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Chronic Fatigue Syndrome

Also known as ME - Myalgic Encephalomyelitis

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    CFS/ME Introduction and Resources

    This is a discussion where users can post their signs and symptoms, treatments, history etc. There is also a list of useful resources links etc below. If any user has any suggestions about additions to this please send me a Private Message rather than replying here or trying to post links in this thread....

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  • Cognitive symptoms??

    Hi all, I’m 32 and a mum of three little boys. I have recently been diagnosed with CFS and am struggling so much with life. Most days I suffer to the point I feel I cannot cope and feel like it’s ruining my life as a mum. I am Constantly exhausted but even worst for me is the cognitive issues that I...

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  • Saline Infusions to Treat ME/CFS?

    Has anyone here ever used a saline solution infusion (IV) to treat their ME/CFS? Or heard of this treatment? Last week, I had eye surgery. Before the surgery, I'd been in a pretty severe relapse for 3 months. I could barely even talk. I had a saline drip before the surgery. After the surgery, I noticed...

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  • Newly diagnosed not many tests done ? Is this CFS?

    Hi I’m 26 and in July 2017 I came  down with glandular fever and never recovered if anything I got worse. My symptoms are, swollen neck,armpits and groin, painful to touch constantly, SLEEP, have I even been to sleep? My thoughts every mornings. Constantly exhausted? Actually exhausted isn’t a strong...

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  • Viral Infection/Post Viral Fatigue - Not feeling great

    Hello all, Hope this is the right place posting... About 10 weeks ago I started experiencing an increased need to clear my throat, essentially a post nasal drip creating the weirdest throat/chest sensations - Wasn't really bothersome tbh and would come and go. However beginning of May this became...

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  • Desperate for quick and easy healthy meal ideas

    Hi everyone, I am hoping you can help me think of quick and easy meal ideas. I am desperate to eat healthily but I have so little energy to cook. I often end up eating ready made food or quick, grab and go snacks. On bad days, I spend most of the day in bed or on the sofa and either go hungry or eat...

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  • Film "unrest"

    Who has seen the film "unrest" about and by Jennifer Brea who has ME. It's won all kinds of awards. Everyone and loved ones need to see this documentary. You can find it on Netflix, PBS and I'm sure her website. It is so validating. It totally explains what we have brain inflammatory...

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  • At my wits end

    I was diagnosed with CFS, Fibromyalgia and Arthritus in 2006. Since then I have worked through the various treatment programs that my doctors have suggested. However, I have had no level of recovery. I am now 33 and am worse than I have ever been, having to wear adult nappies, I'm on several medications...

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  • Recently diagnosed with ME anyone under 25 in the same boat??

    So I can’t really go into detail with my story or symptoms because I’ve apparently already done far too much and I’m feeling pretty awful.  But I’m waiting for a referral to see a specialist about being diagnosed with ME I’m twenty years of age and recently given up my education at university to...

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  • Severe Turn for the Worse...

    Hello, I am 32 years old & have had CFS/ME since 2006. I was essentially bedridden for all of 2007 & most of 2008. I then saw some minimal improvement, enough that allowed me to perform at low-level physically demanding jobs. I'm going to skip the decade that followed because I'm sure...

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  • M E

    Hi Everyone new to this forum as never posted anything before so please bare with me please. I am so overwhelmed with worry that really don,t know where to start !! I was told after MANY test the conclusion was ME.Chronic fatigue syndrome but to be honest was a bit unsure what it was as I just thought...

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  • Panic attacks

    Hi guys! So I have cfs and recently my panic attacks have got worse. Does anyone else suffer with this whilst having cfs and the rest of the other symptoms. I just have not been able to go to sleep instead I just nod off then I jerk and wake up in a panic my breathing is fast and it takes me time to...

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  • Post Viral Fatigue

    Hi my name is Elaine, this is my first post as I have just came across this site. I was diagnosed by my doctor in August of last year as having Post Viral Fatigue and was signed off work, during my time off I experienced many different symptoms and had good periods and bad periods, of which there...

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  • Husbands constant tiredness

    My husband it constantly exhausted, with no enthusiasm or interest in anything. At 75 he is turning into an old man. He is only out of bed for a few hours, and he has to go back, and immediately goes to sleep. Could this be chronic fatigue and if so what can we do to get his doctor to acknowledge it?...

