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hi all. im back. i am losing all hope. i saw a vulva specialist last month who said i was either dealing with a chronic allergy or vulvar vestibulitis. he said lichen sclerosus was unlikely and never biopsied me. since then, i am still tearing at the fourchette area during sex, and after bowel movements i experience cuts. i dont understand why those areas lost all ability to stretch. im so confused whats going on with my body. this has been going on for 8 months now and yes im std free. (blood tests and swabs) im just scared and have no idea where to go from here. i have on and off burning/mild itching in my vaginal and anal area and split easily in both areas. i just want to feel normal again.
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could you get a second opinion? Or go back to your specalist and ask fir a biopsy?
good luck 😃
I agree, you need a second opinion. I don't know where you are in the world, but in the UK some women have had diagnoses via the GUM/sexual health clinics when they have been failed by their doctors. Or ask your doctor for a referral. Ideally you need a vulval dermatologist. I was referred to a normal gynae who failed to spot LS, it was only when I got to vulval dermatology that they knew what they were looking at.
Keep pushing, I know it's hard when some specialists can be really arrogant. Did he give you any medication? any support or further appointments to check progress? Allergy tests? An idea what you might be allergic to? If you are just left hanging with no further support or intervention, that's just not good enough. Do you have a sympathetic doctor who you can turn to for further help? You need to keep going until you get some help to feel better. We are all behind you, hoping and wishing you some resolution.
thank you for your response. i live in the US and the specialist was 2 hours away. he did not do any allergy tests but advised me to stop using all irritants and see if the issue resolves. if not, he believes its vulvar vestibulitis. he didnt think LS because im so young and i dont have white patches whatsoever. i am supposed to go back to see him in a week to follow up
You poor thing. Sounds like this doctor is not at all helpful and I am completely with Bridge on this - be forceful and insist on referral to someone new, preferably a vulval dermatologist. Ask lots of questions and get some steroid ointment. Good luck.
Think about joining the group Healing Through Borax for Women on Facebook. I have had real results and lots of people are in full remission. There is no pressure to adopt any particular treatment, but so much support and ideas are there, and lots of younger ladies too. It has helped me physically and emotionally.
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