two years and it is getting progressively worse. I'm desperate! I have done everything I know, but nothing relieves the symptoms. It's slowly driving me insane.

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