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Henoch-Schonlein Purpura

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  • I am an adult and have the chronic form of this disease....

    I am an adult and have the chronic form of this disease. I was diagnosed in 1989. After being diagnosed, shortly after surgery, I had all the typical symptoms. I had hematuria for four years, and have continuing proteinuria to this day. I control the loose stools with medication and diet. The initial...

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  • Bad hsp flare up

    I am going through the worst.flare up.of hsp that I have had in 18 years the rash and pain is from the shoulders to my feet and the pain is awful. I wish I didn't have this. There is no cure . It's there just waiting to come.back time and time again

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  • IS THERE AN END TO HSP EVEN AFTER ITS GONE???

    I am 22 year old female from Ireland.I have been suffering with the horrible disease of HSP for 2 months This is my story... On the 28TH of February this year I woke up with abdominal pain i thought nothing of it at first but as the day progressed it got worse and worse so bad it was unbearable and...

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  • My 13 month old was diagnosed with hsp. Any advice?

    Hi everyone. My 13 month old daughter was diagnosed with hsp two days ago. She has this awful shocking purple bruise like rash that covers her lower limbs. She couldn't walk for 24 hours but now she can. She was in lots of pain but now it seems to come and go. She has been constantly unwell with...

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  • Trying to Diagnose my Henoch-Schonlein purpura

    Hi. Was hoping I could get some help figuring out if I have  Henoch-Schonlein purpura.  I first got this rash in July 2017. I am still currently dealing with this to date, October 2017. It occurs on my feet, ankles, legs, and sometimes my bottom. The rash itself constists of red blotches,...

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  • HELP!!

    My 9 year old son broke out with the classic hsp rash six weeks post open heart surgery. He had a bad case of rash over 75% of his body. The week after the rash he started spilling protein. 2 weeks after that protein was so high they did kidney biopsy he had 40% loss of kidney function. Currently doing...

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  • How Can U Just Catch It???!!!

    I was directed to this website beleiving i may have found help or further information to my problem. Now I have had this all my life i am 22 years old now, Sorry if i sound rude but How can you possibly say you just woke up 1 day and caught it like it is some kind of disease caught by breathing or something,...

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  • My daughter is six and has had HSP for 8 weeks. She has ...

    My daughter is six and has had HSP for 8 weeks. She has not had any kidney involvement, thankfully, but has had swelling and a rash that just will not quit. I was told that this was a 4-6 week thing and the doctors are very casual about it outside of insisting that her urine be checked. It is very much...

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  • HSP rash got better now worse

    Hi. My 5 year old was diagnosed with HSP about 1 month ago. The rash was inherited lower legs. It almost disappeared last week but today it is back and on the tops of her legs, feet and buttocks. It looks so awful. She is ok in herself and has been going to school. I'm just wondering how long the...

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  • What is this awful thing.

    My son is eight years old his started with a stomach ache on a Friday after school give him calpol as you do. Saturday his ankle blew up then his feet then the rash took him straight to Norfolk and Norwich had a diagnosis in 40 mins HSP they put him on ward overnight because high BP. He come home...

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  • Diagnosed with HSP and send to school from tomorrow

    Hi All of You, My son (5.5years old) been diagnosed by HSP. I asked the doctor to give me an advice do I have to keep him at home or can he go to school. He said I can send him back straight away. He had swollen elbow and pain but he said if I do not want to send him I can keep him at home. I want...

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  • Treating Vasculitis-HSP with medical cannabis?

    Has anyone ever used medical cannabis to help treat HSP in children???? My 13 year old nephew was diagnosed with a severe case of HSP and was recently released from a week stay at two different Hospitals in Arizona.  They have him on two different blood pressure medications (the Hsp caused him to...

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  • Henoch Schonlein Purpura in Adults?

    Hi, I'm currently a 19 year old female student in my 2nd year of my degree, during March 2012, I was diagnosed with Henoch Schonlein Purpura (HSP) after being sent to hospital with meningitis like symptoms. You can imagine the relief, when I found it it was not in fact meningitis. The symptoms of...

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  • My 10year-old daughter had HSP for 5 months and now is doing well

    I would like to give some lights to the ones who are suffering the HSP. My daughter has been diagnosed with HSP this April. She had light symptoms only spots on the body, no other symptoms. The doctors didn't give her any medicine, they said for that no effective treatment is available. They asked...

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  • Henoch-Schönlein purpura

    My 4 yrs old boy has this since 21 March 2017 & now it is 8weeks. He had swollen ankle then moved to knee & back to ankle again. All this repeating for few round. His tiny red spots come n go too until last week we thought that he is going to heal totally as getting less n less spots. He starts...

