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Henoch-Schonlein Purpura

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  • Adults HSP Advice

    I'm 20 years old and I've had HSP for four months (after initially been told it lasts 4-6 weeks) since my diagonosis life has been a nightmare. I was hospitalised with the most severe abdominal pain I have ever felt; morphine couldn't even settle it. I lost 10kg and was altogether a shell...

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  • How common is HSP

    My 6 year old daughter developed HSP a year ago thankfully she is ok now but over the weekend our 7 year old next door neighbour now has a v bad case of it. They are best friends but surely this cannot be linked?

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  • Does HSP ever really go away???

    I’m 21 years old and I just recently got diagnosed with henoch-schonlein purpura. This started in December with severe joint paint that almost completely immobilized me. My mom took me to the ER and they tested my SED rate and it was elevated so they referred me to a rheumatologist, prescribed me steroids...

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  • HSP - How long before the joint pain goes away ?

    My 11 yr old daughter was diagnosed with HSP around 6 weeks ago.  She had rash on her legs and elbows, vomitting, diarrhea, kidney infection (protein in urine), abdomen pain and join pain. This is her second recurrence as she got HSP once when she was 3 yrs old (though it went away at that time...

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  • My daughter is six and has had HSP for 8 weeks. She has ...

    My daughter is six and has had HSP for 8 weeks. She has not had any kidney involvement, thankfully, but has had swelling and a rash that just will not quit. I was told that this was a 4-6 week thing and the doctors are very casual about it outside of insisting that her urine be checked. It is very much...

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  • 20 year old male with HSP . What to do?

    Hi. back in april 2016, i was diagnosed with HSP. Since then, I have been hospitalised three times, and I dont feel one step closer to be cured from this disease. I have tried prednisolone for a year, which did'nt work, I've tried dapsone, which kinda worked, but decreased my haemoglobin...

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  • any other adult females with HSP??? pls reply

    Hi, im a 35 yr old woman who was diagnosed with HSP in 1997, after being admitted to hospital with abdominal pains. I was put on steriods & dapsone following diagnosis, which eventually eased the visual symptoms. It was all made worse after my son was born, which has left me in stage 3 kidney...

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  • Diagnosed with HSP and send to school from tomorrow

    Hi All of You, My son (5.5years old) been diagnosed by HSP. I asked the doctor to give me an advice do I have to keep him at home or can he go to school. He said I can send him back straight away. He had swollen elbow and pain but he said if I do not want to send him I can keep him at home. I want...

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  • Older HSP

    Hi, my son is 19. He first had HSP aged 8. It lasted about four months and no one really knew what to do with him. He had no treatment, luckily he had no renal issues and all seemed ok. Aged 10 he had another minor flare up. Then all was well. In the meantime my daughter aged 20 got it and was quite...

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  • My 4 year old head is swollen...

    My daughter was diagnosed with HSP about a month ago. First it started as a rash on her ankles that progressed up to her bottom, then to her arms. Pain and swelling began in her knees to her ankles, elbows, wrists, and eventually hands before we finally got the diagnosis. Because she is so young, her...

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  • Advice please

    Hi my daughter has just come home from hospital after developing HSP on Sunday 8th April, she had had leaking kidneys and bowel problems! But hopefully on the mend! She is very swollen (almost double her size) and I wondered if anyone else’s child suffered with the swelling and how long it lasted? As...

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  • HSP A YEAR ON PLEASE HELP !!!!!!!!

    Can anyone help I am literally at the end of my tether and feeling so helpless for my daughter. She was diagnosed last March (2017) with HSP had horrendous swelling and rash which left her in a wheelchair for 2 weeks. Luckily bowel and kidneys have not been affected. Since last March she has been so...

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  • Hi I have just been told I have HSP week ago

    Hi can some one please help I have been told I have HSP a week ago this is the second time I have had this I had it when I was ten and i had it for three years.  I am now 38 and is wondering if there is anyone that can give me some advice if this will be as bad as an adult as it was very bad as...

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  • Daughter diagnosed with HSP at 4 1/2

    We just found out what has been causing my daughters stomach pain. She first had some diarrhea a low temp and the tummy ache for days. Blood found in urine, uti was negative. Then a raah started along with leg pain that switched from one leg and foot to the other foot. Blood tests were taken and ultrasounds....

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  • Recurring HSP....Could it be anything else?

    My 10yo son was first diagnosed with hsp over 3 years ago. He presented with a rash all over his legs and butt, swollen legs and difficulty walking, and elevated white blood cells. Rhematologist tested for juvenile arthritis but it was negative and we were given the hsp diagnosis. Since being diagnosed...

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  • Thank you /janechloe

    Thank you so much I have been going but as it almost killed my the last time and the doctor I have doesn’t seem to no much if anything about I was telling him what blood test and thing he should be doing still don’t know why it has come back  If you don’t mind me asking  how’s your daughter...

