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Henoch-Schonlein Purpura

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  • HSP and behaviour changes

    Hi, As you know our story my son been diagnosed with HSP back in September 2017. We were so lucky everything come and gone within 3 weeks. He was out of school for 2 weeks and he was in part time for a week. We did not let him to do PE till the half term but since that he is back to normal exept his...

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  • 23 year old male suffering from HSP/ vasculitis for 2 months

    Hi everbody. I am a 23 year old male suffering from HSP/ vasculitis. I have been suffering with this for over 2 months now and i am becoming worried it may not clear. I first noticed the red blood spots (perpura) on my lower legs which within days spread to my thigs. I have visited my doctors on a couple...

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  • HSP

    Hi mine son was diagnosed with hsp in December 2016. I never knew about this sickness, Hospital wasn't helpful as they give me a small p**s of paper and send us home. By that stage he was screaming from pain in his tummy and again they sent us home it got to that stage that he stopped walking and...

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  • My 13 month old was diagnosed with hsp. Any advice?

    Hi everyone. My 13 month old daughter was diagnosed with hsp two days ago. She has this awful shocking purple bruise like rash that covers her lower limbs. She couldn't walk for 24 hours but now she can. She was in lots of pain but now it seems to come and go. She has been constantly unwell with...

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  • HSP is genetic

    Today I took my eight year old to see specialist in New Orleans that deal with HSP. After meeting with an urologist and the a nephrologist we finally had some answers. My sons condition has been going on for 4 months now, as of the last two weeks we have seen an improvement. After multiple tests we...

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  • DIET AND HENOCH-SCHONLEIN PUPURA - ANY VIEWS?

    Hi I am just diagnosed with Henoch - Schonlein Purpura. Has anyone had any success in controlling it by changing their diet? Not eating stuff? Taking vitamins/minerals/using natural remedies/using cream for the rash?  I know people are saying steroids/chemo drugs help, but I don't react well...

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  • Listen!

    Hi everyone. I’m 18 years old. I was diagnosed with henoch schunlein purpura in October 16. I had the rash extremely bad, swollen joints and the generally feeling of weakness etc. All the signs of HSP! The hospital were quick to diagnose me and gave me medication of antibiotics to help which absolute...

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  • HSP / Henoch-Schonlein Purpura (Vasculitis)

    I was just diagnosed a few weeks ago. It seemed to be improving but then a week ago flared with a vengeance. Again it started to improve and then on Wed of this week re-flared significantly. I have it on both legs, top to bottom, front and back and just noticed a few minutes ago that it's started...

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  • Bad hsp flare up

    I am going through the worst.flare up.of hsp that I have had in 18 years the rash and pain is from the shoulders to my feet and the pain is awful. I wish I didn't have this. There is no cure . It's there just waiting to come.back time and time again

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  • Mild HSP in 7 year old female with proteinuria

    Back story: My daughter started complaining of ankle pain on 11/27/17, and we didn't think much of it. The morning of 11/28/17 she was limping, but there was no visible trauma to the ankle, and she did not remember injuring herself - so we sent her off to school. After she came home from school on...

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  • HSP newbie

    Hey everyone, new to this thing called HSP. Started with spots on my legs, then within a few days it spread like wildfire, mainly on my Christmas party night when I was drinking all day! It’s all over my legs, buttocks, tummy , arms and severe on my left hand... I went to the emergency room on Christmas...

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  • Henoch-Schonlein Purpura, what should I do?

    I'm 16, 17 soon (female) and was diagnosed in February this year with HSP (Henoch-Schonlein Purpura). My doctor told me that it's abnormal because its most common in boys and children. She told me if the rash comes back more than two or three times to go back as it could be a sign of something...

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  • any other adult females with HSP??? pls reply

    Hi, im a 35 yr old woman who was diagnosed with HSP in 1997, after being admitted to hospital with abdominal pains. I was put on steriods & dapsone following diagnosis, which eventually eased the visual symptoms. It was all made worse after my son was born, which has left me in stage 3 kidney...

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  • HSP

    My 8 year old daughter has had HSP for 2 weeks 1st rash cleared up after 10 days now it is back with a vengeance. What worries me is how cold her feet are and they never warm up? Is this normal for children with HSP. Please help I'm at my wits end no one seems to have any answers or a way forward...

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  • 23yr Old HSP (Student at Uni) IT DOES GET BETTER!!

    Hello All This post is aimed at the slightly older people who have got HSP... Im a 23 year old student at Universtiy in the UK. I got HSP while i was on holiday in the states. It started off with the red spots on my ankle and then spread untill i had a really bad rash all over my legs and on my waist...

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  • Hsp

    Hi ! My little boy was dignosed on Tuesday ! He is non verbal autism ;-( so can't tell me he's in pain or anything ! Non stop being sick and the rash is head to toe ! Anybody else's children been so poorly with this and how long does it last ! Heart breaking thanks Jenny x

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  • What to expect?

