15 months of treatment and TSH level is still extremely low
Posted , 6 users are following.
hello everyone.
I am Lujain , 28 year old female.
I am starting this discussion for more consultations regarding my condition from specialized doctors.
Since Nov. 2016 i was diagnosed with hyperthyroidism with TSH>0.005 and FT4 60.24 mpl/l.
So I went to a doctor and he told me it is Grave's decease. I did TSH receptor test and it was high, about 7.60 .
So I started my medication on 11th Dec. 2016 with a dose of 40 mg of Neomercazole. and the dosage got decreased to 5 mg since July 2017.
My FT3&FT4 were back to the normal levels since May 2017.
However, till now tests show my TSH is very low at 0.007. and TSH Receptors is decreasing. it is now 3 point something.
So in my last appointmenf the doctor mentioned that My condition is taking longer that it should that we need to consider taking the Radioiodine pill ad another solution.. but i told him i will keep on the medication for three more months and take my time to think my options.
I really wish to be fully cured not turning my condition into hypothyroidism instead. I dont want to lose my thyroid while science may find the cure.
I really want to get pregnant now while I am allowed to. But i am worried to sick that my baby could be affected by my condition somehow?
0 likes, 10 replies
carrie4kids lujain89
Posted
Have you tried methimazole? I was extremely high to and my neck is swollen. I was not insured for the last 2 years finally got insurance last month. Started taking methimazole last month and within 4 days I started feeling better. I take 15 mg. I don't see a specialist till end of may. I'm worried about them doing surgery for fear of it turning into hypothyroidism to. I hope all goes well for you.
Guest carrie4kids
Posted
Just thought I should mention that Neomercazole is metabolised to Methimazole by the body. Also, lujain89 the fact that your thyroid levels have normalised indicates that you have responded well to the antithyroid drug. In most Graves' disease patients TSH stays suppressed for some time even after the thyroid hormone levels have normalised.
Hi carrie4kids, it's great that you are doing better.
Mike61308 lujain89
Posted
linda187 lujain89
Posted
lujain89 linda187
Posted
I will start taking the supplements right away.
and I will do the research myself regarding the Regular and Acetyl L-Carnitine.
Also, How frequent should I do the tests? is it like weekly?
linda187 lujain89
Posted
lujain89 linda187
Posted
I am happy for your health improvement and hope you have a healthy thyroid for the rest of your life.
grayesthistle lujain89
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lujain89 grayesthistle
Posted
I got confused whose instructions to follow but I feel more comfortable with the second doctor since he was with me from the very beginning and he knows my condition better.
grayesthistle lujain89
Posted