23yr Old HSP (Student at Uni) IT DOES GET BETTER!!

Hi there,

I'm 24 years old, i was diagnosed 4 weeks ago and i' really beginning to struggle with the condition. Thank you for your post- this condition is really beginning to get me down and its nice to know that there's someone else my age can shed some light on the condition.

hi

thank you very much for the post

I'm 25 years old and 2 weeks ago i have been diagnoses with HSP

i have one question and i really need an answer dose the rash go cuz it's all over my body?? and how long dose it take?? did you use anything for it???

I was so happy to read this , you have gaven me some hope, and i smiled when you pin pointed what causes your hsp because they are some of the same things for me too , however i didnt know about the chocolate one , and i eat tht all the time!

Alcohol is the biggest set off for me , i have found vodka is actually really bad for mine espec the WKD's.

I am 18 and that point in my life where i want to go out partying , its very fustrating, just dancing or on my feet for so long my knees swell up and my legs become itchy .

The way i have dealt with it is by using Aqueous cream and low steroid cream. Pain killers for the pain and Ibrufon for swelling and not drinking.

The Rash should turn in to like a bruise, purple within 24 hours but still visible. (Iv heard)

I hope i grow out of this , iv had it for 3 years but gotton worse last year.

It started on holiday the same as you .

Thanks

dont hesitate to ask anything im really interested in other peoples conditions and any cures people know of ...

Thanks so mcuch for the above posts, I thought I was on my own! I am 22 years old, female, and have had HSP for the last 2 years or so (can't actually remember when it first came up because I left it for a while before going to GP). I haven't really had any joint pain, although do get achy knees at times. I haven't had any abdominal pain either. My problem is the rash - it has been constant for the last 2 years, it comes, fades then comes again. They are red / purply spots about 5mm in diameter. I have noticed as well that more appear after I have been drinking, exercising or been on my feet for a long time - think I will start drinking Vodka and Cranberry (wine tends to make mine worse). It's rubbish and I don't want to have to give up drinking and smoking when all my friends go out. I am also really paranoid about going on holiday because pressure stockings dont seem to help the rash - does anybody else know how I could get rid of the rash?

My GP has been absolutely useless, he hasn't even asked me to go and give regular urine samples even though they found blood in my urine when I saw the dermatologist. I have seen a kidney specialist but he didn't do anything other than schedule another appointment in the next 6 months.

There is hardly any info on the web about HSP or it's causes or treatment, I don't think anyone knows much about it to be honest, but it is nice to know I am not alone! Lets hope they come up with some kind of treatment.

Nice to know there are also other people my age who suffer from HSP so thankyou for making it seem better

I'm 18 and have had it for about 6-7 weeks. It makes me so sad as its so hot and I cant show my legs off. I've had no aches and swelling just the rash which extended all over my thighs and bottom half of my legs for about 3 weeks, now I occasionally get the odd spot around my ankles and feet. I have marks where all the spots collated which look like scars, do you know if these fade? I was told the rash should disappear within a few weeks though this does not seem the case as it keeps coming back. Luckily my kidneys have not been affected yet but my self confidence has plummeted. Im in the middle of my a levels so it has not been good, does alcohol have an effect on the rash?

thanks shefali xxxx

I thought I would add my experience as I'm a similar age (25).

I had a throat infection and some severe vomiting but it disappeared quickly without medication and I thought nothing of it. One week later my knees were beginning to hurt (not unsual of itself after a lifetime of sport) and I was struggling to move. One evening after work I noticed the rash on my legs.

Seeing that the rash was non-blancing I automatically thought of meningitis, especially given me previous bout of sickness. After a trip to A&E and a lot of tests through the night no one could work out what was wrong with me and I was eventually discharged.

I remained that way for a week and then the rash began to fade, though the arthrictic symptoms persisted.

One morning though I just couldn't move the pain was so intense. My back was in extreme pain ( I thought it was an old sporting injury) but I then realised it was my kidney area. The rash on my legs had come up again but even worse this time.

After another trip to hospital it took the senior registrar to diagnose HSP. I really couldn't walk very well so I agreed with my employer to work from home. I made a mistake in working in between the two episodes though as so much blood built up in my feet that they became swollen. They then rubbed against my shoes and broke the skin to the point where I got a secondary infection in my feet. I couldn't walk at all after that.

The pain caused by that was so bad that I had extreme nerve pain when I raised my feet (such as laying in bed). It felt like someone was stabbing me repeatedly. I had to take medication to clear up the secondary infection.

After three weeks the rash began to fade and my arthritic symptoms abated. After 4 months the rash disappeared completely.

I didn't suffer from any long term kidney problems but I do have some terrible scars on my feet from where I got the secondary infection.

I'm always worried about a repeat, and I'm often terrified of getting a throat infection, which seems to be my trigger point. Overall though no lasting damage - you'll also find you are a medical curiousity to your family and friends (and often the medical profession as well!)

I found out that I have HSP a week ago after what I thought was a heat rash and a night of drinking turned my lower body into my blobby. I headed to the doctors.

With a high social life and a love for binge drinking I thought this was it - time to find new friends that don't drink so I can get better. Which is harder than you think in British youngsters. But with the option of change or chance of kidney biopsy I decided I'm going to try at least.

I am glad you say it gets better as currently I'm walking on my feet all day and by end of the day I can't move my feet are fat, swollen and achy. Unfortunately due to the kidney issue I am not allowed to take tablets so I'm just trying to get on with it.

by being boozy defiantly doesn't help, smoking doesn't effect it however. But I do have to eat as much fruit and veg in order to up my immune system. It's all a big shock but I'm glad to know it get better. What's the longest anyone has had it for? 

Hello! I know I'm a little late to this post, but I just wanted to say it's really helped me. I'm 24 years old and was recently diagnosed with HSP, after getting the rash for two years. This has also lead on to me being diagnosed with kidney disease. At first i was just happy to have a diagnosis, but now its just frustrating - and its not to know other people have it too! I enjoy going out and having a drink, but I'm strugging with my HSP because the rash is so bad on my legs, it just looks awful. I've been on steroids, which initially got rid of the rash - but the side effects were horrible. And the rash has since kept coming back! I know its been a year since this post, but I wodnered how youre getting on now? And if this is still affecting you?

Hi,

I'm 24 years old and I just got HSP again a week back. I had gotten it when I was a kid and the stomach pain then got me worried this time! So I ran off to the doctors before the stomach pain started. I asked the doctor the cause for HSP and he told he doesnt know! He says medicine has not found an answer yet! 

I'm guessing this is a part of life now and its weird how everyone in this post are of the same age group around 18-25, most of us drink and smoke..so could it be...?