Posted , 6 users are following.
So at my appt today, my Dr said she's concerned more about my fibroid than my ovarian cysts bc there's just one and it's very large. Now I have a biopsy scheduled for next week bc there being just the one large fibroid is more cause for concern than several fibroids. Anyone heard of this ever, regarding uterine sarcoma?
Also -- anyone have a fibroid this large or larger removed via da Vinci hysterectomy?
0 likes, 14 replies
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1Jamie capnteal
Posted
Hello,
I have one very large fibroid - approx. 19 x 15 x 11. I have never heard of it being more concerning that it is cancerous if there is just one. The other thing is, given it's size and the length of time it's been growing to get to that size -- possible if it was cancer you would have known by now. My specialist did a biopsy right in her office several years ago - but they never gave me reason to be more concerned given it's size. It's rare that fibroids are cancerous.
I looked into the de Vinci procedure, but they don't really offer it where I am. It looks to me as complex a regular hysterectomy - although I guess recovery would be quicker. I was trying to get through to menopause (I am over 50) with Lupron-like meds helping it shrink. However, it's maintaining its current size and is starting to lean on kidney... so looks like regular hysterectomy for me. I am less concerned about recovery time than the surgery going smoothly without resulting complications.
Best wishes to you.
Jamie
capnteal 1Jamie
Posted
Thank you so much. This is reassuring to hear. The feedback I've gotten from other women has been the same. No one else seems to think it's more concerning, just makes the surgery a bit trickier. It's been a really fun rollercoaster to spend time worrying over cancer and then when I convince myself I don't have it, worrying over surgery risks. ;-) I'm one treasure trove of anxiety! Keep us updated. You'll do fantastically. Despite my irrational fears, these surgeries are done everyday on millions of women a year.
heather34376 capnteal
Posted
I've read a lot of ladies who have one larger one, I think it's almost as common as a few smaller ones. x
heather34376 capnteal
Posted
Hi Capnteal,
I have only one, its large 13cm, nothing has reduced it, it looks like the blood supply is reduced, maybe cause I've had it 10 years. They've imaged it loads & said no signs of cancer, though they never truly know until its out. I've asked for a biopsy but been told as mine is in the lower uterine wall I can't have a biopsy & there is no need. I would have liked one. I have now been referred (I think though I've been waiting since October) to someone who does Da Vinci, to see if 13cm is possible by that method. My gynie (who is a cancer specialist) said that it can be done as long as the fibroid is not above the navel. Quicker recovery. However other risks, it's a balancing act as for me I'd have to be inverted for longer with keyhole which isn't great. Lots of love & best wishes to you both ladies, keep me up to date with how you are both doing as all 3 of us are in a similar situation.
capnteal heather34376
Posted
Thanks so much for commenting. Why is it a risk for you to be inverted, if you don't mine me asking? I'll be updating for sure. Please do the same! Wishing you the best and a speedy recovery no matter what surgery you opt for!
heather34376 capnteal
Posted
jazmin42797 capnteal
Posted
Hi Capnteal,
Reading this is scary, I have a 15cm fibroid which I found End of June 2017, and I haven't been told that having one large fibroid instead of little ones is more cause for concern!
I have my myomectomy operation book for February to have mine removed, and have had no biopsy or anything just a ultra sound and an MRI. Have they given you options on what you can do moving forward?
capnteal jazmin42797
Posted
The feedback I've been getting from EVERYONE is that it isn't a cause for more concern in particular. I honestly just think my Dr is an incredibly skilled surgeon with some room to grow for bedside manner. I also have so much anxiety with or without physical medical problems, so I tend to run away with the worst case scenario for myself often. I certainly didn't mean or want to scare anyone else, and I am genuinely sorry if I did. I was looking for folks to help bring me back down to earth -- that although cancer can never be ruled out completely until they take the tumor out and examine it, the odds are in your (and my) favor that it's benign. 70% of women have fibroids. Less than 1% have uterine sarcoma. Best to you in your surgery. Mine is also Feb. We are so close to having our bodies back!
heather34376 capnteal
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capnteal heather34376
Posted
da Vinci robotic hysterectomy and cystectomy. Leaving the ovaries and that's it.
1Jamie capnteal
Posted
Where are you - in the UK or US? the da Vinci is not as common here in Canada.
You'll feel so much better very soon. Sending best wishes for a speedy recovery.
capnteal 1Jamie
Posted
I'm in Chicago, so I feel really fortunate to have a lot available near me.
Thank you so much for your support.
heather34376 capnteal
Posted
That's great so they allow Da Vinci at 15cm - really reassuring. You decided on hysterectomy rather than myomectomy? On advice?
julie76958 capnteal
Posted