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14 year old daughter diagnosed with CFS

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becky83852
becky83852

Hi there,

My 14 year old daughter has been poorly on and off for years, She has had lots of tests and they have all come back normal. She has recently been told its CFS, which i suspected anyway. She's currently really poorly, and hasn't been well enough to leave the house for nearly 2 weeks, she is so fatigued i have to wash her hair for her. Anyway, i just wondered if there was anybody on here who has a teen with CFS and if you have any advice. Thanks in advance, Becky

0 likes, 2 replies

2 Replies

  • catherine41708
    catherine41708 becky83852

    Posted

    Hi Becky, so sorry to hear about your daughter. Here, for what it is worth, is my experience with our own daughter who has just turned 18 and is back at school part time. We tried diet (for many people dropping gluten and dairy helps) but after six months we'd seen no improvement. We spent, over a period of years, thousands on supplements and therapies, all of which worked for some one we knew, but not for us. Iona was pretty much house-bound by the time we were put in touch with a therapist called Pippa at New Leaf Changes in Bristol UK . Via Skype, she helped Iona towards recovery. I would never have believed that such a physical illness as cfs/ME could respond to brain retraining, but it does.

    I really feel for you and wish you the very best, I hope my suggestion may be helpful.

    Warm regards

    Catherine

    • becky83852
      becky83852 catherine41708

      Posted

      Hi Catherine, I am so sorry i haven't responded to your message, i think the notification must of gone in to my junk folder. I popped on this site again to have a read of some other posts and saw my own post then noticed i had 2 replies! Thank you for taking the time to reply. I am going to do some research in to New Leaf. I guess different things work for different sufferers. My mum has had ME for years and years without anything really helping her, until about 18 months ago when she started the Keto diet and shes honestly like a different person. But its a very limited diet and I know Lily would struggle tremendously with its limitations. We have recently moved in to an area that will allow us to hopefully be referred to Dr Patel who runs a CFS clinic at the George Eliott hospital. We have a Dr's app this afternoon so fingers crossed Lily gets referred. Thanks again Catherine. Becky x

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