18 with fybromyalgia

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hi, my names joe, im 18 years old and this week i have beedn diagnosed with fybromalgia. I am looking for some advice on how to cope with this condition as i am finding it hard to come to terms with me having it. my mum has it too which makes it that little bit easier than it would do if she didnt have it. she has given me advice about how to cope with it, i just want other peoples opinions and advice on how other people have dealt with the condition.

thanks in advance

Joe

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  • Posted

    Poor you Joseph, your soo young to have Fibro...

    you are quite blessed to have someone soo close who also has this condition, and knows exactly what's going on an has empathy for you..but very sad your mum is a sufferer too..however..what works for your mum may not work for you...everybody deals with it differently..I can only give you my experience :

    I've had Fibro for over 22 years now ....16 yrs on this med  "Amitriptilyne"  I take for Fibro...gives me a great pain fee sleep..still feel a tad drowsy waking up...but that sleep is what makes this Fibro manageable for me..only get flare ups now..once  it was just constant pain also muscle spasms and sleepless nights..I take it 7pm before bed..it really does work wonder for me..that is,we are all very different..I take 25 mg...never had it increased either ...started on 50mg but I was like a zombie...dropped to 10mg for a while-still not too good,,but 25 mg is perfect for me..it is actually an antidepressant that works excellent for pain..it numbs the nerve ends and stops the pain from jumping on to the next nerve..hence a very painful body...the antidepressant is probably a lil bonus as most of get depressed from time to time. I really only get rotten flare ups now..but the tiredness comes and goes..hope this helps a little Joseph..God bless. Have a lovely day...do hope  you get lots of info..so you can correlate, and find out what works well for you..but you just can't go past a good Rhumotologist ..and a go that knows Fibro..also " stress is the key" to living with this Fibro:-) xxx

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    • Posted

      Hi Christine,

      thank you somuch for replying so soon, i didnt think i would get a reply so quick aha. I'm going to see my GP in two weeks to discuss what medication i can go on to help me. My mum takes Amitriptilyne but only when se needs it, she doesn's take it all the time because it makes her feel worse sometimes. I am going to ask my GP if I can go onto Amitriptilyne as i really struggle with sleeping so hopefully this will help me. I am currently on Citalopram for Anxiety and panick attacks, but it doesnt seem to help with mysleep like the doctor said so imgoing to ask if theres anything else that i can go on, but maybe the amytriptilyne will help with both the sleeping and the anxiety.

      thanks again for replying and for you advice, I really appreciate it smile

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  • Posted

    Hi Joseph

    Poor you.....I feel for you. I find that meds didn't do anything for me apart from making me feel low and gain weight.  I have been suffering for over 20 years. I was 23 when I started experiencing my pains but have only just been diagnosed with Fibro since Aug 2014.

    I really did find going to CBT (Cognitive Behaviour Therapy) which I had six sessions only since Nov 2014.  These sessions helped me in a mindful way and has made me deal with my day to day activities in more of a calm and positive way.  Although the pains are still here but the mind is more at ease.  I deal with a day at a time and this works for me at the moment.  

    With having your mum to relate to you must remember what may work for her may not work for you.  Keep an open mind and look into all the different options that you can take, but above all stay calm and positive.  Share your experiences with us all on this forum.  As we can help each other and give support to all.

    Good Luck wink x

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