16yo old son may have HSP

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Hello, the dermatologist said my son most likely has IgA Vasculitis. He also had a small amount of blood in his urine. They have him on 40mg of prednisone to see if it clears up in 2 weeks. They want to test for strep in his system.

My question is, could this be related to his severe ankle break that occurred nearly 3 months ago?

Or could the metal plate in his ankle be causing it?

The dermatologist doesn't think it is related but it seems so obvious. The rash started about the same time.

He had a high dose of morphine the day of ankle break and then an antibiotic and other painkillers. When the rash started to look concerning we took him off all painkillers. That has been a little over two months ago. Thank you for any insight you can offer

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14 Replies

  • Posted

    It is best taking your son back to have this checked out I took ill on the 2nd of December 2015 thought it was just a virus and ended up in on New year's eve kept in for a week was been given pain killers but my joints were killing me had a biopiosy done and it was confirmed the following week that I had HSP. Thankfully all tests on my urine have been clear barr 2 infecions but no blood. The only problem I am finding at the minute is my joints are so sore in my feet and arms and some mornings I wake up with bruises. Just seem to be living of tablets

    If your not happy take him to get rechecked.

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  • Posted

    My second flare up of HSP coincided perfectly with a fractured foot but I had no injury around the time of my first flare up. I didn't take any drugs for the fracture though so I think it was more to do with my immune system overacting to the injury.

    There is also hypersensitivity vasculitis which can be set off after a reaction to drugs. Perhaps it could be that? The symptoms are pretty much identical to HSP.

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    • Posted

      That very well could be true. The stress or pain of break may have been enough to set off immune system.

      Hypersensitivity Vasculitis does sound more likely since he had no infections that I am aware of.

      We will just need to make sure it is not the metal plate since, although rare, we have heard that an allergy to metal may show up in different places on the body

      Thanks

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  • Posted

    First off, the doctors just don't know what the cause is, period !  There are NO known ways to determine what caused it at the moment. Therefore it is left to us in the forums to speculate until more science is applied to this issue.

    In my research it does break out into two main types of issues with each being triggered in different ways.

    They type you are talking about sure seems to me to have a high corrolation to allergic response.  The real difficult part is determining the trigger and/or continued contributor to an allergy.   There were so many factors as part of the incident and even possibly related but not considered as part of it.

    For example it could be any of the items you mentioned and you can eliminate then and with prednisone, if symptoms begin to clear up and don't immediately come back, then likely it could be due to them.  I really hope they have him on a taper and start it high enough and come down slow enough.   Maybe something like 6 tablets, 6, 6, 5, 5, 4, 4, 3, 3, 2, 2, 1, 1  or something like that.  NEVER just stop taking Prednisone, don't miss a day and please taper it down.  The shock to the system is not good.  

    Please also consider everything wholistically.  By that I mean if also due to this instance he ate or was exposed to anything else like a rare type of food or drink that was started around or just before it could also be the cause and a traumatic shock that kicked off the immune system was when the symptoms would first show up.

    It took me almost 2 years to finally research enough and try to eliminate enough things such that I found what I was allergic to (chocolate) and Prednisone seemed to work pretty well which also tells me it was the allergy type.

    However, this is just one type.

    Try to clean and eliminate as many things and see how the Pred goes.  If it seems to work, then I'm guessing allergy to something and hopefully not the metal but any foreign substance in the body is likely to trigger immune response and even if it's not the metal, the slight allergy to whatever (if that is what it is) is going to push him over the edge to have the HSP symptoms.   

    Well good luck and let us know how things progress.

    Also the dermatologist is the last doctor you should see about this.  It should be an immunologist.

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    • Posted

      This all makes perfect since. We are definitely the family who likes to go holistic.

      We were in Mexico in January so my son immediately considered an exposure to something as the cause

      I also read that Paleo eating helps

      Thank you so much for your advice with the prednisone tapering and also the immunologist

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    • Posted

      Whilst I'm not disagreeing about the immunologist at all, the dermatologists have been the only ones to help my symptoms (by prescribing me dapsone). I would recommend seeing as many different doctors as you can. They all have such different opinions.

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    • Posted

      It's probably better to say see them both.  Years prior I saw a dermatologist first, they told me those spots were due to a rash and had a second doctor in the office for another opinion and they told me the rash would cause scarring for life.  Well, it didn't (and doesn't even when it gets really bad).   I also think the Dapsone is for the other type of cases I was not addressing.  Clearly because so little is known we need to see different doctors when diagnosis does not work or the specific drugs prescribed don't also.   Thanks for posting as a reminder that every situation is unique (and frustrating to all of us).  

      I have heard that of the two types either Dapson works and that means something different or the prednisone does (although each seems only temporary until the root is fixed or body self recovers).

      Also  I forgot to mention somebody spoke about and studies confirmed that in the Prednisone type cases, fish oil seems to also help tremendously. (thanks to whomever posted that a while ago).

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    • Posted

      I've probably got the other type then. Ores did nothing for me but dapsone changed my life. Also, whilst I can't confirm the scarring is life long, the areas in which I had the heaviest rash still have prominent scars after 6 years. I haven't yet seen any improvement so I'm doubtful it will disappear entirely. Lucky me.

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  • Posted

    Is it good to see kidney specialist as recommended by dermatologist?
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    • Posted

      Absolutely. My first doctors said 'of your kidneys seem fine' and didn't test them again for a year. In that time 10-15% of my kidneys had been damaged to such an extent it is unrecoverable. Insist on regular checks.

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    • Posted

      Sorry I'm not trying to scare you. It is rare for kidney damage to happen very quickly and even rarer in young people. However, 2 weeks of pred is quite a short time. I was on it for months before they would consider anything else. I just want you to keep in mind the need for regular checks (at a minimum 6 months - I'm on 2 monthly checks now). I don't want anyone going through what I did if I can help it!

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