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Uterine Fibroids

Also known as Fibroids, Haematometra

All discussions in this group

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  • First period after myomectomy

    Hi all It was 2 weeks yesterday since I had my open myomectomy and this morning I woke with the worst period pains ever!! 😫 My tummy hurts so much particular at the sides of my scar and my back....if it hurt before, now it's seriously hurting!!! Is this normal??? Did anyone else experience...

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  • ESMYA experiences

    Hi ladies! I went to a gyno last week to discuss treatment for my 5x7 intramural fibroid which causes me heavy bleeding and sometimes a pressure towards my tailbone. I was curious about having a embolization but my gyno thought that Esmya would be better for me to start with. I have so many questions...

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  • Post UFE - 3 months and 3 weeks

    I am now 3 months 3 weeks post UFE. I am 40 years old. One of my fibroids measures 11 x 12 cm and is pressing on my bladder. I am still experiencing a dull ache. I can't bend down without having alot of pain. I am taking Naproxen. I have tried to come off the painkiller but it is no use. I went...

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  • Open Myomectomy

    I am just over 4 weeks post open myomectomy and was wondering how others have recovered. The scar is still swollen and sore which I expected however at times I get what I can only describe as sharp "stabbing" pains. These seem to be more from inside my body rather than from the scar. Is this...

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  • Fibroid embolization experiences

    Hi! I have a 6x6 cm fibroid which causes me heavy bleeding and pressure symptoms. I will be seeing a doctor in two weeks to discuss treatment options as I refuse hysterectomy. I'm 39 with no children. I've been reading about embolization and would really like to get in touch with other women...

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  • When will my cycle return to normal??

    Morning all Does anyone have experience if taking Decapeptyl SR triptorelin to shrinkyour fibroid's? I have 1 large fibroid that's 17cm across and begun taking them in January and had my last one in august but my periods still haven't come back, consultant suggested they will come...

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  • Pain caused by Fibroids

    'Pain' is often listed as a symptom of uterine fibroids. But this is a very vague word, and can't possibly describe the rainbow of discomfort and pain we might experience as a result of these fibroids.  I want to start this group to find out whether other women are experiencing extreme...

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  • After Abdominal Myomectomy

    I am 27 yrs old and i had an abdominal myomectomy on March 1st. They took out 3 fibroids; 4 1/2 cm, 3 1/2 cm and smaller one (which my doctor didn't specify size). They reopened my c section incision from 10 years ago. It has been a heck of a recovery. Each day holds something different for me. It...

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  • Fibroid grow back after 4 months of Laparoscopic Surgery ??

    I have a multiple Fibroid and have a Laporoscopy surgery removal at Columbia Asia Johor Malaysia, my Dortor during the surgery is Dr Rohaini, my surgery was done on 18/7/2017, I though after surgery, my fibroid will be gone but give me a shock when I go for pap smear at another Specialist hospital,...

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  • Fibroid under the age of 35, before kids

    I want to create this group for women who are diagnosed and treated for fibroid at a younger age far from the menopause and never had kids but wish to have kids sooner or later. Most of the other groups have information from women who are facing this issues after kids or closer to menupause so they...

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  • Very large fibroid(s)? and I'm scared.

    I am a 25 year old (female) I am a survivor of severe and chronic sexual abuse.  I've hated everything and anything to do with any of the female parts or reproductive parts of my body and have ignored them.  Fast forward to a few weeks ago and I knew that not being able to hold my urine...

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  • a large single fibroid, help and advice

    Hi all, I am new to this group, looking for some advice/supports, felt frustrated. My period is regular, no pain or severe bleeding, I do exercise regularly, can run 10 miles. I consider myself rather healthy until I felt a lump in my tummy, went to GP, referred ultrasound, confirm fibroid,...

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  • Strange symptoms but could they be related to my massive fibroid

    Hi fellow sufferers. I wonder have you ever had the following and been told that they are because of fibroid? I have one big one about 17cm diameter and nearly perfectly round. Lightheaded for 2 years My vein's in my hands go really quite blue from time to time I ache in the morning Lately I...

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  • Acessa Procedure

    Does anyone know if the Acessa Procedure (radio frequency ablation) is available anywhere in the UK, even privately? Has anyone had it done? If so where and how was it?

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  • Laprascopic Myomectomy

    Hi all I am having a Laprascopic Myomectomy on 11 January 2018. Recovery is 2- 4 weeks I have read but not sure which is correct I would like to know due to work commitments and just wondered if there are any other Ladies on here to advise.