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  • New symptoms

    Hi, I have been a sufferer of m.e for just over 7 years (diagnosed when 14, now 21) by now i know what my symptoms are. Mainly suffering with fatigue, brain fog and very very occasional bone pain (once every few months) a few months ago I started having flitting muscle and bone pains all over body:...

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  • CFS and food

    Hi all. I have undiagnosed CFS but I am in the process of getting diagnosed. I often too exhausted to cook food or go to the shop and get food to eat, and I don't have any supportive friends who are willing to help me get food. Does anyone know of any meal replacement like drinks as I'm losing...

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  • Does Dark Chocolate Help?

    I recently learned that Dr. Jose Montoya, a well-respected ME/CFS doctor at Stanford, prescribes dark chocolate as part of his regimen. Have any of you tried this? If so, have you noticed any results? I've tried 70% to 80% dark chocolate, and it does make me feel better, at least for a few hours....

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  • Side effects of vagifem 10mcg

    I have been using vagifem for 2weeks as instructed and now  starting twice weekly dose. I feel v. tired and depressed since using them.also I get hot flushes which I have never had before . I am 69 and sailed through the menapause.To add to this I have M E/Chronic fatigue and it has impacted on...

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  • Post viral symptoms / syndrome

    Hello eveyone, I have been diagnosed with "post viral symptons". I have not got a clue what it is.Has anyone heard of this. For over two months I have been suffering from the following: Heavy head feeling, unbalanced. constant pressure in the head flu like symptons but no fever. Pins...

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  • CFS, burnout or depression ? Help please!

    Hello and thanks for reading! I am a 30 year old male who up until last year was a healthy man with no underlying conditions, and was actually doing quite well at gym (4 days a week) and very good condition. 2016 on a while though wasn't a great year , I found out my partner was seeing someone...

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  • Does your fatigue fluctuate during the day?

    So I was diagnosed with cfs 2 years ago when I was feeling sick for about 1 year. Welllll my symptoms vary and my fatigue really changes at different times during the day. My mornings are wayyyy worse than my afternoons. And sometimes in the evenings I feel normal. Is this something that is normal with...

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  • 'Silent migraine'

    Hi all, Some of you may already know that I suffer with hemiplegic migraine, recently I feel like I have been having the after effect of an attack, as if I have had a hemiplegic attack in my sleep/not known about it. I feel spaced out, not with it, and feel delayed with my reactions and conversations...

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  • Post Viral Fatigue Syndrome vs CFS vs Anxiety??

    Hello all, My mother unfortunately contracted shingles around the beginning of October. While the rash has cleared, she suffered severe nerve pain afterwards. Though her nerve pain has gotten lots better (pain level dropped from a 10 to a 2 most of the time), she always seems VERY exhausted. In the...

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  • Lactic acid 'rushes' in muscles

    I suffer from what feels like floods of lactic acid in my legs, arms, and now my pelvis whenever I walk more than a few steps and immediately I start trying to walk up any kind of incline or hill. Does anyone else have experience of this? My doctor, generally good, just scratches his head and says he...

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  • Chronic fatigue and depression

    Hi all,  I have undiagnosed chronic fatigue syndrome but seeing a consultant on Monday for my assessment. Alongside this, I have found myself becoming very depressed, having a lot of crying episodes and just wanting to hide away from the world. Does anyone else with CFS experience this? I'm...

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  • Your kids

    Hi everyone I'm looking for some advice. I've beendiagnosed cfs for about 8 years now and I am really quite bad. The thing is, I think my 10 year old may have it too. My 10 yr old is always unwell and is now fatigued and sore.i was wondering if anyone else's kids are like this Thanks I

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  • Vision changes with cfs

    Has anybody ever had vision changes as part of they're chronic fatigue syndrome symptoms? I've been having a lots of vision problems like blurring Vision spots in vision and fogginess for the past 8 months and I've had everything checked. I've been to two opthalmologist and optometrist...

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  • hot faint spells is it my CFS

    I keep feeling hot and weak/faint (not dizzy) throughout the day have to lie down for 15 mins. then it passes. anyone else get this. sometimes so uncomfortable I have to remove some clothing to cool quickly.

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  • CFS relapse for 4 months - please help

    After 10 years of pretty good health, I have been in a CFS relapse for the past 4 months following a virus and a new very demanding full-time job. I had a relapse 3 years ago which lasted 9 weeks and I was then able to go back to work part-time. However, this time it is just not shifting yet. I resigned...

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