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  • My 10 year old son been diagnosed with HSP

    My 10 year old son was diagnosed with HSP around 7 weeks ago. He has regular blood pressure tests and urine tests which have mainly come back fine.  However the pain he still suffers in his legs, which makes him unable to walk is severe.  Unable to go to school when in such pain, he has not...

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  • HSP in teenagers

    HSP in teenagers. I’m a 18 year old female diagnosed with hsp around 2 weeks ago. The abdominal pain and joint pain is so severe if I’m not taking ibuprofen continually. My rash started to go away, then I was around my friends cat and the rash came back and now it’s itchy and gets irritated. Help?

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  • HSP

    Hi, just thought I'd post about my current and on going experience with HSP. I'm a 21 female at university, fairly heathy, good fitness levels.  About 6 weeks ago, on a monday, I became ill will a regular virus, I had high temperatures and it just went away on it's own; nothing to...

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  • How long does the damage from HSP last?

    I was first diagnosed with HSP 3 years ago aged 21. I had the rash all over my legs, ankles and joints. I had swollen sore knees and ankles and had protein and blood in my urine.  I am under the renal doctors who monitor my kidneys once a year and under an ENT doctor because the HSP made the blood...

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  • Trying to Diagnose my Henoch-Schonlein purpura

    Hi. Was hoping I could get some help figuring out if I have  Henoch-Schonlein purpura.  I first got this rash in July 2017. I am still currently dealing with this to date, October 2017. It occurs on my feet, ankles, legs, and sometimes my bottom. The rash itself constists of red blotches,...

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  • Diet/Digestion tips for Adults with HSP?

    Hi Everyone, Such a relief to find other adults with this rare condition. I'm 33 and have had it 4 times in 5 years, first time very severely. My main symptom is excruciating stomach pain. I currently have HSP and noticed that the stomach pain was really bad after I drank smoothies... this happened...

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  • 23yr Old HSP (Student at Uni) IT DOES GET BETTER!!

    Hello All This post is aimed at the slightly older people who have got HSP... Im a 23 year old student at Universtiy in the UK. I got HSP while i was on holiday in the states. It started off with the red spots on my ankle and then spread untill i had a really bad rash all over my legs and on my waist...

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  • HSP free for 3 years

    I can't stress enough to go back to the time when the Hsp began and  figure out what was going on health wise with you.  Did you have strep? Did you start a new medication? Did you have mouth work done-cavity? Root canal? Wisdom teeth pulled? I researched this disease for 3 plus years and...

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  • Are vaccines safe if you have hsp?

    My daughter had been diagnosed with HSP - Henoch Schonlein Purpura and she is due to have her Tetanus, Diptheria and Polio vaccine (Td/IPV) and Meningitis group ACWY (Men ACWY). Will she still be ok to have these??  Many thanks

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  • IS THERE AN END TO HSP EVEN AFTER ITS GONE???

    I am 22 year old female from Ireland.I have been suffering with the horrible disease of HSP for 2 months This is my story... On the 28TH of February this year I woke up with abdominal pain i thought nothing of it at first but as the day progressed it got worse and worse so bad it was unbearable and...

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  • What to expect?

    My daughter got HSP in March of last year when she was 5. She was hospitalized for two weeks  because it caused her to have intususseption and she had 28 cm of her small intestine removed. Altogether, her HSP symptoms lasted about 4 weeks, including the two weeks in the children's hospital. ...

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  • My daughter has hsp

    My daughter was diagnosed with hsp a week ago she isn’t in any pain today but appears like she’s sleeping all day is this normal plz help 

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  • HSP - should my 5 year old ha e the Meningitis vaccine?

    My almost 6 year old has just been discharged from hospital following her HSP.  She had regular check ups and touch wood, has been ok for about a month now. A couple of children in her class have recently had the meningitis vaccine as it wasn’t available when they were babies. Just wondering if...

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  • There doesn't seem to be an end...

    I'm 17 years old. I got diagnosed with hsp in November after developing a rash on my leg. I've had it for almost a year and it just won't go. I had a tough tough time of it, from the rash everywhere, joint pain so bad in a wheelchair and then crutches, urinating Nothing but pure blood and...

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  • Our experience of hope!

    Our 14 year old boy was diagnosed with hsp mid November 2017 with the rash spread around his legs and hands. Thankfully it left within 4 weeks. We do weekly urine follow ups. After 10 weeks he has returned to competitive basketball but with limits. His urine tests have been good. Only on two occasions...

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  • My 10year-old daughter had HSP for 5 months and now is doing well

    I would like to give some lights to the ones who are suffering the HSP. My daughter has been diagnosed with HSP this April. She had light symptoms only spots on the body, no other symptoms. The doctors didn't give her any medicine, they said for that no effective treatment is available. They asked...

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  • HSP and behaviour changes

    Hi, As you know our story my son been diagnosed with HSP back in September 2017. We were so lucky everything come and gone within 3 weeks. He was out of school for 2 weeks and he was in part time for a week. We did not let him to do PE till the half term but since that he is back to normal exept his...

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