CFS/ME Introduction and Resources

Thank you very much, very helpful as a one point note, can we also add links to uesful services onto here too. if they are advisory or scientific reports and not advertising for various clinics? 

I have not been diagnosed with CFS/ME because my doctor doesn't believe in it. It's very likely I have it.

Symptoms

~Severe fatigue

~headaches

~joint pains

~nausea

~anxiety

~low blood pressure

~jaundice

Ive been tested for celiac, Crohn's, parasites and cysts then my doctor decided I was 'lying' because he didn't find anything.

History

~Anxiety

~Irritable bowel syndrome

Treatment

~swimming physical therapy 

~antidepressants

 

Hello there !. Thank you for corecting my spelling. I appreciate this.

Another important site is the Stonebird and The Grace Charity

Many thaks.   Mitty.

Hi, I am a Kiwi who has suffered chronic fatigue symptoms since my daughter was born 24 years ago. They have worsened with menopause. I thought I had found my answer when my B 12 was found low, but supplementation didn't help. Then my thyroid functions changed to abnormal, with thyroid antibodies. I started on levothyroxine a year ago and my symptoms got worse, more brain fog, more fatigue and more joint pain. After researching on the net I discovered that some genetic deficiency of deiodinase enzymes exists in some people, and can be turned on by pregnancy or viral illness. My Mum developed ME in her fifties before me, so this seemed a possibility. This causes inadequate conversion of thyroxine into the active hormone T3, blood thyroid functions can appear normal. Porcine thyroid extract being a good treatment. I hunted for a GP who would prescribe this and started six weeks ago. My brain fog cleared immediately, my joints stopped aching within a week and my energy levels are improving in leaps and bounds. I wonder how many people have this condition. There is a genetic test for these genes now available in UK (google deiodinase genetic test).