    My daughter got HSP in March of last year when she was 5. She was hospitalized for two weeks  because it caused her to have intususseption and she had 28 cm of her small intestine removed. Altogether, her HSP symptoms lasted about 4 weeks, including the two weeks in the children's hospital. ...

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  • Henoch Schonlein Purpura in Adults?

    Hi, I'm currently a 19 year old female student in my 2nd year of my degree, during March 2012, I was diagnosed with Henoch Schonlein Purpura (HSP) after being sent to hospital with meningitis like symptoms. You can imagine the relief, when I found it it was not in fact meningitis. The symptoms of...

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  • Henoch-Schönlein purpura (IgA vasculitis) treatments that work

    Hi everyone, Like most of you, my diagnosis of HSP was complicated and drawn out but I have had symptoms for over two years now - rash, joint pain, stomach pain with loose or bloody stools, etc. I have been on prednisone and imuran (azathioprine) for over a year with no improvement. I am actually worse,...

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  • HELP!!

    My 9 year old son broke out with the classic hsp rash six weeks post open heart surgery. He had a bad case of rash over 75% of his body. The week after the rash he started spilling protein. 2 weeks after that protein was so high they did kidney biopsy he had 40% loss of kidney function. Currently doing...

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  • HSP 50 years ago, is it affecting me now ?

    When I was 4 i contacted HSP and was hospitalised. 4 weeks of steroid treatment (very large doses) resulted in rapid weight gain and collapsed feet arches. I don't remember much apart from going round the ward finishing everyone's food ! Since then, however there have been a number of things...

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  • I am an adult and have the chronic form of this disease....

    I am an adult and have the chronic form of this disease. I was diagnosed in 1989. After being diagnosed, shortly after surgery, I had all the typical symptoms. I had hematuria for four years, and have continuing proteinuria to this day. I control the loose stools with medication and diet. The initial...

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  • IS THERE AN END TO HSP EVEN AFTER ITS GONE???

    I am 22 year old female from Ireland.I have been suffering with the horrible disease of HSP for 2 months This is my story... On the 28TH of February this year I woke up with abdominal pain i thought nothing of it at first but as the day progressed it got worse and worse so bad it was unbearable and...

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  • Trying to Diagnose my Henoch-Schonlein purpura

    Hi. Was hoping I could get some help figuring out if I have  Henoch-Schonlein purpura.  I first got this rash in July 2017. I am still currently dealing with this to date, October 2017. It occurs on my feet, ankles, legs, and sometimes my bottom. The rash itself constists of red blotches,...

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  • How Can U Just Catch It???!!!

    I was directed to this website beleiving i may have found help or further information to my problem. Now I have had this all my life i am 22 years old now, Sorry if i sound rude but How can you possibly say you just woke up 1 day and caught it like it is some kind of disease caught by breathing or something,...

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  • My daughter is six and has had HSP for 8 weeks. She has ...

    My daughter is six and has had HSP for 8 weeks. She has not had any kidney involvement, thankfully, but has had swelling and a rash that just will not quit. I was told that this was a 4-6 week thing and the doctors are very casual about it outside of insisting that her urine be checked. It is very much...

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  • HSP rash got better now worse

    Hi. My 5 year old was diagnosed with HSP about 1 month ago. The rash was inherited lower legs. It almost disappeared last week but today it is back and on the tops of her legs, feet and buttocks. It looks so awful. She is ok in herself and has been going to school. I'm just wondering how long the...

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  • What is this awful thing.

    My son is eight years old his started with a stomach ache on a Friday after school give him calpol as you do. Saturday his ankle blew up then his feet then the rash took him straight to Norfolk and Norwich had a diagnosis in 40 mins HSP they put him on ward overnight because high BP. He come home...

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  • Diagnosed with HSP and send to school from tomorrow

    Hi All of You, My son (5.5years old) been diagnosed by HSP. I asked the doctor to give me an advice do I have to keep him at home or can he go to school. He said I can send him back straight away. He had swollen elbow and pain but he said if I do not want to send him I can keep him at home. I want...

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  • Treating Vasculitis-HSP with medical cannabis?

    Has anyone ever used medical cannabis to help treat HSP in children???? My 13 year old nephew was diagnosed with a severe case of HSP and was recently released from a week stay at two different Hospitals in Arizona.  They have him on two different blood pressure medications (the Hsp caused him to...

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  • My 10year-old daughter had HSP for 5 months and now is doing well

    I would like to give some lights to the ones who are suffering the HSP. My daughter has been diagnosed with HSP this April. She had light symptoms only spots on the body, no other symptoms. The doctors didn't give her any medicine, they said for that no effective treatment is available. They asked...

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