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  • Bladder retention, fibroids and hysterectomy

    Hello  Well,  having spent most of the evening waiting to be catheterised again for bladder retention, was wondering if anyone else has this as a delightful side effect of fibroids? This is the second time it’s happened, the first was beginning of September. Then they told me it would have...

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  • UFE or removal?

    Hi All, im new here and needed some advice. So finally after 5years I have my pre op assessment for UFE in a couple of weeks. They gave me 2 options, one to have the UFE or to have them removed. Initially I thought I would try the less invasive option but now im not sure. The consultant said UFE would...

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  • Unusual symptoms of fibroids

    I’m having some symptoms in addition to the normal symptoms of fibroids and wondered if they are related.  Has anyone else experienced the following alongside fibroids: hair loss, dark circles under the eyes, fatigue (without heavy bleeding), neck and shoulder stiffness. 

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  • new group about treatment on fb

    This is a message from a group that I am a member. The group wants to create a list of names as a resource. UK ladies and not only, I was diagnosed with endometriosis, cysts & fibroids and I struggled to find an affordable private hospital in uk and a specialist on NHS so I went to Ecuador and had...

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  • Large fibroid in cervix

    I've just been back to consultant after having MRI as I have 9cm fibroid in my cervix which is attached to the uterus. Dr has said it's very usual due to its location, he has prescribed Esmya for 6 months to try and shrink it to maybe allow easier access for surgery but he doesn't think it...

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  • Post Fibroid Embolisation

    If my experience can help I would like to share this to other sufferers of fibroid.  Having decided not to try for a family after having had 4  failed IVF's, I just like my life back without pain, bleeding & generally miserable every month. I have ticked all the boxes that my gynae...

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  • IUD or tranexamic

    I have recently found out that i have a fibroid. My doc is keen to move with Mirena IUD but i am reluctant. I have had one cycle ( although this could be the warm up act who knows!) using Tranexamic and all seems a lot calmer. Is IUD the only sensible option or just the cheaper one!

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  • emya and still having heavy period

    hi please does anyone still get heavy bleeds with taking esmya because am on the 3rd month and my periods are still heavy. i was wondering if anyone had the same experience?. am thinking of going to see my GP to prescribe another medication i can be taken alongside esmya until i get the submucosal resection...

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  • consultant advice needed please!

    hi there - anyone in the London region here please who can recommend a hospital/surgeon? I'm looking towards a hysterectomy as I'm pretty much done with my troublesome uterus and will be going privately to avoid the very long waiting lists locally. I really have no idea where to go or who to...

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  • UFE experiences?

    I’m about to undergo this procedure in a couple of weeks.  I’ve had many pelvic surgeries due to endometriosis and fibroids and a surgeon burned my ureter which led to many more surgeries and chronic pain, so this procedure is one of my last possibilities.  I’m allergic to morphine but can...

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  • Did you have a UFE? Have your glass beads come out?

    Hi Less than 2 years after I had my UFE in Toronto the glass beads came out. I don't know if they all came out or if there are some left. I would never have noticed but I decided to 'not flush' at nites as a friend was low on water and I thought maybe, I should conserve too! In the morning...

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  • CBD for fibroids

    Has anyone tried CBD for fibroids if yes any results ? I'm starting to take it this week and will post any results

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  • What to do?!

    I posted recently about getting decapeptyl injections to shrink my fibroid. I saw a private consultant today who said his advice would be to continue with this in the first instance since I want to have a baby soon. I have bled constantly since my first injection 8 weeks ago. He said this is because...

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  • 3 weeks post UFE and feeling great!

    I learned that I had fibroids this past July.  I had a pelvic ultrasound to confirm the sizes and locations and learned that they were pretty large (I was told that I had two that were the size of grapefruits and one that was the size of a peach and then several small ones.  My gynecologist...

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  • Hot flashes after UFE

    Hi everyone I had an easy UFE experience the worst part was just laying flat for 6 hours after the procedure. My recovery has been good apart from having hot flashes. I'm sweating one minute and freezing the next, I'm not sure if it's a fever or hot flashes. What's the difference ?...

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  • Zoladex injections

    Hello ladies just an update I posted a while ago was on esmya tablets to try and shrink fiboriods. But only made the grow more now have been having zoladex injections to try and kick start menopause to see if that will help shrink them due to having large multiple fiboriods which are now making my kidney...

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  • Esmya Update

    Just wanted to update all you lovely ladies. I have taken two courses of Esmya now and my gynaecologist kindly agreed to let me have a scan to see how things were going. I was very pleased to be told that my 8cm fibroid had reduced in size to 5-6cm. I am delighted with this progress and intend to take...

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