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Henoch-Schonlein Purpura

Can you help? Discussions needing a reply

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  • Henoch-Schönlein purpura

    My 4 yrs old boy has this since 21 March 2017 & now it is 8weeks. He had swollen ankle then moved to knee & back to ankle again. All this repeating for few round. His tiny red spots come n go too until last week we thought that he is going to heal totally as getting less n less spots. He starts...

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  • My 9 year old daughter had had this 8 months

    I'm looking for advice my daughter had been diagnosed with this condition since June but been suffering since January , she has had such a bad episode this time it looks like she is going to have scars , She has been referred to a dermatologist now and waiting to to them . Will she out grow this....

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  • 6 years now.

    I'm a 32 year old mother of 4 who has had HSP for 6 years now. Its been a daily struggle. It gets worse with each flare up. Finally got an appt at the mayo clinic where they started me on immunesupressant injections. I've joined this group in hopes to find others that can relate to my pain and...

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  • HSP versus using Keflex (Antibiotics)

    My six y.o. daughter was in remission with her HSP since March 2017, but recently she has had to take Keflex antibiotic due to multiple staph infections. Within five weeks, she was taking Keflux on two different occassions. The first time went great and the staph infection went away, but within three...

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  • 20 year old male with HSP . What to do?

    Hi. back in april 2016, i was diagnosed with HSP. Since then, I have been hospitalised three times, and I dont feel one step closer to be cured from this disease. I have tried prednisolone for a year, which did'nt work, I've tried dapsone, which kinda worked, but decreased my haemoglobin...

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  • My 13 month old was diagnosed with hsp. Any advice?

    Hi everyone. My 13 month old daughter was diagnosed with hsp two days ago. She has this awful shocking purple bruise like rash that covers her lower limbs. She couldn't walk for 24 hours but now she can. She was in lots of pain but now it seems to come and go. She has been constantly unwell with...

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  • There doesn't seem to be an end...

    I'm 17 years old. I got diagnosed with hsp in November after developing a rash on my leg. I've had it for almost a year and it just won't go. I had a tough tough time of it, from the rash everywhere, joint pain so bad in a wheelchair and then crutches, urinating Nothing but pure blood and...

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  • Advice and information please

    Hi my husband aged 64 has been recently diagnosed with serious pneumonia and was hospitalised receiving large amounts of antibiotics. Last week he developed swelling and a rash over his lower legs and has been diagnosed with vasculitis, has a follow up appointment with the consultant. He is having...

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  • suffering with HSP

    I was diagnosed with henoch-schonlein purpura (HSP) in March 2014.  It started off with little red spots appearing on my legs and tummy, and with working in a nursery I assumed it was just chicken pox.  The next day I went to see my local GP to be told it was just an allergic reaction and was...

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  • My daughter is six and has had HSP for 8 weeks. She has ...

    My daughter is six and has had HSP for 8 weeks. She has not had any kidney involvement, thankfully, but has had swelling and a rash that just will not quit. I was told that this was a 4-6 week thing and the doctors are very casual about it outside of insisting that her urine be checked. It is very much...

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  • Augmentin

    Has anyone had Augmentin prescribed to their child for an infection and during the course developed the HSP?

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  • 38 and just diagnosed with HSP

    I am 38 and have just been diagnosed with HSP and have a few questions about it. 1. Does prendasone do anything for it or does it just run it's course? 2. How long does it take for the swelling and blotchiness to go away? 3. It seemed to stop just above my waist. Will it go any further? 4.is it odd...

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  • TONSILLECTOMY

    Has anyones child been referred to ENT specialist to have their tonsils removed? Did that improve infections, or symptoms related to HSP?

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  • HSP is genetic

    Today I took my eight year old to see specialist in New Orleans that deal with HSP. After meeting with an urologist and the a nephrologist we finally had some answers. My sons condition has been going on for 4 months now, as of the last two weeks we have seen an improvement. After multiple tests we...

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  • Thyroid involvement?

    My daughter is 6 now. She got diagnosed with HSP in March. Her nightmare of a story is already posted on her. After her two emergency surgeries we did weekly urine tests. They had been coming back okay with only a trace of blood here and there. This week she got an ear infection and ran a low grade temp....

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  • HSP in "Eight year old female"

    My daughter was recently diagnosed with HSP. It was quite a trial seeing her suffer through the various stages and symptoms. She has always been a healthy child until recent past two months whereby she came home from school with every ailment out there. It resulted in many absences at school. The last...

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  • Makeup or Coverup for HSP?

    I understand that the rash itself is not medically the most serious part, but it really hurts my morale and gets me down in the dumps to have to see it every day and also to have to cover it up with clothing, in hot weather. I actually think it makes it worse. Anyways, when I asked for cream from my...

