1. Community
  2. Brain and nerves
  3. Chronic Fatigue Syndrome

CFS/ME Introduction and Resources

Posted , 28 users are following.

Emis_Moderator
Emis_Moderator

This is a discussion where users can post their signs and symptoms, treatments, history etc. There is also a list of useful resources links etc below. If any user has any suggestions about additions to this please send me a Private Message rather than replying here or trying to post links in this thread. Any links added will have to conform to the forum rules.

Patient leaflet on CFS which includes a tab for Clical Trials (second link).

https://patient.info/health/chronic-fatigue-syndromeme

https://patient.info/health/chronic-fatigue-syndromeme/clinical-trials

PatientPlus article on CFS written for GPs. Includes references to more in-depth articles including NICE Guidance.

https://patient.info/doctor/chronic-fatigue-syndrome

The Hummmingbirds` Foundation for ME.

http://www.hfme.org/

CFS/ME - A Primer for Clinical Practititoners from Members of the IACFS/ME.

http://www.rmcfa.org/f/IACFS_Primer.pdf

Other groups in the forums that may be of interest.

Fibromyalgia https://patient.info/forums/discuss/browse/fibromyalgia-syndrome-909

Osteoarthritis https://patient.info/forums/discuss/browse/osteoarthritis-1632

Rheumatoid Arthritis https://patient.info/forums/discuss/browse/rheumatoid-arthritis-1968

7 likes, 19 replies

19 Replies

Prev
  • Meg97
    Meg97 Emis_Moderator

    Posted

    Obviously temperature control is a symptom of ME but I haven’t read or heard of anyone besides myself suffering with it .. is or has anyone suffered with it? Any help with how to deal with it? It’s 5 degrees currently where I live in the Uk and I have no heating on, my windows open and can’t possibly wear any less😅🙈 send h e l p pleaseeee 

    Meg, 20, yet to be diagnosed. 

    • andrew22534
      andrew22534 Meg97

      Posted

      i struggle with this too. Body does its own thing regardless of external temperatures. As yet I have not found a solution apart from being prepared to put a coat on in a warm place and take off as much as possible conversely. When I did work it drew a lot of comments but...... I can only say you are not alone in this... .  
    • Meg97
      Meg97 andrew22534

      Posted

      At least I’m not the only one to suffer with it.. something to bring up to my specialist when we meet on the 28th. Thank you for your response x
  • trisha1260
    trisha1260 Emis_Moderator

    Posted

    Emis ,

    I am new to this, never posted in a forum before I sent a comment to Isabelle she is the first post in chronic fatigue syndrome after you and when I sent it it doesn't show up in the Box so I sent another one asking it she Reddit that doesn't show up either what did I do wrong?

    Thanks ~ Trish~

Back to top
Prev

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.