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  • Thyroid involvement?

    My daughter is 6 now. She got diagnosed with HSP in March. Her nightmare of a story is already posted on her. After her two emergency surgeries we did weekly urine tests. They had been coming back okay with only a trace of blood here and there. This week she got an ear infection and ran a low grade temp....

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  • HSP - How long before the joint pain goes away ?

    My 11 yr old daughter was diagnosed with HSP around 6 weeks ago.  She had rash on her legs and elbows, vomitting, diarrhea, kidney infection (protein in urine), abdomen pain and join pain. This is her second recurrence as she got HSP once when she was 3 yrs old (though it went away at that time...

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  • HSP in "Eight year old female"

    My daughter was recently diagnosed with HSP. It was quite a trial seeing her suffer through the various stages and symptoms. She has always been a healthy child until recent past two months whereby she came home from school with every ailment out there. It resulted in many absences at school. The last...

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  • My 9 year old daughter had had this 8 months

    I'm looking for advice my daughter had been diagnosed with this condition since June but been suffering since January , she has had such a bad episode this time it looks like she is going to have scars , She has been referred to a dermatologist now and waiting to to them . Will she out grow this....

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  • 6 years now.

    I'm a 32 year old mother of 4 who has had HSP for 6 years now. Its been a daily struggle. It gets worse with each flare up. Finally got an appt at the mayo clinic where they started me on immunesupressant injections. I've joined this group in hopes to find others that can relate to my pain and...

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  • HSP versus using Keflex (Antibiotics)

    My six y.o. daughter was in remission with her HSP since March 2017, but recently she has had to take Keflex antibiotic due to multiple staph infections. Within five weeks, she was taking Keflux on two different occassions. The first time went great and the staph infection went away, but within three...

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  • 20 year old male with HSP . What to do?

    Hi. back in april 2016, i was diagnosed with HSP. Since then, I have been hospitalised three times, and I dont feel one step closer to be cured from this disease. I have tried prednisolone for a year, which did'nt work, I've tried dapsone, which kinda worked, but decreased my haemoglobin...

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  • There doesn't seem to be an end...

    I'm 17 years old. I got diagnosed with hsp in November after developing a rash on my leg. I've had it for almost a year and it just won't go. I had a tough tough time of it, from the rash everywhere, joint pain so bad in a wheelchair and then crutches, urinating Nothing but pure blood and...

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  • Advice and information please

    Hi my husband aged 64 has been recently diagnosed with serious pneumonia and was hospitalised receiving large amounts of antibiotics. Last week he developed swelling and a rash over his lower legs and has been diagnosed with vasculitis, has a follow up appointment with the consultant. He is having...

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  • suffering with HSP

    I was diagnosed with henoch-schonlein purpura (HSP) in March 2014.  It started off with little red spots appearing on my legs and tummy, and with working in a nursery I assumed it was just chicken pox.  The next day I went to see my local GP to be told it was just an allergic reaction and was...

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  • Augmentin

    Has anyone had Augmentin prescribed to their child for an infection and during the course developed the HSP?

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  • 38 and just diagnosed with HSP

    I am 38 and have just been diagnosed with HSP and have a few questions about it. 1. Does prendasone do anything for it or does it just run it's course? 2. How long does it take for the swelling and blotchiness to go away? 3. It seemed to stop just above my waist. Will it go any further? 4.is it odd...

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  • TONSILLECTOMY

    Has anyones child been referred to ENT specialist to have their tonsils removed? Did that improve infections, or symptoms related to HSP?

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  • HSP is genetic

    Today I took my eight year old to see specialist in New Orleans that deal with HSP. After meeting with an urologist and the a nephrologist we finally had some answers. My sons condition has been going on for 4 months now, as of the last two weeks we have seen an improvement. After multiple tests we...

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  • Makeup or Coverup for HSP?

    I understand that the rash itself is not medically the most serious part, but it really hurts my morale and gets me down in the dumps to have to see it every day and also to have to cover it up with clothing, in hot weather. I actually think it makes it worse. Anyways, when I asked for cream from my...

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  • Henoh shonlein purpura

    My 15 year old daughter has been diagnosed with this condition after getting run down. Doctors have said is may have been caused by a reaction to penicillin. She has been on steroids now for 5 weeks and 3 of those on 60mg. We have had two trips to hospital with accute stomach pain and vomiting....

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  • 3 year old son with hsp

    Hello my son was diagnosed with hsp a few days ago. It has been very stressful and I have been trying to do as much research on it as possible it has been difficult because not that many people know what it is. I just joined this group to try and understand more about it and what I can do to help him....

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