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  • Henoh shonlein purpura

    My 15 year old daughter has been diagnosed with this condition after getting run down. Doctors have said is may have been caused by a reaction to penicillin. She has been on steroids now for 5 weeks and 3 of those on 60mg. We have had two trips to hospital with accute stomach pain and vomiting....

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  • 3 year old son with hsp

    Hello my son was diagnosed with hsp a few days ago. It has been very stressful and I have been trying to do as much research on it as possible it has been difficult because not that many people know what it is. I just joined this group to try and understand more about it and what I can do to help him....

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  • Henoch Schonlein Purpura in Adults?

    Hi, I'm currently a 19 year old female student in my 2nd year of my degree, during March 2012, I was diagnosed with Henoch Schonlein Purpura (HSP) after being sent to hospital with meningitis like symptoms. You can imagine the relief, when I found it it was not in fact meningitis. The symptoms of...

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  • 8 year old with hsp

    My son was diagnosed with HSP at the end of February and is still having outbreaks till this day. We see a specialist in two weeks. Has anyone noticed that possible stress can cause the outbreaks? He lives one week with me one with dad and I have noticed that when we exchange he has an outbreak????...

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  • HSP going on 2 months

    My 8 year has been diagnosed with HSP...February 24th he had strep followed with a red rash covering his lower body, he was misdiagnosed with scarlet fever. Fast forward to now and we are on number 6 with outbreaks and they are getting worst and now they are literally covering his entire lower body...

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  • 1st HSP @ 8yo. Now 22 Suffering GI involvement from HSP??

    So I have been seeing GI after GI for some time now. With overwhelming nausea, severe bloating, and discomfort using the bathroom. FINALLY today after talking with my dr about the ulcers in my mouth, as well as fissures in my large intestine, he asked if anyone had ever linked my HSP to GI issues. And...

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  • 23yr Old HSP (Student at Uni) IT DOES GET BETTER!!

    Hello All This post is aimed at the slightly older people who have got HSP... Im a 23 year old student at Universtiy in the UK. I got HSP while i was on holiday in the states. It started off with the red spots on my ankle and then spread untill i had a really bad rash all over my legs and on my waist...

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  • it's starting to get a bit annoying, just looking for some support

    The symptoms started about a year ago, and like many cases of HSP the diagnosis was tedious, confusing and long. So far, I have realised that the disease is rare enough for doctors to make mistakes and wrong diagnoses as well (they are human after all). Another thing I have realised is that the symptoms...

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  • HSP

    I'm 21 and I was diagnosed with HSP 3 months ago but I probably have it the last 5 months. These posts are so interesting because like a lot of you alcohol makes mine flare up (especially wine). I was admitted to hospital with mine where they did so many tests, I had a skin biopsy carried out too!...

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  • IS THERE AN END TO HSP EVEN AFTER ITS GONE???

    I am 22 year old female from Ireland.I have been suffering with the horrible disease of HSP for 2 months This is my story... On the 28TH of February this year I woke up with abdominal pain i thought nothing of it at first but as the day progressed it got worse and worse so bad it was unbearable and...

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  • What type of doctor is best for diagnosis

    I've shown the rash on my lower legs to several differant doctors, non of which had any idea. If I have HSP it must be a chronic thing because the rash has been there since 2013 at least and has only gotten worse. ​I have numerous bouts of intestinal distress where it feels like my intestines are...

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  • HSP and sun poisoning?

    Hello everyone, We are new to HSP (this year).  My daughter is 20 and is having a terrible time with the sun.  She has never burned in the sun until this year.  she got sun poisoning terribly after being in the sun for only 30 min.   Anyone know about this?  thanks!  

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  • 5 year old diagnosed with HSP

    Hey everyone. My 5 year old was just diagnosed with HSN today. I know the Internet is horrible to go to but I'm at a loss and trying not to freak out. He has had the rash on his legs, just below the knees so far. He's had them for a week now. He started complaining last night that it hurt to...

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  • Please Help- Severe HSP Rash

    Hi All,  My daughter is in her 3rd week of HSP. She had abnormal swelling all over her body so they gave her a course of sterroids for 5 days. She was off the sterroids for 1 day and now she has these massive sections of brusing that are black on the inside which will scab and scar. They are extremely...

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  • Almost 3-yr old girl with HSP - please help!

    Hello all, So, so glad to have found this forum. My almost-3-year-old daughter has been diagnosed with HSP and I'm just trying to research as much as I can to get myself knowledgeable. Her leg pain started 5 days ago. I have a few questions: * She experiences severe headaches in the mornings right...

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  • Five year old with hsp

    My five year old daughter just got diagnosed with hsp about four weeks ago. It's been a nightmare ever since. Every part of her body has swollen, including her head and spine. She couldn't walk some days because of the pain. Then, one day she started vomiting blood. We rushed her to the ER. They...

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